Barrett Boys EDS

Barrett Boys EDS 3 Boys with Ehlers Danlos Syndrome. Raising awareness and funds to help them with treatment
https://www.idonate.ie/BarrettBoys
Bank Acc details please PM

This page has been set up for people to follow the three Barrett Boys Brandon,Keane and Kallum and their struggles with a rare illness called Ehlers Danlos Syndrome(EDS).EDS is a connective tissue disorder which can affect the entire body.There are so many different ways it can affect a person from just the usual muscle and joint pains dislocations and subluxations etc to gastro,heart,eyes.No two

people are affected the same.There are no specialists in Ireland who can look after the person as a whole.There is even very few who can look after someone in any given area of the body.All three boys attend Great Ormond Street London a few times a year and when emergencies arise also.Kallum has also started to attend a hospital in Leuven Belgium for severe gastro complications.All these trips are self funding as the HSE do not cover it on the Treatment Abroad Scheme.So thanks to our friends and family we have recently started to fundraise to continue to get the boys the care and help that they require.Please feel free to contact us in relation to anything.

BONUS BALL RESULTCongrats to Hannah Farrell who had number 15 in the Bonus Ball tonight. Thanks again to everyone for th...
22/08/2026

BONUS BALL RESULT

Congrats to Hannah Farrell who had number 15 in the Bonus Ball tonight.
Thanks again to everyone for the support.

ALL NUMBERS ARE NOW SOLD,ONCE AGAIN THANK YOU ALL.  Bonus BallWe have been meaning to do this the past week or so but Ka...
20/08/2026

ALL NUMBERS ARE NOW SOLD,
ONCE AGAIN THANK YOU ALL. Bonus Ball

We have been meaning to do this the past week or so but Kallum hasn't been well at all so before it goes on any longer we will do it for Saturday night 22nd on main draw.
Usual €5 per number and can be paid through revolut as usual at


Thanks for the continued support.

15/08/2026

Feels like it's been a long week. Kallum turned 21 last Saturday but didnt really get to enjoy it as he was feeling really bad.
Sunday night we had to do some respiratory tests during the night but his heart rate was so low the alarms kept going off all night which by the end we were laughing as it had got that bad in how much we were awake. I only would get into bed and back up to check him.
Monday Keane was in the Mater for respiratory and thankfully it didnt go so bad. From there to the Mater private to pick up Brandons mri disc but not seeing consultant until the 24th. Then we went back to where it all began Temple St to catch up with Kallums favourite medical person his old physio who we have kept in contact with the past few years since hes left. We were going to try lunch out but he really needed to get home as he was that bad.
Wednesday Ian took over as he had to have a procedure done in Sports Injury Clinic. We dropped him off then went down to Omni to have a look around but once again had to leave as Kallum could barely stand with the pain. Honestly thought Ian was going to be in one hospital and Kallum in another the way he was. We got home and I must have constantly paced the floor waiting to see how he was but it eased enough and we knew he was in Friday with his consultant anyway in Blackrock and thankfully Ians brother collected him from hospital.
Fast forward to Friday and find out he needs another look inside as they want to look and see if they can find something they are looking for. Sat thinking we would be waiting for a date but as Keane needs infusions in less than two weeks we have to bring Kallum with us and it will be done on the same day to make things easier for us! Nothings ever easy with us lol. But of course we do have more appointments before then to keep us busy. Never would think Ian was on his holidays from work lol
Hope everyone is doing as good as you can. Try to enjoy the weather while it's still here.

We had a lovely quiet day today for Kallums 21st. He wasn't feeling great at all but did ok until around 4pm and then do...
08/08/2026

We had a lovely quiet day today for Kallums 21st. He wasn't feeling great at all but did ok until around 4pm and then downhill since. He's struggling but he did enjoy himself. Weirdly enough his favourite present was a pizza oven!! Not bad for a guy who is partly on a liquid diet daily lol
Thanks to everyone for the birthday wishes.

05/08/2026

When you have every finger and toe crossed because Kallum is 21 on Saturday and he is in so much pain that you hope for once things go right and he doesn't end up in hospital for it!
When hes bad we ask a simple question of "Do we need to go?". He knows it means straight to hospital as bag is always packed ready and thankfully it's usually not a yes but today it's different he stuttered to say no not yet which is slightly worrying. Everybody slightly on edge now but hopefully it settles down.

19/07/2026

Don't you just love those days when you get a call and are given 90 mins to get Brandon down to Dublin for mri's? Not sure other two are happy about it though. Hopefully Kallum won't be in too much pain.

Results of the Golf Raffle from Friday. Thank you all so much for the continued support as we really appreciate it. Also...
12/07/2026

Results of the Golf Raffle from Friday. Thank you all so much for the continued support as we really appreciate it. Also thank you so much to everyone who took tickets to sell as most of you know we are going through alot especially with Brandon and Kallum so we hadn't much chance to sell them ourselves this year.
All winners have been contacted and have either received their prizes or are on their way.
Thanks again.

Results of the Golf Classic from Friday. We can't thank you all enough for the amazing amount of people who turned out t...
12/07/2026

Results of the Golf Classic from Friday. We can't thank you all enough for the amazing amount of people who turned out to take part on the day. Thankfully the weather was on our side and everyone seemed to have enjoyed their day even if a few ended up a shade redder by end of the round.
Thank you all again and hopefully see you all again next year as some have already booked their tee times lol.

LOUTH TICKETSSorry about the delay but wanted to get a video of the numbers being drawn for proof. So congrats to Olive ...
10/07/2026

LOUTH TICKETS

Sorry about the delay but wanted to get a video of the numbers being drawn for proof. So congrats to Olive Ni Chearbhaill who had number 2.
Thanks for all the support and a big thanks to Nuala Reilly for donating the tickets.

The National Lottery EuroMillions draws take place in front of an i...

10/07/2026

Hi guys need help on the euromillions draw tonight for the Louth tickets. We are at the golf outing when the draw is on so can someone let me know what number it is. Thanks.

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Highlands
Drogheda

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