Down Syndrome Parents Group of Western New York

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The Down Syndrome Parents Group of Western New York is a non-profit organization consisting of self advocates, friends, as well as parents and families of children with Down syndrome. The Down Syndrome Parents Group of Western New York is a 501c3 non-profit organization which was formed in 1979 by a group of parents who connected through the common bond of parenting children born with Down syndrome. Having found no regional support network available at the time, and little information readily available about the genetic disorder, they decided that such an organization was greatly needed. Since its inception, the group has supported hundreds of families in and around the Western New York area while promoting awareness of Down syndrome, and acceptance of individuals born with Down syndrome. Through a series of annual events which have become a yearly tradition for many families in the area, DSPG has continually expanded awareness of Down syndrome while enriching the lives of the many people who have taken part.

11/09/2026

Justin Timberlake walked the runway with his 7-year-old niece, Zaya, while supporting her during the Global Down Syndrome Foundation’s 19th annual fashion show in Denver. 🤍 Click the link in the first comment for the full story. ⬇️

📷: Tom Cooper/Getty

Fall Dance!
11/08/2026

Fall Dance!

Our local resource of the week.
11/07/2026

Our local resource of the week.

YOU'RE INVITED to our Community Open House!
We're opening our doors so you can see what all the BUZZ is about! 🐝

👀 Tour our NEW 12,000 sq.ft. facility
🚜 Learn how The Arc Erie County's new inclusive farm, Black Water Acres, will create opportunities for connection, inclusion, and community engagement
👫 Connect with our dedicated program and facility staff
🎉 See our spacious event venues - perfect for weddings, parties, meetings, and special events
👂 Be among the first to hear about upcoming community programs, family events, and exciting opportunities

We hope you'll stop by between 3-7pm and see all that Black Water Acres has to offer! 🧡

Our Resource of the Week
11/05/2026

Our Resource of the Week

A complete blood count (CBC) is a common blood test used to assess the health of an individual. Several measurements related to red blood cells are reported including:
▪️hemoglobin (Hgb),
▪️hematocrit (HCT),
▪️mean corpuscular volume (MCV), and
▪️mean corpuscular hemoglobin (MCH)

CBC results for people with Down syndrome often indicate a high MCV. This is called macrocytosis and means the person's red blood cells are larger than normal. Additional testing may not be needed unless the results also indicate the person with Down syndrome has anemia or other health issues. See the article from our Resource Library linked below to learn more.
🔗 https://adultdownsyndrome.org/resources/macrocytosis/

11/02/2026
Bonus Fact!
11/01/2026

Bonus Fact!

Address

Snyder, NY

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