09/03/2026
I'm excited to announce that survey and mobile gaming publisher, Madai, is launching Madai Aid Rare Diseases, and Cure CLCN6 is the first patient advocacy group to join this initiative!
Madai Aid Rare Diseases allows people to help fund rare disease research by donating their time. The concept is simple and benefits the user and participating rare disease charities.
Users earn rewards by completing surveys and mobile games, that can be redeemed for PayPal or Amazon gift cards.
Cure CLCN6 will receive a donation every time a user completes a survey. The donation does not come from the users balance, but comes from Madai's revenue as the publisher, as charitable donation.
Madai is donating 45% of their earnings to Cure CLCN6 when users create an account linked to Cure CLCN6 and complete surveys.
The goal is to grow to include many more rare disease patient advocacy groups, to allow the rare disease organizations to bring their communities, and the general population together, to crowdfund life saving rare disease research and treatments for patient advocacy groups in the network.
To create an account and support Cure CLCN6 through Madai Aid Rare Diseases, follow this link: https://madai.com/?res=GrI2pFY1
To visit the Madai Aid Rare Diseases Home Page to learn more, click here: https://madaiaid.org/rare-disease/
You will see that Cure CLCN6 is featured as the first participating charity, and Paxton's story is highlighted. You can also create an account from there by clicking "Start Making an Impact" under the Cure CLCN6 profile.
If you would like more information on how to get your patient advocacy group involved, click "Join the Network" from the Madai Aid Rare Diseases Home Page.
Thank you!
Paul
RARE DISEASES · A GROWING NETWORK Fund Rare Disease Research While Earning Real Rewards Every rare disease story starts with a family that refused to wait.Turn your opinions into real support. Are you a rare disease foundation? Join the network and turn your community's time online into funding. ...
