Association for Glycogen Storage Disease

Association for Glycogen Storage Disease Created for support and awareness of the various types of Glycogen Storage Disease.
(1)

The AGSD was created as a focus for parents of and individuals with all types of GSD to communicate by:
* sharing their successes and concerns
* sharing useful findings
* providing support
* creating an awareness of this condition for the public
* stimulating research in the various forms of glycogen storage diseases and have the results communicated to the parents, affected individuals, and the public as soon as possible.

🎉 Woo Hoo! We’ve officially surpassed 200 registrations for the 2026 AGSD Conference! 🎉We are thrilled by the incredible...
05/30/2026

🎉 Woo Hoo! We’ve officially surpassed 200 registrations for the 2026 AGSD Conference! 🎉
We are thrilled by the incredible response and excited to welcome so many attendees on June 19–20, 2026. Thank you for helping make this event such a success already!

⏰ Important deadlines are approaching:
🏨 Hotel Registration Deadline Extended: June 6, 2026
📝 Last Day for General Registration: June 7, 2026
📈 After June 7, registration will move to Late Registration pricing.

✅ Register for the conference
✅ View hotel information
✅ Purchase a conference t-shirt
Visit the Conference tab on our website today!
We can’t wait to see everyone in June for an amazing conference filled with learning, connection, and fellowship!
https://agsdus.org/agsd-conference/

🚨 If you’ve been waiting on a sign to order your conference shirts for our June Conference this year… THIS IS IT! 👕✨Now ...
05/25/2026

🚨 If you’ve been waiting on a sign to order your conference shirts for our June Conference this year… THIS IS IT! 👕✨
Now through tomorrow, enjoy 10% OFF everything in our AGSD store using code: AGSDMemorialDay
Don’t miss your chance to grab your conference gear before the event! 🛍️🔥
https://agsdus.itemorder.com/shop/home/

🚨 Last Call for Conference Shirts! 🚨Tomorrow is the final day to order your conference shirt for home shipping. Conferen...
05/21/2026

🚨 Last Call for Conference Shirts! 🚨
Tomorrow is the final day to order your conference shirt for home shipping. Conference pickup will still be available after that!
As a reminder, we carry only a very limited number of shirts onsite at the conference. If you want to make sure you get one, we highly recommend ordering ahead of time.
While you’re there, be sure to check out the store for other conference merchandise too! 👕✨

https://agsdus.itemorder.com/shop/home/

📢 Reminder: We are officially ONE MONTH away from our 2026 Conference!As we get closer, we want to highlight a few impor...
05/15/2026

📢 Reminder: We are officially ONE MONTH away from our 2026 Conference!
As we get closer, we want to highlight a few important deadlines for both conference registration and hotel bookings. We are currently ordering materials and finalizing food reservations, so having an accurate headcount is extremely important.
If you plan to attend, please:
✅ Register for the conference as soon as possible
✅ Book your hotel using the group rate before the deadline
Don’t wait until the last minute — we want to make sure everyone is accounted for and ready for a great conference experience!
If you have any questions, please email us at [email protected].

Look how far we’ve come over the last few years! 🎉👏As a reminder, there will NOT be a US-based AGSD conference next year...
05/15/2026

Look how far we’ve come over the last few years! 🎉👏
As a reminder, there will NOT be a US-based AGSD conference next year, as IGSD will be hosting their 2027 International Conference.
So if you’ve been on the fence about attending the 2026 AGSD Conference in Cleveland… this is your sign to register NOW! ✨
After this year, AGSD won’t host another US-based conference until 2028 — and the location is still TBD. Don’t miss your chance to connect, learn, celebrate, and be part of the momentum in Cleveland this year! 🏙️💙
Register Here : https://agsdus.org/agsd-conference/

📣 Check it out! The agenda for the 2026 AGSD Conference has officially been updated — and the website has been refreshed...
05/12/2026

📣 Check it out! The agenda for the 2026 AGSD Conference has officially been updated — and the website has been refreshed too! 🎉
Be sure to review all conference reminders and important deadlines:
✅ General Registration is open through June 7th
⏰ After June 7th, registration will still be available at the Late Registration rate
🏨 Hotel Group Rate deadline: May 20th
Don’t wait too long to secure your spot — we can’t wait to see everyone in Cleveland for AGSD 2026! 💙

https://agsdus.org/agsd-conference/

💐 Happy Mother’s Day 💐Today, we celebrate the incredible moms in our community—those living with Glycogen Storage Diseas...
05/10/2026

💐 Happy Mother’s Day 💐
Today, we celebrate the incredible moms in our community—those living with Glycogen Storage Disease and those raising children with it. Your strength, resilience, and unwavering love inspire us every single day.
You navigate challenges with courage, advocate fiercely, and show up with a level of care that truly makes a difference. Your dedication does not go unnoticed.
Today is for you—for everything you do, seen and unseen. 💛

🚨 Conference merch is LIVE! 🚨If you missed it in our last newsletter—now’s your chance! Shirts and exclusive conference ...
05/05/2026

🚨 Conference merch is LIVE! 🚨
If you missed it in our last newsletter—now’s your chance! Shirts and exclusive conference gear are officially available in our store.
🔥 Order now and pick up at registration
⚠️ Limited quantities will be available on-site
Don’t wait—secure yours before it’s gone!
👉 https://agsdus.itemorder.com/shop/home/

🎉 Congratulations to our two raffle winners, Bailey Walker and Louis Harvey! 🎉We’ll be reaching out to you soon with det...
04/28/2026

🎉 Congratulations to our two raffle winners, Bailey Walker and Louis Harvey! 🎉
We’ll be reaching out to you soon with details about your hotel stay for the 2026 AGSD Conference.
We’re excited to share that we now have over 148 people registered and can’t wait for what’s shaping up to be an amazing event!
Be sure to check out our newsletter for the latest conference updates, important information, and upcoming deadlines. www.agsdus.org

🔥 Hot off the press!Check out the latest issue of THE RAY, our AGSD newsletter—packed with conference info and everythin...
04/22/2026

🔥 Hot off the press!
Check out the latest issue of THE RAY, our AGSD newsletter—packed with conference info and everything you need to know.
⏰ Don’t forget: the deadline to register for our FREE hotel room drawing is this Sunday, April 26!
Got questions? Send us a message on Messenger or email us at [email protected].

https://agsdus.org/wp-content/uploads/2026/04/Newsletter-Spring-2026.pdf

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Waterloo, IA
50702

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