Epilepsy Foundation of Australia

Directions Website

Epilepsy Foundation of Australia The Epilepsy Foundation is committed to improving the lives of people living with epilepsy.
(1)

Social Media Terms of Service

The Epilepsy Foundation welcomes contributions to our social media accounts and encourages discussion related to epilepsy, our research, events and more. To ensure a safe environment for all members of our community, we ask users to abide by these Terms of Service and reserve the right to remove any content we deem inappropriate. When posting, please respect the views of other users and be aware that our accounts are viewed by minors (people under the age of 18). Accordingly, posts and contributions should be suitable for individuals of all ages. All material posted by users must comply with the relevant service’s Terms of Use. In addition, users may not post any material that:

• Is abusive, threatening, discriminatory or defamatory
• Is unlawful, fraudulent, misleading or malicious
• Infringes on the intellectual property rights of others
• Is offensive, obscene or otherwise inappropriate
• Is entirely off-topic or has been excessively reposted by a user
• Advertises or offers to sell any goods or services, contains spam or any other unsolicited commercial messages

We reserve the right, in our absolute discretion, to remove, untag and/or report any posts, including those that violate these Terms of Service. Users who breach these Terms of Service may be blocked from contributing. The Foundation accepts no liability for any loss arising from or in connection with users being blocked from the relevant service or the deletion of a user’s content. Comments and posts on our social media accounts made by those outside the organisation do not necessarily reflect the opinions of the Epilepsy Foundation, its employees or affiliates. The Epilepsy Foundation does not endorse this material and is not responsible for its accuracy. Please note that we cannot guarantee the privacy or security of conversations made through social media messaging apps or email. While we do our best to ensure the integrity of these platforms, if you have any concerns, please contact the National Epilepsy Support Service on 1300 761 487. The collection of personal information by the Epilepsy Foundation is governed by the Privacy and Data Protection Act 2014 (Vic) and Health Records Act 2000 (Vic) (together, Privacy Laws). The Epilepsy Foundation is committed to protecting your privacy and processing your personal information fairly and lawfully in compliance with the Privacy Laws. Please refer to our Privacy Policy for information about how we handle personal information. The Epilepsy Foundation reserves the right to update these Terms of Service from time to time.

Walk for Epilepsy is powered by people 👟The participants. The donors. The volunteers. The supporters.And the partners wh...
28/10/2026

Walk for Epilepsy is powered by people 👟

The participants. The donors. The volunteers. The supporters.

And the partners who stand beside us every step of the way 🤝

A huge thank you to our Major Partner, Nexon Asia Pacific, and our Supporting Partner, UCB Biopharma, for helping make Walk for Epilepsy 2026 possible.

Their support helps create greater awareness, stronger community connection, and vital support for people living with epilepsy and their families.

Together, we're moving for the moments that matter 💜 Thank you for being part of the journey.

Learn more about Nexon Asia Pacific: https://nexon.com.au/about-nexon-asia-pacific/
Learn more about UCB: https://ucbaustralia.com.au/

⏰ It’s not too late to donate to Walk for Epilepsy 2026.

Donate at https://www.walkforepilepsy.org.au/04667E

25/10/2026

Behind every step is a story 👟📖

Today marks the final day of Walk for Epilepsy 2026!

For 25 days, you've moved for the moments that matter. But behind every kilometre is a person, a family, a story and a reason to keep going.

🎞️ Watch a compilation of words and experiences from some of our brave participants, as they remind us why every step matters.

Now, let's give these final moments everything we've got!

Get those last steps in and make one final fundraising push. Every dollar helps the Epilepsy Foundation continue providing vital education and support, creating more possibilities for people living with epilepsy 💜

This October, you didn't just Move for the Moments. You helped make more of them possible 💜

Donate at https://www.walkforepilepsy.org.au/04667E

While steps might finish today, donations will remain open.

🏆 The individual and team that top the national fundraising leaderboard by 31 October will receive $500 vouchers.

