Cure SMA - Virginia Chapter

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Cure SMA - Virginia Chapter

Cure SMA is dedicated to the treatment and cure of spinal muscular atrophy (SMA). The Virginia Chapter brings that mission to life in our own community.

Visit curesma.org

09/04/2026

🥹 SOME OF OUR FAVORITE MEMORIES ARE FROM WALK-N-ROLLS...💜

And we’re ready to make MORE! 📸🧡

The 11th Annual Cure SMA Virginia Walk-n-Roll is October 17th in Charlottesville.

Come make more amazing memories with us.

👉 Register today: walk.curesma.org/virginia

09/03/2026

💜🧡 MYTH: “SMA ONLY AFFECTS CHILDREN.” 🧡💜

FALSE!

SMA can affect people of all ages.

Some people are diagnosed in infancy or childhood, while others are diagnosed as teens or adults.

There is a broad spectrum of SMA, and everyone's experience can be different.

That’s why awareness matters.

The more we understand SMA, the better we can support the people and families living with it.

walk.curesma.org/virginia

09/02/2026

🧡💜 ONE COMMUNITY. ONE MISSION. 💜🧡

To support people living with SMA.

To support their families.

To honor those we have lost.

To raise awareness.

To fund research.

To keep pushing toward a cure.

And we can’t do it without YOU.

Join us for the 11th Annual Cure SMA Virginia Walk-n-Roll on October 17th in Charlottesville.

Bring your people. Be part of something bigger.

👉 Register: walk.curesma.org/virginia

09/01/2026

🕊️💜🧡 IN HONOR OF OUR SMA ANGELS 🧡💜🕊️

Today, we remember the incredible individuals we have loved and lost to SMA.

They may no longer be here to walk or roll beside us, but their lives continue to make an impact.

We carry their names.
We carry their stories.
We carry their families.
And we carry their memory with us every step of the way.

Every Walk-n-Roll is also a reminder of why we keep fighting - so that one day, no family has to experience the heartbreak of losing someone they love to SMA.

This October 17th at Pen Park in Charlottesville, we will walk and roll for those who are here, those who came before us, and those who will come after us.

For our angels. For our warriors. For a cure. 💜

Join us: walk.curesma.org/virginia

08/31/2026

💜🧡 WHY DOES SMA AWARENESS MATTER? 🧡💜

Because you can't fight what you don't understand.

As SMA Awareness Month comes to a close, we hope there are more people who know what SMA is and can:

🧡 Recognize the importance of early diagnosis
💜 Understand the challenges families face
🧡 Support people living with SMA
💜 Advocate for access to care and treatments
🧡 Support research
💜 Help us work toward a cure

08/30/2026

🔎💜 3 THINGS YOU SHOULD KNOW ABOUT SMA 🧡

1️⃣ SMA is genetic.

It is caused by changes in genes involved in motor neuron survival.

2️⃣ SMA affects motor neurons.

When motor neurons are damaged or lost, muscles become weak.

3️⃣ SMA does NOT define someone's potential.

People living with SMA continue to learn, work, love, create, travel, advocate, and accomplish incredible things every day.

The SMA community is strong, resilient, and determined.

And we're fighting for a future where SMA is treatable, manageable, and ultimately curable.

Help us spread the word this SMA Awareness Month!

💜🧡

08/29/2026

🧡💜 SMA IS A SPECTRUM. 💜🧡

Not everyone with SMA experiences it in the same way.

There are different types and a wide range of abilities and needs.

Some people with SMA may walk.

Others may use wheelchairs.

Some may need breathing support.

Others may not.

Some people are diagnosed as babies.

Others aren't diagnosed until later in life.

There is no single “SMA story.”

Every person is different.

Every family is different.

And every story matters.

This month, help us make sure more people understand SMA. 💜🧡

08/28/2026

🧬💜 WHAT DOES “MOTOR NEURON” MEAN? 🧡🧬

Think of your brain as the command center.

Motor neurons help carry those movement commands from your brain and spinal cord to your muscles.

In SMA, these motor neurons are affected.

When they are damaged or lost, muscles don't receive the signals they need to work normally.

That can lead to muscle weakness.

This is why SMA can affect things like:
🧡 Movement
💜 Strength
🧡 Breathing
💜 Swallowing

Understanding the science behind SMA helps us understand why research is so important.

The goal?

A future where SMA no longer takes away strength, mobility, or lives.

💜🧡

08/27/2026

💜🧡 CAN YOU SEE SMA? 🧡💜

Here’s the thing:

You can’t always “see” SMA.

Someone may use a wheelchair.
Someone may walk independently.
Someone may use a ventilator or breathing support.
Someone may need help with everyday activities.

SMA can look very different from person to person.

And because SMA is a spectrum, it's important not to make assumptions about what someone can or cannot do based on their diagnosis or mobility equipment.

The best thing you can do?

Ask. Listen. Learn.

That’s what SMA Awareness Month is all about. 💜🧡

08/26/2026

💜🧡 SMA AFFECTS MUSCLES - BUT IT DOESN’T DEFINE A PERSON. 🧡💜

One of the biggest misconceptions about SMA is that it tells you everything about someone.

It doesn’t.

SMA can cause muscle weakness and affect movement, but people living with SMA have personalities, dreams, careers, relationships, hobbies, goals, and HUGE lives.

Someone with SMA might be:
👩‍💻 Working
🎓 Going to school
💍 Married
🎨 Creating
🎮 Gaming
✈️ Traveling
🏠 Raising a family
📣 Advocating for change

SMA is one part of someone's story - not the whole story.

This SMA Awareness Month, help us educate others and celebrate the incredible people who live with SMA every day.

💜🧡

Address

Woodbridge, VA

Telephone

(571) 991-0604

Website

https://www.curesma.org/chapters

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