Hypophosphatasia: The U.S. Soft Bones Foundation

Hypophosphatasia: The U.S. Soft Bones Foundation A U.S.-based 501c3 non-profit organization providing education, awareness, and support for those living with hypophosphatasia, their families, and caregivers.

HPP, Hypophosphatasia support, HPP research, patient support

Don't be a wet blanket. Stay dry with a Soft Bones beach towel!This summer, make a splash for the hypophosphatasia (HPP)...
06/19/2026

Don't be a wet blanket. Stay dry with a Soft Bones beach towel!

This summer, make a splash for the hypophosphatasia (HPP) community. Every towel purchased helps support Soft Bones and directly funds the upcoming Third International Scientific Meeting, happening in New York City this November, where world-leading researchers, clinicians, and industry partners come together to advance understanding of HPP.

Order yours today!
https://ow.ly/385o50ZeFJV

Time to make a splash with our summer designs. Last year, we launched two new summer designs: our lovable mascot, the Hi...
06/19/2026

Time to make a splash with our summer designs.

Last year, we launched two new summer designs: our lovable mascot, the Hippo, lounging on a beach towel, and our iconic Soft Bones key etched in the sand. Come rep these fun styles while raising awareness.

Receive 30% off everything today ONLY!

Shop now: https://ow.ly/p3lH50Z8SOc

Friendly reminder! Join us tomorrow at 8:00 PM Eastern for an HPP AND ME Zoom Chat! Connect with others and share your H...
06/17/2026

Friendly reminder!

Join us tomorrow at 8:00 PM Eastern for an HPP AND ME Zoom Chat! Connect with others and share your HPP journey. Let’s come together and grow this incredible community!

Registration is required. Join us below.
https://ow.ly/A69Y50YZ2J2

When we hosted our First International Scientific Meeting on hypophosphatasia (HPP), we hoped it would spark new convers...
06/16/2026

When we hosted our First International Scientific Meeting on hypophosphatasia (HPP), we hoped it would spark new conversations. It did much more than that. The exchange of ideas among researchers, clinicians, and industry partners has advanced understanding of HPP. This meeting inspired important new research and collaborations that are shaping patient care.

This year, we're preparing for our Third International Scientific Meeting, and our network is growing. Especially now, more experts, more perspectives, and more opportunities are needed to accelerate progress.

But we can't do it alone.

If you believe in advancing HPP research, improving care, and bringing world-leading experts together to solve the challenges our community faces, we need your help. Please consider supporting this important work.

Share this post, repost it, and donate.

While there won’t be any hippos, there will be plenty of land animals at the Chattanooga Zoo. Plus, an aquarium to visit...
06/16/2026

While there won’t be any hippos, there will be plenty of land animals at the Chattanooga Zoo. Plus, an aquarium to visit your favorite underwater wonders. The Tennessee Aquarium offers immersive exhibits with accessible pathways, while the Chattanooga Zoo provides a smaller, easy-to-navigate experience. Book your visit before or after the National Patient Meeting to make the most of your time.

See you soon in Chattanooga on June 26-27th!

06/15/2026

In the third episode of Cannon Unbroken, Cannon sits down with legendary college football coach Greg Schiano, who is the current head coach of the Rutgers Scarlet Knights. Tune in to learn how Greg’s family-first mentality shapes how he coaches, keeps his team accountable, and rebounds from fumbles on and off the field. This podcast was developed independently and supported in part by Alexion, AstraZeneca Rare Disease.

Listen now: https://ow.ly/L21c50Zc2ca

We painted by numbers! 🎨Thank you to everyone who submitted their photos. Meet the creators behind some of our paint-by-...
06/09/2026

We painted by numbers! 🎨

Thank you to everyone who submitted their photos. Meet the creators behind some of our paint-by-number masterpieces! These special coloring pages were designed by Jaycob, an HPP patient and Hippo Squad member, and brought to life in collaboration with the Soft Bones team.

Interested in joining Hippo Squad? See eligibility below:
https://ow.ly/QBwm50Z9rqR

Looking for a space that truly understands life with HPP?HPP AND ME is a secure platform created just for the HPP commun...
06/06/2026

Looking for a space that truly understands life with HPP?

HPP AND ME is a secure platform created just for the HPP community. Here, you can connect, learn, and share with people who get it. Be the first to hear about new resources, research opportunities, and updates.

Join the conversation: https://ow.ly/luWc50Z6eB2

Hello, painters!We know there are some hidden Picassos in our HPP community, and we’re ready to discover them! Please s...
06/05/2026

Hello, painters!

We know there are some hidden Picassos in our HPP community, and we’re ready to discover them! Please submit your masterpiece along with a photo of you wearing your beret. Your artwork will help us build something special. The more artists who join, the more colorful our world becomes.

Learn more about Hippo Squad below. 👇
https://ow.ly/Yj0u50Z6bBn

Address

141 Hawkins Place #267
Boonton, NJ
07005

Telephone

+18668279937

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