05/23/2026
Words cannot express how grateful we our to our family, friends and the surrounding communities for coming out to support our Walk for Rare Disease Research!
During this event, our supporters walked an incredible 820 collective laps!
Thanks to the support of our amazing community, our partners, vendors and everyone involved in this event, we raised more than $5,000 for rare disease research and a gene therapy for CLCN6 mutations!
We would like to give a special thank you to the following individuals and organizations for their support. We could not have done this without their help:
Joe and Susan Trance
Jeanne Johnson-Taylor
Justin and Sandra Gisonda of Full Potential Speech
Thank you to all the vendors for your participation and support:
La Lumbre Artisan Pizza
Cali Porker BBQ
Chillin Shaved Ice IE
Berry’s N Drizzle
Twisted Spoons
Jersey Mike’s
JoJos Homemade Candles
Kreatiewe World
Dusk2Dawn Crafts
DowMan Sourdough
Olivedipity
Budai Creations
Scripps Exploring Academy
Wonders of Sensory Play
V_Face Painting
DJ Beats Mode
The Tillery Family representing CTNNB1
Thank you for the raffle item donations:
Justin and Sandra Gisonda of Full Potential Speech
Budai Creations
Twisted Spoon
Urbane Cafe
Chipotle
Mulligan’s Family Fun Center
Regal Cinemas
Starbucks
Busy Bee Bakery
Sophie Christine Designs
Lake Elsinore Storm
Better Buzz
Temecula Lavender Company
Thank you to all of our amazing volunteers from the surrounding high schools including Great Oaks, Murrieta Mesa, and the Murrieta Mesa ROTC!
We are excited to have everyone as part of our journey and we look forward to holding future events in our communities!
