10/06/2026
Lana, Marta, and I have a vision.
Hit us up. 💜
After decades of being on this journey and caring for Sasha, Sofia, and Thomas—who are now young adults living with profound autism and SYNGAP1-related disorder—we have a deep desire and goal to highlight the legislation and systemic changes that are desperately needed.
Families need:
• More respite care
• Access to legal representation
• Mental health support, especially for single mothers
• Increased research and funding
• An end to the 17-year-plus waiting list for services
• Increased pay for caregivers and direct-support professionals
• Updated laws that hold accountable those who victimize and exploit this vulnerable population
• The ability for families to choose how they want to raise and care for their children—without being forced into institutions
📌 And lastly, families raising individuals with profound autism are often led by
💕🫂💕 SINGLE MOTHERS 💕🫂💕 who are left in critical situations because they are carrying the responsibilities of a one-parent household.
The economic, emotional, mental, and spiritual toll can be overwhelming.
🚩 Being told to “wait” is not an acceptable answer when a child is banging their head throughout the night, engaging in severe behaviors, experiencing bowel or toileting challenges, or displaying aggression that can quickly turn a family’s home into a crisis situation.
That is why our nonprofit was established: to answer the call and help families navigate these challenges with support, advocacy, resources, and hope. ✨
We are not asking families to simply survive. We want families to have the opportunity to live, thrive, and be supported with dignity.
