SUDEP Action: Making every epilepsy death count

05/11/2026

When someone we love becomes a memory, that memory becomes a treasure. 💜

Through our partnership with MuchLoved, you can create a dedicated, free online tribute page. It’s a peaceful space where family and friends from anywhere in the world can upload photos, light virtual candles, and leave messages on birthdays, anniversaries or simply on days when they are missed the most.

These pages can also be used to receive donations in lieu of flowers, helping to fund our vital work in preventing epilepsy deaths.

🕯️ Learn more about creating or visiting a tribute page: https://sudep.org/bereavement-support/leave-a-tribute/

04/11/2026

Want to take control of your epilepsy management?

EpSMon is a free self-monitoring app designed to help you track your health, spot risks and better understand your condition.

Empower yourself with the insights you need to have informed, confident conversations with your doctor about your safety and wellbeing.

📲 Download EpSMon for free today (UK residents, 18+).

Just search “EpSMon” on the App Store!

04/11/2026

Every signature brings us closer to saving lives. 💜
We need your help to reach 10,000 signatures on our petition!
We’re holding the government accountable to the promises made to SUDEP Action and bereaved families to tackle epilepsy risks and prevent future deaths.

✍️ Sign the petition today: sudep.org/sign-our-petition/

Please share this post to help us spread the word!

03/11/2026

We’re excited to announce that we’ll be taking part again in the Big Give Christmas Challenge for 2026! Every donation made from midday 1st December – midday 8th December will be doubled by the Big Give, turning £10 into £20! ❄️

Stay posted and share this post!

03/11/2026

Our coffee clubs are to offer mutual support and remind families and friends they are not alone. Whether you’re newly bereaved or have been navigating grief for years, you’re welcome at one of our coffee club meetings.

Learn more: sudep.org/coffee-club-meetings

Upcoming dates:

Sat 14th November, Stonehouse 10:30am – 12:30pm
Sat 21st November, Swansea 12.30am - 2.30pm

Just email [email protected]

02/11/2026

We support anyone who has lost a loved one to epilepsy, no matter how.

If you have questions, need answers or information after losing someone to epilepsy then call us at 01235 772852 or email [email protected]

02/11/2026

Whether you’ve been running, walking, cycling, wheeling, or taking on your My Way to 5K challenge in your own unique way in October, a huge thank you to everyone who has taken part this year! 🏃‍♀️

Your incredible efforts have raised £6,776.50!

Every donation has helped to raise vital awareness of epilepsy risks and Sudden Unexpected Death in Epilepsy (SUDEP).

Send us your photos at [email protected]

30/10/2026

We need your support to reach our 10K signatures target!

Our petition addresses the promises made by government to work with SUDEP Action and families to tackle SUDEP and epilepsy risk to prevent future deaths.

Help us get this petition to the Prime Minister: https://sudep.org/sign-our-petition/

If you’ve already signed then please share this post 💜

29/10/2026

This story in The Metro highlights the importance of always talking to health professionals for specific advice relating to YOUR epilepsy and how to manage it. Disinformation and not sharing evidence-based info on SUDEP and epilepsy risks can kill.

Our EpSMon app can help you keep track of changes in your condition, providing useful information for your doctor, whilst the SUDEP & Seizure Safety Checklist is designed to ensure important human conversations take place in clinical settings.

Bowen Wan found dead after ChatGPT ‘convinced’ her to take less epilepsy medication

29/10/2026

There are only a few days left of My Way to 5K!

If you want to make an impact, there is still time: tinyurl.com/MWT5K2026

Every 5K and every donation helps to empower families and individuals living with epilepsy across the country.