11/12/2026
Explore groundbreaking stories and scientific breakthroughs shaking up the rare disease world!
Rare: A Rare Disease Revolution is an in-person documentary film screening bringing people together around rare diseases. Join the conversation and be part of the revolution!
Agenda
05:00 PM
Documentary Screening
Princeton University and students in FRS171: Neurons & Narratives invite you to join us for a screening of Rare: A Rare Disease Revolution. RARE tells the story of 5 rare disease families' diagnostic and cure odysseys as they fight for therapies against a ticking clock. This screening is supported by Princeton's Program for Community-Engaged Scholarship (ProCES) and First-Year Seminars (FRS) Program.
06:30 PM
Panel discussion: Where does the rare disease revolution go from here?
Director Lainey Moseley, Princeton University Professors: Dan Notterman, MD, Becky Burdine, PhD, and Britt Adamson, PhD, and KIF1a.org Parent Advocate Naomi McMackin, MD. Moderated by Heather Christie, PhD
08:00 PM
Reception
REGISTER HERE: https://www.eventbrite.com/e/rare-a-rare-disease-revolution-tickets-2003862218839
Join us to explore groundbreaking stories and scientific breakthroughs shaking up the rare disease world!
