Bone Cancer Research Trust

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Bone Cancer Research Trust The Bone Cancer Research Trust is the leading charity dedicated to fighting primary bone cancer.

Our mission is to save lives and improve outcomes for people affected by primary bone cancer through research, information, awareness and support.

Jessica, You Are Amazing! Three incredible challenges. One very special reason. And an outstanding £12,611.70 raised for...
12/10/2026

Jessica, You Are Amazing!

Three incredible challenges. One very special reason. And an outstanding £12,611.70 raised for Bone Cancer Research Trust.

To mark turning 30, Jessica took on:
🏃‍♀️ The London Marathon
🏊‍♀️ A 33km swim
💪 A full-distance Ironman in Italy

All in memory of her dad, who Jessica sadly lost to bone cancer.

Jessica has turned heartbreak into something truly powerful, pushing herself to the limit to help create hope for other people and families affected by primary bone cancer.

Raising £12,611.70 is an incredible achievement, and we can't thank you enough, Jessica. Your determination, resilience and love for your dad have shone through every challenge you've taken on.

We also know this journey wouldn't have been the same without the support of Luis by your side.

From everyone at Bone Cancer Research Trust, thank you. Your support helps us fund vital research and work towards a future with better, kinder treatments for people affected by primary bone cancer.

Your dad would be so proud. 🧡

10/10/2026

Trust in Us: Looking Ahead

Will Burchell, Chief Executive of Bone Cancer Research Trust:

As Bone Cancer Awareness Week comes to a close, I'd like to reflect on a word that has shaped this year's campaign: trust.

At Bone Cancer Research Trust, trust is at the heart of everything we do. Every day, people affected by primary bone cancer place their trust in us, whether that's by turning to our information, sharing their experiences, supporting our work or helping shape the future of the charity. That trust is a privilege, and one we never take for granted.

What makes BCRT special is the community at its heart. Patients, families, healthcare professionals, researchers, supporters and volunteers all play a role in guiding our work. By listening to their experiences and learning from their insights, we can ensure we remain focused on what matters most to those affected by bone cancer.

We are incredibly grateful to everyone who chooses to place their trust in us. We know that trust must be earned, and we strive to do that by listening carefully, being honest and putting our community at the centre of every decision we make.

As we mark 20 years of Bone Cancer Research Trust, we're also looking to the future. The world will continue to change, bringing new opportunities and new challenges. But one thing will remain constant: our commitment to the people we serve.

For the next 20 years and beyond, trust will continue to underpin everything we do. It will guide how we listen, how we work and how we support the bone cancer community.

Thank you for being part of that journey, and thank you for trusting us to be part of yours.

Good luck to everyone taking part in the Royal Parks Half Marathon this weekend! 🧡We’re incredibly grateful to every mem...
10/10/2026

Good luck to everyone taking part in the Royal Parks Half Marathon this weekend! 🧡

We’re incredibly grateful to every member of Team BCRT running to support Bone Cancer Research Trust. This year, we have our biggest ever Royal Parks team taking on the challenge, including a few of our own staff members.

If you're running, we'd love to see your journey. Whether it's race prep, travelling to the start line, meeting fellow runners or crossing that finish line, please share your photos and videos with us. Tag us on social media or send them our way so we can celebrate with you.

Keep an eye out for our staff and volunteers at cheer points along the course. We'll be there supporting you every step of the way.

Thank you for being part of Team BCRT and best of luck for race day! 🧡

In April 2011, Pete was diagnosed with osteosarcoma in his left femur. His treatment involved intensive chemotherapy, mu...
09/10/2026

In April 2011, Pete was diagnosed with osteosarcoma in his left femur. His treatment involved intensive chemotherapy, multiple operations and, ultimately, an amputation that changed his life.