👟 UCB Biopharma company Walk for Epilepsy 👟Across Australia, the Epilepsy Foundation, Epilepsy ACT, Epilepsy Queensland ...
21/10/2026

👟 UCB Biopharma company Walk for Epilepsy 👟

Across Australia, the Epilepsy Foundation, Epilepsy ACT, Epilepsy Queensland and Epilepsy Tasmania are proud to work alongside people living with epilepsy and their families, providing information, education, support, and raising awareness to build understanding across the community.

Through Walk for Epilepsy, we bring our organisations together around a shared purpose: to create more moments of possibility, connection and progress for everyone impacted by epilepsy.

UCB is an important and valued partner in making this initiative possible. As our Walk for Epilepsy Supporting Partner, we are incredibly grateful for their commitment to standing alongside the epilepsy community 🤝 Their support for the Walk, together with their contributions to epilepsy initiatives throughout the year, strengthens our collective efforts to drive greater awareness, understanding and meaningful change.

Because when we come together with a shared purpose, every step brings us closer to creating more moments that matter for people living with epilepsy and their families 💜

⏰ Only four days left of Walk for Epilepsy 2026. Donate to your local organisation at www.walkforepilepsy.org.au

A letter to those who have lost someone they love to SUDEP on this SUDEP Action Day 🕯️💜With love, respect and heartfelt ...
21/10/2026

A letter to those who have lost someone they love to SUDEP on this SUDEP Action Day 🕯️💜

With love, respect and heartfelt remembrance.

20/10/2026

"The first time many families hear the word SUDEP is when they read it on a postmortem report. That should never happen."

These powerful words from a mother, who lost her daughter to Sudden Unexpected Death in Epilepsy (SUDEP), highlight a devastating reality.

The recent Senate Inquiry into Epilepsy in Australia echoed this concern, finding that many people living with epilepsy are unaware of SUDEP, and that some families only learn of its existence after losing someone they love.

We need to change this.

People living with epilepsy deserve to understand their risks from the point of diagnosis. Because awareness creates opportunities for informed decisions, ongoing conversations, safety planning and steps that may help reduce the risk of SUDEP.

And that starts with healthcare professionals.

This SUDEP Action Day, we're sharing our video, SUDEP: A Conversation Worth Having, created to encourage medical professionals to approach these important discussions with their patients with clarity, compassion and confidence.

Talking about SUDEP may be difficult. But the consequences of not talking about it can be devastating.

Stop SUDEP ✋ Start the conversation 💬

🎞️ Watch the full video and help us make SUDEP a conversation worth having: https://www.youtube.com/watch?v=F74sGrRbYn4

Share the video with a healthcare professional. Help make SUDEP a conversation worth having.

Knowledge empowers. Conversations matter. Together, we can work to Stop SUDEP.

Thank you to Dr Shobi Sivathamboo, Prof. Terry O'Brien and Dr Emma Foster for lending their knowledge and voices to this video. And thank you to the Massey Foundation for their generous funding of this video.

Video production year: 2024

No matter their finishing position, Team Pitcher Partners are champions in our eyes 👟🏆Thank you for being such an incred...
19/10/2026

No matter their finishing position, Team Pitcher Partners are champions in our eyes 👟🏆

Thank you for being such an incredible support to us and people living with epilepsy 💜

13 teams. 2.5 hours. $36,000 raised. And a WHOLE lot of energy 👟🔥Our 2026 Walk for Epilepsy Treadmill Challenge, held on...
19/10/2026

13 teams. 2.5 hours. $36,000 raised. And a WHOLE lot of energy 👟🔥

Our 2026 Walk for Epilepsy Treadmill Challenge, held on 6 October, brought the heat to Fitness First Richmond, as teams went head-to-head, clocking up the kilometres and raising vital funds for people living with epilepsy.

The atmosphere was electric, the competition was fierce, and the team spirit? Next level!

