IgG4ward

IgG4ward IgG4ward! Foundation is the only organization dedicated solely to IgG4-related disease (IgG4-RD ), providing trusted education, advocacy and support.

We empower patients, caregivers, and healthcare providers with resources to navigate IgG4-RD.

New research. Expert insights. Community conversation.Join Dr. John Stone and Dr. Emanuel Della Torre on July 2 for an I...
06/25/2026

New research. Expert insights. Community conversation.

Join Dr. John Stone and Dr. Emanuel Della Torre on July 2 for an IgG4ward! Fireside Chat exploring key IgG4-RD research and developments presented at the recent EULAR Congress in London.

Topics will include:
🔹 INDIGO clinical trial updates
🔹 MITIGATE clinical trial updates
🔹 Emerging IgG4-RD research
🔹 Audience Q&A

Whether you're living with IgG4-RD, supporting a loved one, providing care, or conducting research, this conversation offers an opportunity to learn about the latest developments in the field.

📅 July 2, 2026
🕛 12:00 PM ET
💻 Virtual | Free Registration

Questions for our speakers? Email us at [email protected] or leave them in the comments below.

Please share this post with anyone who may benefit from the conversation.

🔗 Registration link:
https://igg4ward.org/events/igg4ward-fireside-chat-igg4-rd-highlights-from-the-eular-congress/

How long did it take to get answers?For many people living with IgG4-related disease, the path to diagnosis is anything ...
06/23/2026

How long did it take to get answers?

For many people living with IgG4-related disease, the path to diagnosis is anything but straightforward. Multiple appointments. Multiple specialists. More questions than answers.

In Session 2 of the IgG4ward! EuroJAM educational series, Dr. Emma Culver discusses why diagnosing IgG4-RD can be so challenging and why greater awareness of the disease matters.

If you've ever wondered why the journey can take so long - or if you've lived it yourself - this session is worth watching.

🎥 Watch the session and access the companion Viewing Guide:
https://tr.ee/3egG1Z

💬 We'd love to hear from you. What was the most difficult part of your journey to diagnosis?

New information is now available on the IgG4ward! website to help patients and caregivers learn more about IgG4-related ...
06/19/2026

New information is now available on the IgG4ward! website to help patients and caregivers learn more about IgG4-related disease (IgG4-RD) and ongoing Phase 3 clinical research, including the RILIEF trial.

Learn more: https://igg4ward.org/patient-caregivers/resources/clinical-trials/

Additional information about the RILIEF clinical trial is available on ClinicalTrials.gov: https://clinicaltrials.gov/study/NCT07190196?cond=IgG4-related%20Disease&viewType=Card&term=RILIEF&rank=1



Sponsored by Sanofi

Have you ever met another person living with IgG4-related disease?During the opening remarks of the inaugural IgG4ward! ...
06/17/2026

Have you ever met another person living with IgG4-related disease?

During the opening remarks of the inaugural IgG4ward! EuroJAM, attendees were asked that question.

For many, the answer was no.

That powerful moment served as a reminder of why community matters—and why no one should face IgG4-RD alone.

Following welcome remarks from Katharine Provencher and Dr. Emma Culver, Dr. John Stone opens the IgG4ward! EuroJAM educational series with a keynote presentation exploring the history of IgG4-related disease and the discoveries that led to its recognition as a distinct condition.

🎥 Watch Session 1 and download the companion Viewing Guide:
https://tr.ee/q4hefe

Have you ever met another person living with IgG4-RD? Let us know in the comments.

💙💙💙💙

Just a reminder that our monthly support group meets tomorrow.Whether you've joined us before or are considering attendi...
06/17/2026

Just a reminder that our monthly support group meets tomorrow.

Whether you've joined us before or are considering attending for the first time, you're welcome. This is a supportive, judgment-free space to connect, share, listen, and be reminded that you are not alone.

📅 Tomorrow – June 18, 2026 at 5:00 PM – 6:00 PM (ET)

To register, click here: https://tr.ee/qCuvWn

We look forward to seeing you.

💙💙💙

06/10/2026

For many people living with IgG4-related disease, opportunities to meet others who truly understand their experience are rare.

That's one of the reasons the IgG4ward! EuroJAM was so special.

Patients, caregivers, researchers, physicians and industry partners came together to learn, share experiences and build connections that will continue long after the event ended.

In this short video, Dr. Emma Culver reflects on the weekend and what stood out most from the event.

For a deeper look at EuroJAM - including Dr. Culver's full reflection, attendee perspectives, event photos, recognition of her IgG4ward Award of Hope and what's coming next—visit our blog.

🔗 https://tr.ee/VHe1FG

We'll also be sharing session recordings and additional photographs from the event in the weeks ahead.

06/04/2026

📢 The BayJAM agenda is now available and registration is open.

The IgG4ward! Foundation is honored to partner with Dr. Matthew Baker in hosting this year's BayJAM at Stanford University.

One of the most meaningful parts of BayJAM is bringing our community together, to learn from experts, ask questions, share experiences, and connect with others who understand the challenges of living with IgG4-RD.

As Dr. Baker shares in this video, attendees will hear from experts from Stanford University, Mayo Clinic, and Massachusetts General Hospital covering topics including:
🫁 Lung disease
🩺 Pancreatic and biliary disease
🩹 Kidney involvement and retroperitoneal fibrosis
🩻 Understanding IgG4-RD imaging
🧬 B-cells and IgG4-RD
🥗 Diet and lifestyle considerations
🤝 Partnering with your physician
💡 How we think about IgG4-RD treatment today

We'll also have breakout discussions, opportunities to connect with fellow patients and caregivers, and our Ask the Experts panel where attendees can bring their questions directly to leading physicians and researchers.

Whether you're newly diagnosed, supporting a loved one, or have been living with IgG4-RD for years, we hope you'll join us.

📍 Stanford University | Palo Alto, California
📅 July 11, 2026

View the full agenda and register today:
🔗 https://tr.ee/SLm8kL

📍 Montreal, we're coming to see you!If you or a loved one are living with IgG4-related disease (IgG4-RD), we invite you ...
06/02/2026

📍 Montreal, we're coming to see you!

If you or a loved one are living with IgG4-related disease (IgG4-RD), we invite you to join us at the Montreal Patient Day for Rare Neuroinflammatory & Related Disorders on June 13.

The IgG4ward! Foundation is proud to partner with The Sumaira Foundation for this special day dedicated to education, connection, and community. Attendees will have the opportunity to engage with clinicians, researchers, patient advocates, caregivers, and others navigating rare diseases, while also participating in dedicated IgG4-RD programming throughout the event.

Whether you're newly diagnosed, a long-time patient, or supporting a loved one, this event offers a unique opportunity to:
✨ Connect with others in the IgG4-RD community
✨ Hear from leading experts and clinicians
✨ Learn about the latest research and developments
✨ Ask questions and gain valuable insights for your journey

This free event is open to patients and caregivers from Montreal and across Quebec. Lunch will be provided, and bilingual programming will ensure everyone can fully participate.
📅 June 13
⏰ 11:00 AM – 6:00 PM EDT
📍 Montreal, Quebec
🎟️ Register today: https://www.eventbrite.com/e/1986690663254?aff=oddtdtcreator

We look forward to connecting with you in Montreal!

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