10/08/2026
To create a meaningful alternative to , we have to co-design systems with lived experts. That is what the Doris Duke Foundation’s OPT-In for Families initiative is doing.
But how do lived expert Advisory members experience the co-design process?
Foster America and Chapin Hall asked them to show us using zines, which is both a new research method and a creative way to gather stories.
We learned that the experience is positive but emotionally taxing work for many members. Several Advisory members are “co-authors reviewers” on our new report about the findings: https://www.chapinhall.org/research/zines-reveal-how-lived-experts-experience-co-design-in-opt-in-for-families/