Syndromes Without A Name - SWAN Australia

Syndromes Without A Name - SWAN Australia We provide information and support to families caring for a child with an undiagnosed or rare genetic condition.

We have a closed FB group our members can join after they completed our online membership form swanaus.org.au/join Membership is free. We provide information and support to families who care for a child with an undiagnosed or rare genetic condition.

Statement from SWAN’s Board of Directors
17/04/2026

Statement from SWAN’s Board of Directors

Share Your Story – Be Our Next SWAN Family Voice Every SWAN family has a story worth sharing. By being featured in our n...
16/04/2026

Share Your Story – Be Our Next SWAN Family Voice

Every SWAN family has a story worth sharing. By being featured in our newsletter, you can help other families feel seen, understood, and a little less alone on their journey.

It’s also a chance to celebrate your child and the strength, love, and resilience that exists within our community.

If you’d like to be this month’s SWAN Family Voice, we’d love to hear from you.

Please fill out this short form and I’ll be in touch:
https://forms.office.com/r/k9eYxhSyn5

Your story could be exactly what another family needs to hear today.

This is more than an organisation. It’s a lifeline.“S.W.A.N connects and unites us all with care and compassion… it brin...
27/03/2026

This is more than an organisation. It’s a lifeline.

“S.W.A.N connects and unites us all with care and compassion… it brings peace to know we’re not alone in a world where we struggle to find a place to belong.”
– Sarah (SWAN Mum)

Right now, that lifeline is at risk of disappearing within weeks.

1,200+ families could lose the only place they feel understood.

👉 Please donate today: https://save-swan-australia.raiselysite.com/
👉 Share this — don’t let families face this alone

We cannot lose SWAN.

We are at risk of losing SWAN Australia within weeks.And with it, the only community many families have.“As a SWAN grand...
27/03/2026

We are at risk of losing SWAN Australia within weeks.

And with it, the only community many families have.

“As a SWAN grandpa, I felt pretty alone — no one really got it, especially other grandpas. SWAN Cobbers changed that.”

– Brad (SWAN Grandpa)

This is what’s at stake.

Real people finally finding connection and at risk of losing it just as quickly.

If we close, that support disappears.

👉 Donate NOW: https://save-swan-australia.raiselysite.com
👉 Or share this post — help us reach someone who can help

Please don’t scroll past. We need you.

This is urgent.SWAN Australia may not survive the next few weeks.Families across Australia are already navigating hospit...
27/03/2026

This is urgent.

SWAN Australia may not survive the next few weeks.

Families across Australia are already navigating hospitals, uncertainty, and life-limiting diagnoses, without answers. SWAN is the one place they turn to for support, connection, and hope.

If we close, that lifeline is gone.

We don’t have time to wait. We need action today.

👉 Donate now: https://save-swan-australia.raiselysite.com/

👉 Share this with your network — please don’t scroll past

You have the power to help keep this community alive.

Did you know this?Comment below if this shocked you!
27/03/2026

Did you know this?

Comment below if this shocked you!

We are weeks away from closing. SWAN supports over 1,200 families living with undiagnosed and rare conditions and withou...
25/03/2026

We are weeks away from closing.

SWAN supports over 1,200 families living with undiagnosed and rare conditions and without urgent funding, we may not be here much longer.

👉 Please donate and help keep this lifeline open: https://save-swan-australia.raiselysite.com/

SAVE SWAN AUSTRALIAFor so many families, SWAN is the first place they feel seen, understood, and not alone.When your chi...
25/03/2026

SAVE SWAN AUSTRALIA

For so many families, SWAN is the first place they feel seen, understood, and not alone.

When your child is undiagnosed… when answers are hard to find… when the journey feels overwhelming — SWAN is there. Connecting families. Sharing knowledge. Walking alongside you every step of the way.

We’ve helped families find diagnoses.
We’ve connected parents who were once completely alone.
We’ve built a community that truly understands what it means to live a rare life.

But right now… SWAN is at real risk of closing due to a lack of funding.

And the truth is — if we lose SWAN, there is nothing else like it in Australia.

This isn’t just an organisation.
It’s a lifeline.
It’s a community.
It’s hope.

💛 We need your help.

If you can:
• Donate
• Share this post
• Tag someone who might be able to support

Every single action makes a difference.

👉 https://save-swan-australia.raiselysite.com

Let’s come together to protect what so many families rely on.

SWAN Australia is at risk of closing within weeks. We are the only organisation in the country supporting families livin...
24/03/2026

SWAN Australia is at risk of closing within weeks.

We are the only organisation in the country supporting families living with undiagnosed and rare genetic conditions, families raising children without answers, without clear pathways, and often without support.

Right now, over 1,200 families rely on SWAN.

If we close, that support disappears.
No connection.
No guidance.
No community.

We can’t let that happen.

👉 Donate today to help keep SWAN’s doors open: https://save-swan-australia.raiselysite.com/

SAVE Syndromes Without A Name (SWAN) Australia: Help us continue to provide support to 1,200 families of children with a...
24/03/2026

SAVE Syndromes Without A Name (SWAN) Australia: Help us continue to provide support to 1,200 families of children with an undiagnosed or rare genetic conditions

We never thought we would be writing this.

Right now, SWAN is almost out of funding and we face the reality of closing our doors. Not in a few months. It’s a matter of weeks.

SWAN supports over 1,200 families across Australia. We help them navigate undiagnosed and very rare conditions - providing peer support, connection, and advocacy. For many of these children there’s no clear pathway, no roadmap, and often for their families there is nowhere else to turn.

So, SWAN is not just a service. It’s a lifeline.

Help Save SWAN – Donate Now!

https://save-swan-australia.raiselysite.com/

Address

PO Box 390
Fairfield, VIC
3078

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

0404280441

Website

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