Cure AHC

Cure AHC Cure AHC envisions a world where Alternating Hemiplegia of Childhood no longer robs its sufferers of the chance to participate fully in life.

A Non-Profit, Cure AHC exists to find a cure for Alternating Hemiplegia of Childhood, a rare and painful children's neurological disorder, by raising awareness & fundraising. We look forward to a time where no case goes misdiagnosed for lack of awareness. We believe that collaboration is critical to make this vision a reality for those suffering now and for those to come.

We are officially ONE MONTH away from the 2026 Cure AHC Family & Science Gathering! 💙🧡We’re excited to finally share the...
06/01/2026

We are officially ONE MONTH away from the 2026 Cure AHC Family & Science Gathering! 💙🧡

We’re excited to finally share the agenda for this year’s meeting! The weekend includes the latest research updates from world-class AHC researchers, live expert Q&As, an experienced parent panel, brain-first behavior support with Eileen Devine, and caregiver mental health support with Amanda Griffith Atkins.

Virtual attendance is available again this year. Virtual attendees will be able to watch presentations live and participate in live Q&A sessions throughout the weekend.

Virtual registration is $50.

A few time zone conversions for live sessions:
• California — 6:00 AM PDT
• Chicago — 8:00 AM CDT
• London — 2:00 PM BST
• Central Europe — 3:00 PM CEST
• Dubai — 5:00 PM GST
• São Paulo — 10:00 AM BRT
• China — 9:00 PM CST
• Australia (Sydney) — 11:00 PM AEST

🧡You can view the full agenda here: https://static1.squarespace.com/static/5bdfc7a3cef372e7bbfcb463/t/6a1dadd2ab0f493a33ec674c/1780329962252/Meeting+Agenda

🩵To register for virtual attendance: https://cureahc.charityproud.org/EventRegistration/Index/26166?fbclid=IwY2xjawQDFAZleHRuA2FlbQIxMABicmlkETIxakZpaXcwNlpHYTlNcG9sc3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHk_R6S8mJqHLSKAgXN1oS8tIiy4eL-nAoAcXtl3olG7BWlhvlJOieC_MC00X_aem_2y3PUqrvGL760Vnv2ykyFQ

In loving memory of a member of our AHC family, Mariel Espinoza Valdez. Gone much too soon.We will not forget you. We wi...
05/20/2026

In loving memory of a member of our AHC family, Mariel Espinoza Valdez. Gone much too soon.

We will not forget you.
We will continue to fight AHC in honor of you, sweet girl 🖤


Set your alarms for May 18th 9pm EST! https://zoom.us/j/96823242271🎙️ AHC After Hours 🎙️🌙 For the caregivers who never c...
05/14/2026

Set your alarms for May 18th 9pm EST!

https://zoom.us/j/96823242271

🎙️ AHC After Hours 🎙️

🌙 For the caregivers who never clock out

This virtual group is a chance to:
💬 Connect with others who truly get it
🤝 Share encouragement and ideas
☕ Take a little time for yourself
🎙 Explore special topics and guest-led sessions

And because we know AHC kids don’t always sleep on schedule (or at all!), caregivers are always welcome to join with their child if needed. This is a flexible, judgment-free space for real-life connection and encouragement.

Happy Mother’s Day💙🧡🤍To the mothers who have spent countless nights awake, listening to monitors, holding seizures at ba...
05/10/2026

Happy Mother’s Day💙🧡🤍

To the mothers who have spent countless nights awake, listening to monitors, holding seizures at bay, sitting in hospital rooms, and carrying worries too heavy for words.

To the moms who have become nurses, advocates, researchers, therapists, protectors, and relentless fighters for their children.

To the moms who celebrate the milestones others may overlook. A smile, a good day, a quiet moment, a tiny victory - because you know more deeply than most just how precious those moments truly are.

To the bereaved mothers carrying love and grief side by side today, we honor your children and hold space for your heartbreak.

And to every mother figure walking this journey with extraordinary strength, compassion, and courage: we see you.

Your love changes lives. Your resilience inspires hope. And your children are deeply loved because of you.

Last day to register to participate in research at the Family Meeting!!Taking part in these studies is one of the most m...
05/01/2026

Last day to register to participate in research at the Family Meeting!!

Taking part in these studies is one of the most meaningful ways patients and families can move research forward. Every sample strengthens a growing dataset—bringing us closer to clearer answers, better-designed trials, and more effective treatments.

Join us this summer in Boston to build meaningful connections and help move research forward together.

Please note: You must be registered to attend the family meeting in order to participate in this sample collection. Click the link below to get more information!

https://www.cureahc.org/family-meeting

04/28/2026

Two days left to register to participate in the research opportunities this summer at the Family Meeting!

This June in Boston, families and researchers come together to turn lived experience into progress and we want you in the room!

Register now for the family meeting through the Cure AHC website and fill out the separate research form to take part in research opportunities that truly make a difference.

Important: Research registration must be submitted by May 1st so clinicians have time to connect with you before the meeting.

If you need financial assistance to attend the meeting we still have slots available to help! Please reach out to us!

Address

301 Route 17 North Suite 800
Rutherford, NJ
07070

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+19194884217

Website

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