Upper Midwest Bleeding Disorders Alliance

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Upper Midwest Bleeding Disorders Alliance www.umbdalliance.org - A future where everyone affected by a bleeding disorder has the community and care they need to live well.

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The Hemophilia Foundation of Minnesota/Dakotas (HFMD) page is provided for general information purposes only. HFMD does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, HFMD recommends you contact your physician or local hemophilia treatment center (HTC). HFMD does not recommend particular treatment for specific individuals and recommends that you consult a physician before pursuing any course of treatment. We request that you respect fellow community members and the posting guidelines of Facebook, and refrain from including any of the following in your comments:

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REMINDER TO REGISTER❄️ Winter Adventures Await ❄️Our Teen Retreat is back January 8–10 at new location True Friends- Cam...
11/03/2026

REMINDER TO REGISTER

❄️ Winter Adventures Await ❄️

Our Teen Retreat is back January 8–10 at new location True Friends- Camp Courage — three days of winter fun, new friendships, and all the indoor activities you love.

Register Here: https://docs.google.com/.../1FAIpQLSfX7GmdtZp.../viewform...

Young Adults (18-30), we need your vote!We're planning a brand-new event this January at the Mall of America and it's go...
10/29/2026

Young Adults (18-30), we need your vote!

We're planning a brand-new event this January at the Mall of America and it's got:

🍕 Pizza Party
💡” 8 Tips to Survive Adulting” presented by Novo Nordisk
🤝 Time to connect with other young adults

But here's the big question...
What's the fun?

Challenge each other to Rock of Ages Glow Golf?
Take on an Escape Room?

This event is being designed with YOU in mind, so drop your vote in the comments and tell us what activity you'd actually show up for.

Stay tuned for the official event announcement!

Get Connected Weekend is SCHEDULED — and we’re making a splash in 2027! 🌊 April 16–17 • Great Wolf Lodge 🌊Last year was ...
10/28/2026

Get Connected Weekend is SCHEDULED — and we’re making a splash in 2027!
🌊 April 16–17 • Great Wolf Lodge 🌊

Last year was all about big smiles, new friendships, and families connecting in the best way — and this year, we’re adding even more waterpark fun. Pack your suits, gather your crew, and get ready for a weekend full of community, memories, and waves.

Save the date — the waterpark awaits.

RegĂ­strese hoy para participar en este programa educativo. Melissa Atocha atocha.melissa@gene.com o (279) 204-7720 Reser...
10/19/2026

RegĂ­strese hoy para participar en este programa educativo.
Melissa Atocha [email protected] o (279) 204-7720

Reserve su lugar a más tardar el 10/19/2026

Este programa, patrocinado por Genentech, no proporcionará asesoramiento médico.

Consulte con su proveedor de atención médica si tiene alguna duda respecto de su afección médica o tratamiento.

Save the Date✨ Masquerade on the Mississippi ✨We’re bringing the magic back February 20 at Leopold’s Mississippi Gardens...
10/14/2026

Save the Date
✨ Masquerade on the Mississippi ✨
We’re bringing the magic back February 20 at Leopold’s Mississippi Gardens.
Mark your calendar — you won’t want to miss this one.

⏰ Only 2 days left to register!  If you love nature, fall weather, and connecting with the bleeding disorders community,...
09/30/2026

⏰ Only 2 days left to register!
If you love nature, fall weather, and connecting with the bleeding disorders community, this is your moment.

We’re heading back to Rochester this October for our Community in Nature: Bleeding Disorders Gathering at Quarry Hill Nature Center — a perfect autumn day of learning, exploring, and spending time together.

🌿 Welcome & Lunch
🌿 Educational Programming
🌿 Special Guest Speaker
🌿 Live Turtle Show!

đź“… Saturday, October 10
🕒 11 AM – 3 PM
📍 Quarry Hill Nature Center
📝 Register by October 2 at UMBDAlliance.org

Don’t wait — grab your spot and enjoy a beautiful fall day with our UMBDA community.

Register Here: https://umbdalliance.org/page-15

Last weekend, our Superior Connections – Duluth program brought together families and professionals for a powerful after...
09/29/2026

Last weekend, our Superior Connections – Duluth program brought together families and professionals for a powerful afternoon of learning and community at the Great Lakes Aquarium.

We were honored to feature three exceptional speakers from M Health Fairview:

Amy Marquez, Operations Director

Dr. Mark Reding, MD, Hematologist — The Evolution of Bleeding Disorder Treatment and Comprehensive Care

Amy Wilson, LICSW, Clinical Social Worker — More Than a Diagnosis: The Human Side of Bleeding Disorders

Our board members Kris Rauenhorst and Jeff Makepeace added meaningful lived‑experience perspectives — Kris as a mother of a child with a bleeding disorder, and Jeff reflecting on growing up with one. Their voices grounded the day in real‑world insight.

We closed with an intimate conversation on how grandparents and families in rural Minnesota can prepare their homes to safely welcome grandchildren with bleeding disorders, a discussion that truly highlighted the strength and practicality of our community.

Thank you to everyone who joined us in Duluth and helped make this gathering so impactful.

🍂 Rochester, get ready for an unforgettable fall gathering! 🍂Fall colors, community vibes, and a day full of learning — ...
09/23/2026

🍂 Rochester, get ready for an unforgettable fall gathering! 🍂
Fall colors, community vibes, and a day full of learning — our Community in Nature: Bleeding Disorders Gathering at Quarry Hill Nature Center is almost here, and we can’t wait.

This year, we’re thrilled to welcome Kate Nammacher from the National Bleeding Disorders Foundation, who will be leading two powerful and engaging sessions:

🔹 The Community Conversation
🔹 Dream It, Do It: Empowered Goal Setting

Add in crisp autumn air, meaningful breakout sessions, and yes… a Live Turtle Show, and you’ve got the perfect mix of education and fun.

đź“… Saturday, October 10
🕒 11 AM – 3 PM
📍 Quarry Hill Nature Center

⏳ Registration closes October 2 — grab your spot and join us for this special fall gathering with our UMBDA community.

Register Here: https://umbdalliance.org/page-15

Address

Mailing Address: 1056 Highway 96 East #270070
Vadnais Heights, MN
55127

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