Billy Guyton Foundation

04/10/2026

You don’t have to be knocked out for your brain to be injured. 🧠

It’s the repetitive head impacts. The accumulation over time. Many may never even be recognised as a concussion.

This is the part people need to understand about head trauma. Please take a minute to read this.

https://bit.ly/4yi6VZ4

CTE isn’t caused by one bad hit. It’s linked to repeated head trauma over time. 🧠

Chronic traumatic encephalopathy, or CTE, is a progressive brain condition associated with repeated concussions and even subconcussive impacts that may not cause obvious symptoms at the time.

Over the years, these repeated injuries can be associated with changes in memory, mood, behavior, focus, and overall brain function. Athletes in contact sports, military personnel, and others with a history of repetitive head impacts may be at greater risk.

CTE still cannot be definitively diagnosed in a living person, but that doesn’t mean symptoms should be ignored. Functional brain imaging, clinical history, and a comprehensive evaluation can help identify patterns associated with past head trauma and guide a personalized approach to brain health.

The more we understand about head injuries, the more we can do to protect the brain moving forward.

Learn what CTE is, how it affects the brain, and what you can do to reduce your risk:

https://bit.ly/4yi6VZ4

02/10/2026

Were really excited to announce we have joined forces with Billy Guyton Foundation within our support groups.

Although were on the opposite sides of the planet we share the same desire to raise awareness and provide support to anyone who has CTE or another type of neurodegenerative disease caused by brain injury, and their families, loved ones, carers and friends.

We have two Facebook support groups:
https://www.facebook.com/groups/marshalling.cte.support.group
https://www.facebook.com/groups/marshalling.cte.caregivers.support.group

We also have WhatsApp support groups for the UK and Oceania with regular virtual meetings, if you would like to be added to one of the WhatsApp groups just drop us a message.
Together We’re Stronger

24/09/2026

Some absolute legends in one photo 🧠💙

This photo was taken outside Parliament people with lived experience of CTE and repetitive head impacts, whānau, advocates and researchers, all standing together for change.

Different backgrounds and different journeys, but the same kaupapa: for people living with brain injury to be seen, heard and believed and to have access to the treatment, therapy, support and ongoing care they need.

Looking at photos like this now hits differently. Shane and Billy may no longer be here to see where this mahi goes, but what they started alongside Ross, Gregg, John, Helen and so many others continues.

There is still so much work to do, and we’re proud to keep carrying that kaupapa through the Billy Guyton Foundation supporting our brain injury warriors and their whānau, helping people access treatment and therapy, raising awareness, and continuing to push for better.

For Billy. For Shane. For every person and whānau navigating life after repetitive head injury.

Keep asking questions. Keep learning. Keep pushing for better. 🧠💙

23/09/2026

A pretty special one for us 💙🏉

Big shout-out to Syd and the Nelson College Ngā Toki U14A boys, who recently headed to Wellington for the Hurricanes U14 Tournament.

Seeing the Billy Guyton Foundation on Syd’s Got Your Back shirt amongst the next generation of young rugby players means more than one would probably realise.

Billy and Shane both gave so much to rugby and to our community, and their legacy continues to drive the mahi we do around concussion, brain health and looking after our players.

A massive thank you to the team and Syd’s mum Belinda for choosing to carry BGF with you and help keep that conversation going. 🧠💙

GOT YOU BACK 🔥💪

23/09/2026

🧠 BGF Brain Injury & CTE Support Group – Zoom Catch-Up

Just a reminder our next Warriors Circle Zoom catch-up is tomorrow night, Thursday 24 September at 6pm 😊

This is a relaxed space to come along for a yarn, check in, share how things have been going or simply listen. No pressure at all - just a chance to connect with others who understand what living with concussion/brain injury can look like.

If you or someone you know would like to join us, send the Billy Guyton Foundation page a private message and we’ll send you the Zoom details 💙

Everyone is welcome.

20/09/2026

PRETTY GOOD OUT THERE 👀🧠💚

We’ve absolutely loved seeing our Billy Guyton Foundation tees making their way around the country and being worn by some pretty awesome humans.

We still have a limited number available, so if you missed the first round, there’s still time to grab one.

$49 each
All proceeds go directly back into the Billy Guyton Foundation and help us continue supporting people and whānau navigating concussion and brain injury - including helping with access to care and support when the usual systems aren’t enough.

Every tee worn also helps get the conversation out there. 💚

Comment below or flick the page a message if you’d like one - we can let you know what sizes are still available.

And THANK YOU to everyone who has already bought one, shared our posts, worn theirs proudly or supported BGF in any way. It genuinely all adds up. 🫶

15/09/2026

Everyone is important and that is why it is important to understand the whole family. support is important for everyone

08/09/2026

31 of 51 former rugby league players studied were found to have CTE. Another incredibly confronting finding, but another important piece of research showing just how real the consequences of repeated head impacts can be.

For us, this will never just be research or statistics. Behind every one of those brains is a person, a life, a family and a story.

We know that all too well.

And while this research focuses on former professional rugby league players, the impact of repeated head injuries is not limited to professional sport. At BGF, we hear from people and families affected across all levels and codes of sport, as well as through everyday life.

This is why the conversation has to keep moving forward. Not to take away from the games we love, but to make them safer, to understand what’s happening to people who have experienced repeated head impacts, and to make sure those already struggling are believed, supported and given the help they need.

Thank you to everyone sending or tagging us in this and continuing to care about this. Keep talking about it. ❤️🧠

For Shane. For Billy. And for everyone still fighting.

A landmark study has found 31 rugby league players have been diagnosed with the degenerative brain disease chronic traumatic encephalopathy (CTE).