Down Syndrome Network of WV

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South Charleston, WV
Down Syndrome Network of WV

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Donate to New Parent Packets here: https://a.co/7vS1mRe

Donate to our Library here: https://a.co/1jdgsfZ

Physical address: 612 D Street, South Charleston, WV 25303
Mailing address: PO Box 8066, South Charleston, WV 25303

11/05/2026

👋Hello from Morgantown!

Executive Director Ashley Orndorff and Board Member Jessica Wooten are exhibiting at the WV Perinatal Summit. This is made possible through grant funding by Encova Foundation of WV and Sisters of St. Joseph Health & Wellness Foundation.

We're sharing information with providers on supportive diagnosis delivery, connecting with medical associations to get the word out, and making plans to expand our efforts 🤫😏

11/03/2026

Have you missed our recent newsletters?!?!

No, you have not. Here's a summary of what's been happening this fall!

11/02/2026

November's will look a little different with guest host, Mary McDirmid. Mary will discuss planning strategies for families with loved ones with intellectual and developmental disabilities. Registration is free but required to obtain the meeting link, and can be accessed below:

📅Event details:
• Tuesday, November 3, 2026
• 7:00 PM Eastern / 4:00 PM Pacific

👉Zoom registration:
https://us06web.zoom.us/meeting/register/cO_qm-vVQlKdT4EWur8VGQ

10/25/2026

You still have time to get your application in to serve on our Board of Directors!

The Down Syndrome Network of West Virginia has three (3) board seats open for the 2027 operational year. Members in good standing will join the monthly board meetings via Zoom on the 2nd Tuesday of each month, with additional meetings added as needed. Members work together to make decisions to drive the mission of the organization to enhance the lives of people with Down syndrome in West Virginia.

The current Board of Directors will accept applications through November 6th and new membership will be voted on in their regularly scheduled November meeting. Chosen applicants will be notified by email following the meeting.

Some FAQs:

Do I need to be the parent of a child with Down syndrome? No, we welcome any member of the community who wishes to serve.

Is this a paid position? Serving on the Board of Directors is a voluntary role.

I've never served on a Board of Directors before, am I qualified? No experience is necessary, just a desire to serve.

***the only way to apply is via the JotForm application at https://form.jotform.com/Dsnwv/BoardApp. Email and messenger applications will not be accepted, but please reach out via [email protected] or message this page if you have any questions!

10/24/2026

Occupational Therapists play a vital role in the lives of individuals with Down syndrome, so we're here at the WV Occupational Therapy Association conference talking with current and future practitioners!

✅️ OT in Early Intervention can assist families in navigating resources to support their needs.

✅️ OT in pediatrics should be aware of specific health concerns for children with Down syndrome.

✅️ OT in adulthood can help guide discussion of medical concerns as their patients with Down syndrome age.

If you're attending WVOTA Conference, stop and say hello! 👋

10/21/2026

It's going to be a beautiful day at Stonewall Resort for West Virginia Association of Rehabilitation Facilities, Inc. conference 🌄

10/20/2026

10/17/2026

🌞The weather is perfect
🥤I've got my Three Arrows blueberry lemonade
🎨Canvases are ready

🕑See you at 2!

10/16/2026

The WV Advisory Council for the Education of Exceptional Children will be meeting in Hardy and Pendleton Counties next week. They are interested in hearing from families, educators, and members of the community about unmet needs in special education.
Unable to attend the meeting but want to provide feedback? Fill out their online form! The Council considers online submission just the same as if you were present: https://www.jotform.com/232624591421048

If you are the parent, family member or educator of a child with a disability this meeting is for you !!
You do not have to be from one of these counties to share with us.
You’re invited to participate in person, virtually or by submitting an electronic survey.
We’d love to hear from you !!!

Address

PO Box 8066
South Charleston, WV
25303

Telephone

+13045456613

Website

http://dsnwv.org/

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