Over the years, Pete has become a trusted voice within the bone cancer community. He has shared his story to raise awareness, contributed to our information resources, offered peer-to-peer support, spoken at the Bone Cancer Conference, raised funds and become an ambassador. By sharing his experiences openly and honestly, Pete has helped others feel understood, informed and less alone at some of the most difficult moments in their lives.

Pete's story shows what trust looks like in action. By sharing his experiences, supporting others and helping shape the resources we provide, he has helped build the connections that bring the bone cancer community together, ensuring that more people can access support from those who truly understand what they're going through.

Thank you, Pete, for the trust you have placed in us over the years, and for everything you do to support others affected by bone cancer.

Your willingness to share your experiences and help others continues to make a lasting difference across our community 🧡

At 22 years old, Tom Sheffle turned to the Bone Cancer Research Trust when he was diagnosed with Ewing sarcoma. The Bone...
09/10/2026

At 22 years old, Tom Sheffle turned to the Bone Cancer Research Trust when he was diagnosed with Ewing sarcoma. The Bone Cancer Research Trust supported Tom and his family through an incredibly difficult time. Since then, he has raised an incredible amount of funds for our work through challenges including marathons, triathlons and a 215-mile ultramarathon, and now continues to support the bone cancer community as an ambassador and through his Special Fund.

Having experienced first-hand the importance of trusted support during a bone cancer diagnosis, Tom has spent years turning that trust into action. Through fundraising, raising awareness and sharing his story, he is helping to ensure that other families affected by bone cancer have access to the support, information and hope that made such a difference to him and his family.

Tom shared "Becoming an ambassador for the Bone Cancer Research Trust is my way of giving back and helping others facing the challenges I once did. I want to inspire hope, raise awareness, and ensure that every family affected by bone cancer receives the vital support that made such a difference for me and my family."

Thank you, Tom, for everything you have done, and continue to do, for the bone cancer community. From taking on extraordinary challenges to sharing your story, raising awareness and supporting others through your ambassador role and Special Fund, your commitment is helping to drive progress and bring hope to families affected by bone cancer. 🧡

When Al Dawson was diagnosed with osteosarcoma at just 14 years old, his family faced a journey no family should have to...
09/10/2026

When Al Dawson was diagnosed with osteosarcoma at just 14 years old, his family faced a journey no family should have to endure. Despite intensive treatment, Al sadly died in 2007, surrounded by his family and friends.

In the years since, Al’s mum, Sarah, dad, Will, sister, Flick, and twin brother, Pat have dedicated themselves to helping other families affected by primary bone cancer. Together, they have given countless hours to raising awareness, fundraising, improving understanding of the disease and ensuring others feel less alone.

Sarah served as a Trustee of the Bone Cancer Research Trust, helping to guide the charity's work, while Will, Flick and Pat have taken on fundraising challenges ranging from bake sales to marathons, and helped shape our information resources for teenagers and young people. They have also helped organise the Bone Cancer Ball over the years and continue to support research and awareness through their Special Fund in Al's memory.

They have played an important role in sharing lived experience too. Sarah has spoken to nursing students, hospice teams, cancer professionals and schools across the UK, helping to improve awareness and understanding of primary bone cancer.

Speaking about why they trust the Bone Cancer Research Trust, the family said:

"We trust the way research funding is awarded. The process is rigorous, carefully considered and focused on supporting the most promising research. We know the money raised is invested wisely.

We have seen how early research projects can develop into larger studies, and we trust the charity's connections within the research community to bring together the right expertise to help find answers to these awful diseases.

We also trust the information and support provided by Bone Cancer Research Trust. Whether it's through conversations, the website or printed resources, we know the information has been carefully checked and validated. It is accurate, accessible and written with patients, families and healthcare professionals in mind."

For Sarah, Will, Flick and Pat, trust means knowing that funds are invested wisely, that information is accurate and accessible, and that people affected by primary bone cancer can rely on support they can believe in.

