29/05/2026
【🏡看有複雜醫療需要的孩子如何平安回家、重返校園💖】
在早前圓滿落幕的「香港弱能兒童護助會七十週年研討會」上，大口環根德公爵夫人兒童醫院（DKCH）副醫院行政總監兼兒科顧問醫生周淑娟醫生，與大家分享了一段觸動人心、對「以病人為核心」的全人護理最深刻的詮釋。
對於患有複雜醫療疾病的兒童而言，呼吸機等先進醫療科技固然能守護生命安全；然而，真正能讓他們茁壯成長、展現生命力的，始終是家庭的溫暖，以及家人的陪伴。
周醫生在會上特別分享了一位患有嚴重神經肌肉疾病的小戰士——橦橦的奇蹟旅程。由於橦橦需要 24 小時呼吸機支援，並以胃喉餵食，因此她曾在深切治療部住院長達兩年。對她的家人來說，回家似乎像是一個遙不可及的夢。
在醫療團隊與各界的共同努力下，橦橦蒞到 DKCH 後接受密集的復康訓練；同時，媽媽亦配合學習一系列實用的照顧技巧。終於，在經過約半年的準備後，她迎來夢寐以求的里程碑：平安回家，重返校園，並重新睡在自己舒適的床上。
這份珍貴成果，是醫生、專職醫療人員、非政府機構（NGO）、教育工作者以及家長們，為了同一個目標攜手協作、凝聚大愛的最好證明。真令人動容：縱然面對重重挑戰，大家仍一步步把不可能變成可能，讓這份希望得以實現。
At the recent SRDC 70th Anniversary Conference, Dr. Chau Shuk Kuen (Deputy Hospital Chief Executive & Consultant Paediatrician at DKCH) shared a powerful reminder of what truly means to put the patient at the heart of holistic care.
For children with complex medical conditions, advanced medical technologies—such as ventilator support—can help sustain their lives. Yet it's the warmth of home and family that helps them thrive.
Dr. Chau shared the inspiring story of a brave little fighter, Tung Tung. She has a severe neuromuscular disease required 24-hour ventilator support and was fed through a gastric tube, she spent two long years in the Intensive Care Unit. For her family, going home often felt like an impossible dream.
With the dedicated efforts of the medical team and support from many partners, once Tung Tung arrived at DKCH she began intensive rehabilitation training. At the same time, her mother learned a range of practical caregiving skills. After about six months of preparation, Tung Tung finally reached the milestone she had been dreaming of: returning home safely, going back to school, and sleeping again in her own comfortable bed.
This precious achievement is a powerful testament to teamwork and compassion.
Doctors, allied health professionals, NGOs, educators, and parents joined hands towards one shared goal—making the unimaginable possible. It is truly touching to see how, despite countless challenges, hope can become real.
