09/03/2026
We often think of grief as something that begins after a death.
But grief can also live alongside love when someone we care for is physically alive...and transforming into someone unrecognizable piece by piece.
When a loved one is living with a neurodegenerative condition, there can be losses that happen slowly, quietly, and repeatedly.
A familiar role within a relationship may change.
Plans for the future may look different.
Conversations, routines, independence, intimacy, or pieces of the person we have always known may begin to shift.
And still, the person we love is here. Right in front of us, yet so very far away.
This is part of what can make ambiguous grief so complicated.
Straddling the tension held within the paradox becomes more familiar.
The complexity of honoring that there may be deep gratitude for what remains alongside very real grief for what has changed.
There can be love and exhaustion...frustration, even.
Hope and sadness.
Connection and loneliness.
Relief and guilt.
Opposite feelings existing in the same breath.
Yet none of those experiences diminish the love held between two humans--even with the complexity and ever shifting role of providing care for someone we love most in the world varies day by day.
Tomorrow, we will welcome our Fall group of Care Partners back to Magnolia Harbor for the second retreat day.
As we prepare for their arrival, we are reminded that sanctuary in practice means making room for the grief that doesn't always have a name, a ritual, or a socially recognized place to be honored.
It means allowing someone to say, I love this person deeply, and this is incredibly hard and I do not know how im going to keep doing this.
Both can be true all at the same time.
And both deserve to be held with compassion, connection, and in community.