Mal de Debarquement Syndrome (MdDS) Balance Disorder Foundation

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This is the official page for the MdDS Foundation, an all-volunteer 501c3 organization dedicated to promoting awareness of the neurological disorder Mal de Débarquement Syndrome while seeking treatments and a cure for people suffering from this disorder.

An important message for the  : You may have seen recent alerts about security issues involving PHP. We want to reassure...
11/02/2026

An important message for the : You may have seen recent alerts about security issues involving PHP. We want to reassure you that we remain committed to earning and keeping your trust.

If you have visited mddsfoundation.org or are enrolled in the MdDS Patient Registry, you are not affected by the PHP issue.

Our IT team immediately applied security patches and continues to monitor for updates. No action is required on your part.

We appreciate your trust and will continue to keep security and transparency at the forefront of everything we do.

Your partner in MdDS awareness, research, and support,�
The MdDS Foundation Team

Did you recently sign up for our newsletter? The MdDS Patient Registry received IRB approval earlier this month and is n...
09/26/2026

Did you recently sign up for our newsletter? The MdDS Patient Registry received IRB approval earlier this month and is now in the final stages of preparation for launch! 🚀 👀 Unless you click "Yes, subscribe me to this list", you will miss the launch announcement. 🚀 👀 PLEASE CHECK YOUR EMAIL SPAM or junk folder for this CONFIRMATION REQUEST.

Designed with You in Mind—the MdDS Symptom Severity Scale and Symptom Tracker were created to help you manage life with ...
09/20/2026

Designed with You in Mind—the MdDS Symptom Severity Scale and Symptom Tracker were created to help you manage life with MdDS more effectively.
👩🏻‍🔬 These free tools can provide a tangible record to share with healthcare providers, turning your felt experiences into physical information they can use.
Simply use the scale and log to monitor symptoms and modifiers—what increases or decreases your perceived movement.
By recording levels of perceived movement and modifiers—like weather or stress—you can connect the dots of your daily experience, see monthly averages, and build your “big picture”.
With your panoramic view, 𝘆𝗼𝘂 𝗮𝗿𝗲 𝗲𝗺𝗽𝗼𝘄𝗲𝗿𝗲𝗱 𝘁𝗼 𝗺𝗼𝘃𝗲 𝗯𝗲𝘆𝗼𝗻𝗱 𝗱𝗮𝗶𝗹𝘆 𝘀𝘂𝗿𝘃𝗶𝘃𝗮𝗹 𝘁𝗼𝘄𝗮𝗿𝗱𝘀 𝗯𝗲𝘁𝘁𝗲𝗿 𝗺𝗮𝗻𝗮𝗴𝗲𝗺𝗲𝗻𝘁.
🖨️ 𝗗𝗼𝘄𝗻𝗹𝗼𝗮𝗱 𝗮𝗻𝗱 𝗽𝗿𝗶𝗻𝘁: mddsfoundation.org/resources

ICYMI: We're building a patient registry for people with MdDS! See more about this important research effort on our webs...
09/15/2026

ICYMI: We're building a patient registry for people with MdDS! See more about this important research effort on our website.
https://mddsfoundation.org/mdds-patient-registry/

The first longitudinal study to collect MdDS-specific patient data is COMING SOON! Learn the potential benefits to you.

09/05/2026

Interested in ? You can easily find and filter peer-reviewed research articles on our website. Whether you're looking into OKN/VOR, Neuromodulation, Vestibular Rehabilitation, or Basic Science, you can narrow down the literature in just a few clicks.
➡ Explore the tool here: https://mddsfoundation.org/research/

Send a message to learn more

We recently cleared a wave of automated bot sign-ups from our system. If you subscribed to our newsletter between August...
08/27/2026

We recently cleared a wave of automated bot sign-ups from our system. If you subscribed to our newsletter between August 18 and August 27, your registration may have been archived during the cleanup.

Please resubscribe to ensure you stay connected. Sign up or re-register here: http://eepurl.com/c80cgH

Why join our mailing list?
The MdDS Foundation e-newsletter delivers:
• Updates on active studies and newly published peer-reviewed literature.
• Actionable opportunities to raise awareness and support the .
• Key Foundation news and announcements.

Bridging Gaps: Connecting Data and Clinical Outcomes | Turning insights into answers!, read how evidence-based   at UC S...
08/17/2026

Bridging Gaps: Connecting Data and Clinical Outcomes | Turning insights into answers!

, read how evidence-based at UC San Diego and South Valley Physical Therapy is accelerating targeted treatment solutions.

https://mddsfoundation.org/2026/08/11/bridging-gaps-connecting-data/

Clinical data, peer-reviewed literature, ongoing research studies… See how evidence-based research is accelerating targeted treatment solutions. Read on!

The MdDS Foundation has partnered with the American Brain Foundation (ABF) to offer the Next Generation Research Grant (...
08/14/2026

The MdDS Foundation has partnered with the American Brain Foundation (ABF) to offer the Next Generation Research Grant (NGRG) in Mal de Débarquement Syndrome ( ). This two-year, $150,000 award is designed to support and encourage early-career researchers.
Learn how the is supporting the next generation of :

This two-year, $150,000 award is designed to support and encourage early-career researchers. Expanding the field of researchers focused on MdDS is essential to improving understanding, developing targeted treatments, and driving progress.

Thank you for highlighting   (MdDS) during Brain Awareness Week! Raising awareness of this little-known   disorder is vi...
07/09/2026

Thank you for highlighting (MdDS) during Brain Awareness Week! Raising awareness of this little-known disorder is vital to reducing diagnostic delays, driving evidence-based clinical research, and ensuring patients receive validation. Whether spontaneous, non-motion onset or motion provoked, every individual's experience is equally significant and deserving of a clear path to diagnosis and treatment.

NEW SOUND BITE: Breaking Down the MdDS Diagnostic Criteria 🎧 Listen Now on Soundcloud 🔗 https://soundcloud.com/mdds-foun...
07/08/2026

NEW SOUND BITE: Breaking Down the MdDS Diagnostic Criteria 🎧 Listen Now on Soundcloud 🔗 https://soundcloud.com/mdds-foundation/breaking-it-down-mdds

Our latest Sound Bite dives into the internationally recognized diagnostic criteria, established by the Barany Society to bring uniformity to clinical diagnoses and research.

Topics Covered: Core Diagnostic Indicators, Classification by Duration, Differential Diagnosis ( vs and ), and more.

Read the complete diagnostic criteria in the Journal of Vestibular Research: https://bit.ly/mddsdiagnostic

👩🏽‍⚕️ Share the criteria with your doctors to facilitate faster, more accurate !

And don’t forget to let your doctors know that our website has even more valuable information for them. They can start with www.mddsfoundation.org/diagnosing-mdds.



🧑🏻‍⚖️ This audio clip was AI-generated to help us share information faster. While the voices are digital, the data and the heart behind it are 100% human. 🧑🏽‍💼

Address

22406 Shannondell Drive
Audubon, PA
19403

Opening Hours

Monday 9am - 8pm
Tuesday 9am - 8pm
Wednesday 9am - 8pm
Thursday 9am - 8pm
Friday 9am - 8pm

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