We're incredibly grateful to Sarah, Will, Flick and Pat for the trust they have placed in us over the years, and for everything they have done to support research, raise awareness and strengthen the bone cancer community. Their commitment continues to make a difference to families affected by primary bone cancer.🧡

This week, we attended the Big Cancer52 Conversation Conference, where we joined colleagues from across the cancer commu...
09/10/2026

This week, we attended the Big Cancer52 Conversation Conference, where we joined colleagues from across the cancer community, including Dr Rob Metcalf, Clinical Lead for Rare Cancers on the National Cancer Board, and Dr Sara Stoneham, NIHR Rare Cancer Specialty Lead.

As part of Bone Cancer Awareness Week, it was encouraging to hear such a strong emphasis on collaboration and the need to continue investing in discovery research.

Silvia, our Policy Lead, presented on the Bone Cancer Research Trust's collaborative approach to advancing research, highlighting the European Ewing Consortium (EEC) and Accelerating Ewing Sarcoma Research (AESR) as examples of what can be achieved when charities, researchers, patients and families come together around a shared goal.

The message from the day was clear: meaningful progress depends on collaboration, and collaboration depends on trust. Trust between researchers, charities, healthcare professionals, the NHS, government, patients and families is what helps turn ideas into action and research into impact.

As we look ahead, we remain committed to working alongside partners across research, healthcare and policy to accelerate progress and improve outcomes for everyone affected by primary bone cancer.

Research is stronger when it's shaped by the people it's there to help. Freddie was just six years old when he was diagn...
08/10/2026

Research is stronger when it's shaped by the people it's there to help.

Freddie was just six years old when he was diagnosed with metastatic Ewing sarcoma, a form of primary bone cancer.

Today, Freddie's mum, Nicole, helps shape the future of bone cancer research as a member of BCRT's Patient and Public Involvement Panel, ensuring the voices of patients and families are heard throughout the research process. She also shares her insight to help improve the information and support available to others affected by Ewing sarcoma.

Nicole shared: “I have been fundraising for the Bone Cancer Research Trust for a few years now, and I feel like PPIP has helped me to see how that fundraising turns into science. Being a part of PPIP makes me feel a part of the science, and I think that’s where families like ours get our hope from - from seeing these hopeful projects begin and knowing that we can play a small part in helping them move forward. Being part of PPIP has been such an amazing and empowering experience.”

Trust in research isn't built through results alone. It's built when the people most affected by bone cancer have a seat at the table.

By bringing lived experience into research, families like Freddie's help ensure our research remains focused on what matters most to patients.

Research and lived experience go hand in hand. Behind every research project are real people and real experiences, and we make sure their voices are heard.
We are grateful to Nicole and all those who place their trust in us by sharing their experiences, helping to shape research and ensuring the information we provide reflects the needs of patients and families.

To find out more about our Patient and Public Involvement Panel and how you can get involved, visit https://bit.ly/bcawPPIP

"Having a clear voice to remind everyone that the ultimate goal is to improve outcomes for patients and their families i...
08/10/2026

"Having a clear voice to remind everyone that the ultimate goal is to improve outcomes for patients and their families is essential. It serves as a North Star in a difficult sector."

For Dr Abdullah Khan, trust means ensuring the voices of patients and families help shape the future of research.

Diagnosed with Ewing sarcoma, a form of primary bone cancer, at just 22, Abdullah underwent intensive chemotherapy and an above-knee amputation before rebuilding his life and career in research.

Today, he is an Associate Professor of Tissue Engineering at the University of Oxford and a member of the Bone Cancer Research Trust’s Patient and Public Involvement Panel (PPIP), helping ensure research remains connected to the people it is ultimately there to help.

Bringing the perspective of both a researcher and someone with lived experience of primary bone cancer, Abdullah believes patients and families play a vital role in helping research stay focused on what matters most.

Read our interview with Abdullah and learn why patient voices are so important in shaping research: https://bit.ly/AKbcaw

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