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Monday 8:30am - 4pm Tuesday 8:30am - 4pm Wednesday 8:30am - 4pm Thursday 8:30am - 4pm Friday 8:30am - 1pm

Spinal Muscular Atrophy UK

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Spinal Muscular Atrophy UK

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We are a national charity that supports and empowers anyone affected by Spinal Muscular Atrophy. Spinal Muscular Atrophy UK was established in 1985.
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Our website provides a wide range of information about SMA and related topics. Our Support Services team provides free information, emotional support, practical advice and guidance by phone and email. Our Outreach Workers can also visit people at home. We support and fund research related initiatives.

02/11/2026

Christmas is creeping closer and closer, but there's still time to get your Christmas cards ordered before the festive rush begins 🎄

Spread a little Christmas cheer while supporting SMA UK at the same time! Head over to our shop to check out this year’s designs and order yours 👉 shop.smauk.org.uk/ 🔗

01/11/2026

Check out our SpotSMA Campaign! 📣

Through SpotSMA, we’re empowering healthcare visitors and community practitioners to recognise the early signs of SMA, from low muscle tone to delayed motor milestones, and take action sooner.

Find out more about this campaign here 👉 smauk.org.uk/SPOTSMA 💚

31/10/2026

Huge thank you to Hollie and Rachel who raised over £1,000 by taking part in the Chester Marathon!🤩 After completing a half marathon for SMA UK in 2025, they decided to push themselves even further to a full marathon this year and we are so grateful for their continued support! 💙

30/10/2026

On Thursday 22 October, SMA UK were in Cardiff alongside the charity Muscular Dystrophy UK and families from the SMA community, taking our campaign for newborn screening for spinal muscular atrophy (SMA) to Wales. We’re pleased that the Welsh Government have since announced a £1.21m investment for a new laboratory facility at University Hospital Wales to expand newborn screening.

Read the full blog here 👉 smauk.org.uk/nbswa

29/10/2026

Thank you so much to Mark who completed the Kent Downs Ultra 50k earlier this month, raising an amazing £1,160 for SMA UK! 🤩

If you would like to set yourself a goal of walking or running 50k or even 100k in 2027, we are partnered with Ultra Challenge to offer events all over the UK 📣

Find out more and sign up at www.ultrachallenge.com/

27/10/2026

Head over to our website to explore this survey for parents and carers of children living with SMA who have experience of spinal care, alongside all our other open studies and surveys 📣

🔗 Find out more: smauk.org.uk/qnzk

23/10/2026

On 13 October, Baroness Campbell of Surbiton, who has SMA, became the first member of either House of Parliament to deliver a speech using an AI-generated voice.

Using AI technology, Baroness Campbell was able to speak her own words during a House of Lords debate on the Health Bill, highlighting the importance of Personal Health Budgets and independent living.

She said: “I will be using AI to speak my own words, not to put words into my mouth.”

Her speech demonstrates how technology can help remove barriers and enable people with SMA to continue participating in public life, on their own terms.

Read more about this historic moment 👉 bit.ly/4z776aq

22/10/2026

Introducing...The Big Weekend 2027! 📣

Want to be the first to know when tickets go live? 🎟️

📩 Register your interest today to receive email updates from SMA UK about the event and be notified when tickets become available 👉 smauk.org.uk/big-weekend

22/10/2026

Today, SMA UK and MDUK CEOs, alongside families living with SMA, are meeting with Nerys Evans MS, Deputy Minister for Public and Preventative Health, to discuss a roadmap for introducing newborn screening for SMA in Wales as soon as possible 📣

With Scotland already screening babies since March and England starting earlier this month, it’s time to end the postcode lottery.

Every baby deserves the chance of early diagnosis. We’re calling for urgent action to ensure Welsh babies aren’t left behind.

20/10/2026

What does SEND support look like in your area? 📣

Disabled Children’s Partnership has launched a SEND Needs in Your Constituency tool, bringing together local data on the challenges facing disabled children, young people and their families.

You can use the tool to find the data for your constituency and contact your MP, asking them to support meaningful SEND reform and become a Disabled Children’s Champion.

Find your constituency and take action 👉 bit.ly/4eo3tEx

Address

The Mansley Business Centre, Timothy's Bridge Road
Stratford-upon-Avon
CV379NQ

Opening Hours

Monday	8:30am - 4pm
Tuesday	8:30am - 4pm
Wednesday	8:30am - 4pm
Thursday	8:30am - 4pm
Friday	8:30am - 1pm

Telephone

+441789267520

Website

http://www.smauk.org.uk/

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