🏆 A huge congratulations to our winners:

🥇 1st Place – Sportsbet.com.au
🥈 2nd Place – Pitcher Partners
🥉 3rd Place – CYGNETT
💰 Highest Fundraiser – Sportsbet
💜 Team Spirit Award – First Responders

Other teams included:

🤝 Purple Passion (lived experience team)
🤝 Walk with Balmey
🤝 Walk with Prof. Cook
🤝 Fitness First Australia
🤝 The Alfred
🤝 Tailored Fresh
🤝 Australia Post
🤝 Walk with Adrian
🤝 SEN 1116

Beyond the treadmills, participants also had the opportunity to join Prof. Mark Cook and Dr Emma Foster for an insightful session exploring epilepsy, seizures and treatment, helping build greater understanding of the condition we're all moving for.

A MASSIVE thank you to:
👏 All 13 participating teams above and their team members.
👏 Our event supporters, including Sum of Us, Queens Harvest, Woolworths, Denis the Menace Cafe, Go West Tours, Between Us, Yogi Bear Yoga
👏 Major Partner, Nexon Asia Pacific
👏 and everyone who helped bring this incredible day to life.

Because every kilometre covered, every dollar raised and every conversation started brings us closer to a future where people with epilepsy can live their best lives.

$36K raised. Countless moments made. One incredible community.

That's what it means to Move for the Moments 👟

🎞️ Watch the official 2026 Treadmill Challenge video here: https://youtu.be/U1jnXmj5yNM
💜 Donate to Walk for Epilepsy 2026 here: https://www.walkforepilepsy.org.au/04667E

Register or donate at www.walkforepilepsy.org.au ...

15/10/2026

Eden was diagnosed with photosensitive epilepsy on 1 May 2026. Since then, she has discovered that some of the biggest challenges aren’t always the seizures themselves - but how people respond to them.

Eden experiences tonic-clonic and myoclonic seizures, triggered by light. But she's noticed a shift in the way some people feel around her, even when there are no flashing lights or immediate risks.

The fear. The uncertainty. The friendships that can change when people don’t understand epilepsy or know how to help.

It’s something Eden wants to change 💜

Because epilepsy might change someone's circumstances, but it doesn't change the person they are.

Eden wants people to understand that there are simple ways to support someone with epilepsy, and that a diagnosis doesn't have to mean lost friendships or missed connections.

That’s why she's walking - to help break down the stigma, build understanding and make epilepsy less frightening for the people who live with it and those around them 👟

Epilepsy is one of the most common neurological conditions, yet so much about it remains misunderstood.

Join Eden and show your support this October. Donate at https://www.walkforepilepsy.org.au/04667E

15/10/2026

AFL Umpire, Matt Stevic, joined Garry and Tim on SEN 1116 yesterday to discuss his experience with a family member who has epilepsy 📻

Donate to our Double Donation Surge at https://www.walkforepilepsy.org.au/04667E

14/10/2026

For Eleesa, epilepsy is personal. Her daughter Brianna was diagnosed with idiopathic generalised epilepsy at 10 years old, and with her mum and friends also living with epilepsy, she knows just how much the condition can affect the people living with it - and the people who love them 💜

There’s something Eleesa wishes more people understood about epilepsy.

"It’s exhausting. It’s invisible until it’s not. And it can be incredibly isolating."

A seizure in public can be frightening for everyone involved. But with greater awareness and education, we can help people respond with more understanding, less judgement and greater confidence in knowing what to do.

That’s why Eleesa is walking 👟

To raise awareness. To help people better understand epilepsy. And to make sure that when someone has a seizure, the people around them are better equipped to help.

Because knowing what to do can make a real difference 💜

⏰⚡ The Double Donation Surge ends at 11:59pm (AEST) tonight. Donate to help support people like Eleesa and her daughter Brianna at https://www.walkforepilepsy.org.au/04667E

Address

Level 1, Suite 3/210 Canterbury Road, Canterbury
Melbourne, VIC
3126

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Alerts

Be the first to know and let us send you an email when Epilepsy Foundation of Australia posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Share

Nearby non profit organizations