Down Syndrome Association of Central New Jersey

06/17/2026

https://www.facebook.com/share/1bda6xwUXt/?mibextid=wwXIfr

The More than Down Syndrome Workshop is a free seminar for parents, family, and caregivers of individuals with Down syndrome and autism that we co-facilitate with the National Association for Down Syndrome. The next session will be held on Saturday, June 27, 2026, from 9:30 a.m. to 11:00 a.m. (Central).

Katie Frank, PhD, OTR/L, the occupational therapist at our Adult Down Syndrome Center, will present on how to address behaviors, and then there will be an open forum.

Registration is required to receive the meeting link. Visit the page below to learn more and register!

🔗 https://adultdownsyndrome.org/events/mtds-behaviors-june-2026/

**Please note: This session will NOT be recorded.

05/28/2026

Medical outreach is central to our mission at DSACNJ. Yesterday, we had the opportunity to share best practices for delivering the postnatal diagnosis and the guidelines for healthcare of youth and adolescents with Down syndrome at the NJ American Academy of Pediatrics conference.

Continued initiatives like this are essential to improving the healthcare experience for our loved ones—ensuring care that is informed, compassionate, and responsive to their unique needs.

05/16/2026

Thank you to Pennington Day grants for supporting DSACNJ and Club DREAMS sensory friendly reading nook initiative!

05/15/2026

05/08/2026

NDSS Scholarships are available! Apply now!
Apply for an NDSS Scholarship by May 22, 2026.
NDSS is honored to support self-advocates with Down syndrome in pursuing their goals, whether it’s starting a business, continuing education, or following a personal passion. Explore NDSS Scholarships and find the one that’s right for you or someone you know! The deadline to apply has been extended to May 22!

05/06/2026

The DS-Connect Down Syndrome Registry invites you to a FREE upcoming webinar on May 28, 2026, featuring Dr. Meghan O'Neill, assistant professor of pediatrics and neurodevelopmental physician at the Ann & Robert H. Lurie Children's Hospital of Chicago. Dr. O'Neill will present "Autism & Down Syndrome: How to Recognize the Signs and Support your Child."

Whether you’re a caregiver, self-advocate or researcher, this webinar offers valuable information about the latest in Down syndrome research and how you can support future discoveries.

Register at bit.ly/4tRvPgk to save your spot today! A simultaneous Spanish interpretation will be available.

05/03/2026

Hello NJ and PA area T21 families!
Join other parents for a virtual meet up to share resources and experiences and to develop local
connections.

Register in advance for this meet up:
https://us06web.zoom.us/meeting/register/zzOuiWf5SP61zh8Wfh-4eg

After registering, you will receive a confirmation email containing information about joining the meeting.

04/30/2026

Secure tickets to a great performance with Roxey Ballet while supporting DSACNJ

04/30/2026

Virginia Commonwealth HOPE lab is inviting birthing parents of children with Down syndrome to take part in an anonymous survey about their diagnostic experience.
Your insights and stories can help improve how healthcare providers deliver diagnoses and support families in the future.
✔ Takes 10-15 minutes to complete
✔ Anonymous and voluntary!
Your story and voice matters. Help us make the diagnostic journey better for all families!

To participate in the Down Syndrome Diagnostic Experience Among Birthing Parents survey click on the link below.

https://redcap.vcu.edu/surveys/?s=JF9XFCYD8NHA779W

04/24/2026

Help out with National Down Syndrome Congress AI project!
National Down Syndrome Congress is working on a project with Microsoft to train and develop generative AI to better represent the Down syndrome community. Microsoft has done similar work with the blind community, the dwarfism community, and other groups. NDSC is gathering photos and videos from people with Down syndrome to create a more accurate and diverse collection of generative AI images. We are reaching out for your support with this project.

NDSC is hosting focus groups to gather that input. If you’re willing to help ensure AI is trained on representative data, please sign up for one of the focus groups available. Please note that participation in this focus group does not mean you will automatically participate in providing photos and videos.

Below are the dates available for individual focus groups. Please only choose the option that best aligns with your connection to this project. If there is more than one focus group that applies to you, please choose the date and time that works best for you.

Consider signing up for a focus group that is relevant to you!

4/29, 6:00 PM EST
Representation for individuals with Down syndrome under 18 years
Open to parents, siblings, family members, support persons, professionals, etc., of those with Down syndrome under 18 years and Open to people with Down syndrome under 18 years

Register here: https://us06web.zoom.us/meeting/register/S17R6eFvRhivTzT0xGCKwA?blm_aid=0

4/30, 2:00 PM EST
Representation for Spanish-speaking and non-English-speaking
Open to parents, siblings, family members, support persons, professionals, etc., and people with Down syndrome, where English is not their first language
Register here: https://us06web.zoom.us/meeting/register/X3yNtb5rQN6uIZZ6ikyugQ?blm_aid=0

5/02, 11:00 AM EST
Representation for individuals with Down syndrome over 30 years:
Open to parents, siblings, family members, support persons, professionals, etc., of those with Down syndrome over 30 years and individuals with Down syndrome over 30 years

Register here: https://us06web.zoom.us/meeting/register/weBnIxrMQrWnedZ9UFMCrA?blm_aid=0

5/03, 8:00 PM EST
Community contribution from individuals with Down syndrome of any age (self-advocates only)

Register here: https://us06web.zoom.us/meeting/register/F0l3xMTeQvSFVif57obLrw?blm_aid=0

5/07, 6:00 PM EST
Representation for parents, siblings, family members, support persons, etc.

Register here: https://us06web.zoom.us/meeting/register/gPjmEG7nRQKUlyzwLvyuvw?blm_aid=0