North American Spinal Cord Injury Consortium

06/18/2026

United Spinal Association is preparing for Roll on Capitol Hill 2026, its premier advocacy event that brings disability advocates from across the country to Washington, D.C. Participants will engage directly with members of Congress and their staff to discuss critical policy priorities affecting the disability community.

Learn more about Roll on Capitol Hill 2026: https://lnkd.in/dHHBVwn

06/17/2026

Drexel University's College of Nursing and Health Professions is looking for volunteers for TEEMS, a study comparing online group exercise with self-guided workout videos for people with spinal cord injury.

If you're 18-75, have had your SCI for over a year, use a wheelchair or mobility aid, and are cleared to exercise, you may qualify. Participants can earn up to $200 in gift cards, and everything takes place online through a secure platform.

Learn more: Email [email protected] (if you have trouble reaching them there, contact Martha Childress, Project Coordinator, at [email protected])

06/16/2026

Finding SCI health information you can trust should not be this hard. In our needs survey, 83% of respondents said it is. The SCI-Powered Network is NASCIC's answer, built by and for people living with SCI.

Join Ian Burkhart for our free SCI Connections webinar on Thursday, June 25 at 3:00 PM EST to hear what Part I found and where the project goes next. Can't make it live? Register anyway and we'll share the recording. https://nascic.org/sci-connections-webinar-pn-phase-1/

06/12/2026

We need your voice!

Nominations are now open for people living with spinal cord injury and care partners to share their experiences during the Spinal Cord Injury Patient-Focused Drug Development (SCI PFDD) Meeting on September 29.

Selected participants may share their experiences at a free, virtual meeting where FDA staff, researchers, clinicians, and treatment developers will hear directly from the SCI community. You do not need to be an expert, advocate, or experienced public speaker to be nominated.
Nominate yourself or someone you know by June 22 at scipfdd.org/nominate.

06/11/2026

Our NASCIC delegates, Jason Stoffer and Samantha Troyer, will be in Milwaukee June 14–17 for ! More at https://www.neurotrauma-symposium.org/

Keynote spotlight: Mr. Jason Stoffer will share how lived‑experience can drive real change in neurotrauma research, from shaping study design to strengthening recruitment and community impact.

He will also highlight national and state‑level advocacy efforts that protect and expand research funding.

Join us in Milwaukee this June for as we brainstorm for breakthroughs! More at https://www.neurotrauma-symposium.org/

06/09/2026

Researchers at Augusta University are recruiting adults living with a SCI to participate in a study evaluating a potential new treatment for neuropathic pain.

Key details:
• In-person study conducted in Augusta, Georgia, USA
• Open to adults with SCI whose neuropathic pain meets study requirements
• Approximately 2-month participation period
• Compensation available for completed study visits (up to $3,540 USD)
• Study includes hospital monitoring and follow-up visits

If you or someone in your network may be interested, contact the study team directly at 706-723-0106.

06/04/2026

UTHealth Houston is inviting adults (18+) with a spinal cord injury (SCI) who are more than 1 year post-injury to take part in a brief research survey.

This one-time, 15-minute anonymous online survey asks participants to reflect on their first year after injury and share their experiences with participating in research during that time.

Your input will help researchers improve future SCI studies so they are more accessible, meaningful, and aligned with patient priorities.

Questions? Contact Claire Shackleton
Take the survey: https://uthealth.questionpro.com/a/TakeSurvey?tt=nxeqrBHLB58ECHrPeIW9eQ%3D%3D

05/29/2026

The Freedom Bed is an automated turning bed designed for people who cannot reposition themselves through the night, built around the daily reality of spinal cord injury and similar conditions that limit independent movement at home.

Pro Bed Medical, the company behind the Freedom Bed, joins NASCIC as a sponsored partner. The new introduction page includes a short product video, member testimonials, and a featured family story from parents using the Freedom Bed with their son.

Read more → https://nascic.org/probed-medical/

05/27/2026

We are pleased to share upcoming educational webinar opportunities from one of our Principal Members, the American Brain Coalition (ABC).

This June, ABC will host a special three-part webinar series focused on Mild Cognitive Impairment (MCI), bringing together clinical experts, community perspectives, and discussions on innovation in brain health.

Webinar Schedule:
• June 4 — Understanding MCI: The Clinical and Lived Experience
• June 11 — Managing MCI: Clinical and Community Perspectives
• June 18 — Promoting Brain Health and Innovation
11:00 AM–12:00 PM ET

Register here: https://us02web.zoom.us/webinar/register/WN_tC3IGauKR_OTBZoAKUA4Jw #/registration

05/25/2026

Drexel University is recruiting adults living with a spinal cord injury (SCI) for an online research study evaluating two different exercise approaches: live virtual group exercise sessions and a self-guided online video library.

Participants will be randomly assigned to one 8-week program, complete surveys and focus groups, and wear an activity watch. All study activities are conducted remotely online.

Participants may receive up to $200 in electronic gift cards for completing study activities.

To learn more, contact the study team at: [email protected]