06/10/2026
I know everyone has been waiting for an update.. and it's not the one I wanted to give.Noah has been admitted to Children's Hospital.
He is having a really hard time breathing and has had more than one scary episode. He has so many secretions that he is literally drowning in them.
They are pouring out of his trach and when I can't get to him fast enough he chokes. He now has fluid in his lungs and we are waiting for all of his other results to come back.
He slept maybe a total of 3 hours last night and the few nights before that were just as bad. So to say I am exhausted is an understatement.
I'm just praying for my baby boy to find comfort and relief soon. His little body is working so hard.
We need answers and we need things to get better, soon. He has surgery in 5 weeks and we will not be able to move forward if he is in this condition.
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