Kayven’s Helping Hands

06/12/2026

📚☀️ KHH Summer Adventure Reading Challenge! ☀️📚

Looking for a free family activity this weekend? Visit a Kayven’s Helping Hands Little Free Library!

📖 Grab a book
📖 Read together
📖 Keep those minds growing all summer long

Just 15–20 minutes of reading a day can help kids stay sharp and ready for the next school year.

📍 Find a library near you at kayvenshelpinghands.org

💜 Free books. Big adventures. Happy reading!

📚☀️

📚☀️ KHH Summer Adventure Reading Challenge! ☀️📚

Make reading part of your summer adventure!

📖 Visit one of our Little Free Libraries (or ANY Little Free Library).
📚 Take a book, leave a book, or both.
📸 Snap a picture during your visit.
💜 Share it in the comments below or tag Kayven's Helping Hands in your post.

Everyone who participates will receive a special KHH gift:
🎁 A free book
🔖 KHH bookmark
✨ KHH sticker

Let's see how many libraries our community can visit this summer while spreading the joy of reading!

Ready? Start exploring and share your photos with us! 📚🌎💜

https://www.kayvenshelpinghands.org/librarylocations

06/10/2026

💙 Have a teen with epilepsy or another neurological condition? The transition to adulthood can feel overwhelming, but you don’t have to navigate it alone.

Epilepsy Foundation of Missouri and Kansas and Children’s Mercy is hosting a FREE Transition to Adulthood Education Day for teens (13+) and their families to learn about adult healthcare, resources, independence, and what to expect as they grow into adulthood.

📅 July 17, 2026
📍 Kansas City, MO
🍽️ Lunch provided
💲 Free to attend

This is a wonderful opportunity to ask questions, connect with resources, and meet other families on a similar journey.

See the flyer for registration details! 💙🧠

Join us for this FREE event!! See details below 👇💜

06/10/2026

💜🧠 June is SYNGAP1 Awareness Month! 🧠💜

SYNGAP1-Related Disorders (SRD) are rare genetic neurodevelopmental disorders caused by changes in the SYNGAP1 gene. Many individuals with SYNGAP1 experience epilepsy, developmental delays, intellectual disability, autism, sensory challenges, and behavioral differences. While considered rare, SYNGAP1 is one of the more common genetic causes of developmental and epileptic encephalopathies. Today, approximately 1,700 individuals have been identified worldwide, though many more remain undiagnosed.

📅 Why June?
SYNGAP1 Awareness Day is celebrated on June 21 (6/21) because the SYNGAP1 gene is located at chromosome position 6p21.32. Families around the world participate in the annual campaign to raise awareness and support research.

Water is the theme because many individuals with SYNGAP1 love pools, sprinklers, lakes, and other water activities.

💜 10 Easy Ways to Help
1️⃣ Donate or host a fundraiser to support research.
2️⃣ Take a family photo with a sign and share it.
3️⃣ Participate in research studies and registries.
4️⃣ Follow, like, and share posts from CURE SYNGAP1.
5️⃣ Volunteer with the organization.
6️⃣ Learn more through webinars, blogs, and educational resources.
7️⃣ Share podcasts and newsletters with others.
8️⃣ Tell your family's story through writing, video, or social media.
9️⃣ Reach out to local media to help spread awareness.
🔟 Share SYNGAP1 information and brochures with friends, family, healthcare providers, schools, and your community.

Every share, conversation, and act of advocacy helps create a bigger splash for awareness, research, and future treatments.

💜 Learn more, get involved, or donate through CURE SYNGAP1.

https://curesyngap1.org/calendar/syngap-awareness-day-2026-splash-for-syngap/

💜🌊🧠

CURE SYNGAP1 is a global group of families committed to accelerating the science to cure SYNGAP1 & to supporting each other.

06/10/2026

Have you considered getting a seizure alert device but don’t know where to start? Check out Danny Did resources to help you look over available options and choose the right device!

