Beat Dystonia

07/31/2026

FLASHBACK to my first brain surgery 🙌🏻❤️

07/16/2026

Dystonia Europe was formed in 1993 as European Dystonia Federation — the European umbrella organisation for national dystonia groups. We now have 21 national member groups across 20 countries.
For local support and information on services in your area, find your nearest dystonia association via our website here: https://dystonia-europe.org/dystonia-organisations-europe/

07/16/2026

07/16/2026

When does genetic testing help in ? At the recent , in Malmö, Sweden on Saturday, May 30, Prof Andreas Puschmann answered this question.
Prof Puschmann is professor in at Lund University and neurologist at Skåne University Hospital. He has many years of experience in diagnosing and treating dystonias, and his research focuses on genetic causes for neurological movement disorders.

🖥️ Watch the recording now on our YouTube Channel: https://youtu.be/YisduyxV6Ss?si=NJC5TRHwrlYwhN7a

07/15/2026

https://www.brainandlife.org/articles/how-prior-authorization-can-delay-your-care?utm_campaign=brainandlife-monthly&utm_medium=email&_hsenc=p2ANqtz-_68UXauZvSMajh80Q72tNZtDW-y601-mQCAimkXgPEBoVRGdsBvQzWucx1-vr1Z3VIKvwyuZmHuUrarE_dI4AgYOIS4g&_hsmi=428621067&utm_content=428621067&utm_source=hs_email

Understand prior authorization and what you can do to reduce the delay. Experts explain why denials happen, how appeals work, and ways to keep care moving.

07/01/2026

Heart Advice of the Week by Shambhala Publications

"In the Buddhist teachings, we often come across the analogy of the lotus and the mud. A lotus has its roots in mud. It rises through muddy water until it pierces the surface and blossoms as a gorgeous flower that delights all who see it. The lotus represents the beauty and purity of our fundamental nature — in other words, our basic goodness. And what about that sticky, yucky mud? That symbolizes everything negative within us, everything that we would like to move beyond: our confusion, our self-destructive habits, our tendencies to hide out in a polarized mind and a closed heart. By working through and rising above all these negativities, we discover our basic goodness and achieve our full potential as human beings."

From Pema's book WELCOMING THE UNWELCOME
https://pemachodronfoundation.org/product/welcoming-the-unwelcome-book/

07/01/2026

At Dystonia Day 2026, which took place in Malmö, Sweden on May 30, Salvatore Caruso (Board Member of Associazione per la Ricerca sulla Distonia (ARD) and Dystonia Europe) shared a powerful presentation on his experience of living with .
This is not to be missed: https://youtu.be/Pmm7BWvcw4A?si=3NDuLCDMHtb-sd9m

07/01/2026

06/30/2026

May you always be treated with respect and kindness. ~ Sheri 💙