Propionic Acidemia Foundation

09/04/2026

🔬 PAF Research Grant RFP — Deadline October 1, 2026!

The Propionic Acidemia Foundation is accepting research grant applications to help advance treatments and, ultimately, a cure for propionic acidemia.

Researchers are encouraged to submit proposals focused on innovative research that can accelerate discovery and improve outcomes for individuals living with PA.

📅 Deadline: October 1, 2026

Learn more and apply: PAF Grant Application

09/02/2026

September reminds us that every day matters — every milestone, every challenge overcome, every family finding strength, and every person living with PA who continues to inspire us.

This month, let’s continue to educate, advocate, connect, and support one another. Together, we can shine a brighter light on propionic acidemia and work toward a future with better treatments, greater understanding, and ultimately, a cure. 💙

Here’s to a September filled with hope, strength, and community.

🌟 Welcome, September! 🌟

08/21/2026

🍂 Got a story, update, or shoutout to share? We’re putting together our Fall Newsletter and would love to include your voice! 🧡
📬 : Send us your submissions by 9/1!
📧 : [email protected]

08/21/2026

PAF is pleased to announce a new $30,000 Conditional Gift.

08/03/2026

Welcome, August! ☀️
What are your plans for this month?! Share back to school tips and pics!
🧡💛

08/03/2026

Congrats, Kate!

🎓 Join us in congratulating 2026 Guthrie-Koch Scholar Kate Lowry! 👏

A bassist, performer, and songwriter, Kate's passion for music has taken her to Berklee College of Music, where she begins her sophomore year this fall studying Bass Performance. She hopes to build a career as a touring and session musician.

"The Beatles were right—you really can get by with a little help from your friends."

🌟 Learn more about Kate and meet the other scholars: https://loom.ly/HzwRFG8

08/02/2026

PCCA is part of PaVe-GT. The learnings will help more than just the disorders within PaVe-GT. Thank you for sharing.

I’m thrilled to share the PaVe-GT’s latest article published in Human Gene Therapy (open access) that describes our experience with the regulatory review at pre-IND and Type C meetings with the FDA for the program’s first AAV gene therapy candidate. Free to use templates and examples of regula...

08/02/2026

Living with PA ?
Propionic Acidemia Foundation is excited to share an opportunity to participate in the COMPASS Study, sponsored by Moderna and supported by PicnicHealth. This observational study is designed to
better understand real-life experiences of individuals living with methylmalonic acidemia (MMA) due to mutase deficiency (MUT) and propionic acidemia (PA), beyond what is captured in clinical trials.
● No new treatments required.
● Your or your loved one’s medical records are collected securely.
● $250 + free access to all your organized health records as compensation for your time.
Your participation could help improve care for everyone living with PA. https://picnichealth.com/make-an-impact/compass