06/08/2026

🎉 A huge thank you to Ethyn for choosing Kayven’s Helping Hands for his Eagle Scout project! 🦅

Ethyn designed and built a new indoor Little Free Library for Championship Martial Arts of Derby, replacing our original library with one that better meets the needs of the space and our literacy mission. 📚

He also organized book drives to help stock this library and others throughout our network. ❤️

Through this project, Ethyn demonstrated the leadership, initiative, service, and dedication that Scouting is all about. His work will help inspire young readers for years to come.

Thank you, Ethyn, for helping us make adventures possible for all! 📖

06/07/2026

🎉 A huge thank you to Ethyn for choosing Kayven’s Helping Hands for his Eagle Scout project! 🦅

Ethyn designed and built a new indoor Little Free Library for Championship Martial Arts of Derby, replacing our original library with one that better meets the needs of the space and our literacy mission. 📚

He also organized book drives to help stock this library and others throughout our network. ❤️

Through this project, Ethyn demonstrated the leadership, initiative, service, and dedication that Scouting is all about. His work will help inspire young readers for years to come.

Thank you, Ethyn, for helping us make adventures possible for all! 📖✨

06/06/2026

📚☀️ KHH Summer Adventure Reading Challenge! ☀️📚

Make reading part of your summer adventure!

📖 Visit one of our Little Free Libraries (or ANY Little Free Library).
📚 Take a book, leave a book, or both.
📸 Snap a picture during your visit.
💜 Share it in the comments below or tag Kayven's Helping Hands in your post.

Everyone who participates will receive a special KHH gift:
🎁 A free book
🔖 KHH bookmark
✨ KHH sticker

Let's see how many libraries our community can visit this summer while spreading the joy of reading!

Ready? Start exploring and share your photos with us! 📚🌎💜

https://www.kayvenshelpinghands.org/librarylocations

06/05/2026

🎉 Happy Friday! 🎉

We're excited to share the first round of photos from Celebrate Kayven last week! 💜🦕📚

A huge thank you to Magnolia LaForge with Magnolias Photography for capturing so many wonderful memories from this special evening. We are incredibly grateful for your talent and generosity! https://magnoliasphotograp.wixsite.com/magnolia

If you attended the event, we'd love to see your photos too! 📸 Please share them in the comments or tag Kayven's Helping Hands in your posts so we can relive the fun and celebrate together.

Thank you to everyone who joined us and helped make this year's Celebrate Kayven event so memorable. 💜

06/03/2026

The PAME: Partners Against Mortality in Epilepsy conference
brings together epilepsy researchers, health care providers, nonprofit leaders, and people impacted by epilepsy, including bereaved families, to share knowledge and work together to prevent epilepsy mortality.

The PAME Conference will take place in Denver, CO, on December 3, 2026, with a dedicated family session on December 2.

Stay tuned for more details! We look forward to coming together for this important event.

06/02/2026

WOW! Because of this amazing community, Celebrate Kayven: Dino Mite Adventures raised over $10,000 through sponsorships, donations, raffle sales, and fundraising activities!

These funds will help Kayven's Helping Hands continue our mission of making adventures possible for all through literacy programs, Little Free Libraries, children's enrichment opportunities, epilepsy education, and support for families affected by epilepsy.

Most importantly, this event was about bringing our community together. Families joined us for a night of fun, adventure, friendship, and connection. We were also able to give away hundreds of free books to children, helping inspire a love of reading and ensuring more kids have books of their own to enjoy.

We are also honored to share that, because of the incredible generosity of our Celebrate Kayven guests, sponsors, donors, and Duck Pond participants, Kayven's Helping Hands is able to provide a $1,000 donation to support Lathaniel's medical journey.

From the bottom of our hearts, thank you to every sponsor, donor, volunteer, vendor, and guest who helped make this event possible. More than the dollars raised, you created a night filled with adventure, kindness, community, and hope.

Together, we are making a difference and keeping Kayven's legacy alive. 💜🦖📚