The International Alliance of ALS / MND Associations

17/06/2026

📣 Applications close Friday, July 3, 2026.

If you are living with ALS/MND, caring for someone who is, or are an ALS/MND gene carrier, the 2026 ALS/MND Patient Fellows Program offers a unique opportunity to help ensure lived experience is part of the conversations shaping the future of ALS/MND research, care, and advocacy.

Through virtual and in-person participation, Patient Fellows can attend the MND Association’s International Symposium on ALS/MND and may also choose to take part in the Alliance Meeting and Allied Professionals Forum.

The program is built on a simple but powerful idea: “Nothing about us without us.” By including people directly affected by ALS/MND in these global discussions, the program helps bring valuable perspectives to the forefront.

💙 Who can apply?
• People living with ALS/MND
• Caregivers and care partners
• ALS/MND gene carriers

Learn more and apply today:
https://www.als-mnd.org/events-programs/patient-fellows-program/

16/06/2026

Global ALS/MND Awareness Day is June 21. 💙

Caregivers do not often ask to be seen. They are too busy showing up: at appointments, in the middle of the night, in the quiet moments no one else witnesses.

This year's calendar was built by communities who wanted to change that.

On Sunday, we will share the images they created and we open the calendar for pre-orders.

13/06/2026

Congratulations to Sir Kevin Sinfield on this well deserved honour!

13/06/2026

Every year on June 21, the global ALS/MND community comes together to mark Global ALS/MND Awareness Day. 💙

This year, we are marking it with something special.

48 images. Submitted by ALS/MND communities from around the world. Each one a reflection of caregiving — the people who show up, every day, for someone living with ALS/MND. 📸

On June 21, we reveal the winning images and open pre-orders for the 2027 ALS/MND Caregiver Calendar.

12/06/2026

🔬 Scientific Advisory Council Mid-Year Update & Q&A

📅 June 17, 2026 | 8:00-9:00 am ET

Join us for a mid-year update from the Alliance’s Scientific Advisory Council (SAC). This session will provide insights into current developments in ALS/MND research, along with an opportunity to engage directly with SAC members during a live Q&A. (Multilingual captions available.)

REGISTER NOW: https://ow.ly/y7qx50YMBOF

11/06/2026

The Allied Professionals Forum (APF) is an international gathering of healthcare professionals committed to enhancing care for individuals living with ALS/MND. Bringing together experts from diverse disciplines and regions, the forum creates opportunities to share knowledge, explore emerging practices, and collaborate on solutions that improve patient care and quality of life.

Whether attending in person or online, participants will gain valuable insights, connect with colleagues from around the world, and contribute to advancing ALS/MND care globally.

📅 December 7–8, 2026
📍 Amsterdam + Virtual

Learn more: https://www.als-mnd.org/events-programs/allied-professionals-forum/

10/06/2026

💙 Your experience matters. Your voice belongs at the table. 💙

The 2026 ALS/MND Patient Fellows Program creates opportunities for people affected by ALS/MND to engage directly with the global research and healthcare community.

Whether attending in person or virtually, fellows can take part in the MND Association’s International Symposium on ALS/MND, with the option to also participate in the Alliance Meeting and Allied Professionals Forum.

By bringing together researchers, healthcare professionals, advocates, and people with lived experience, the program helps ensure that discussions about ALS/MND are informed by those who know the disease firsthand.

📣 Applications are now open for 2026.

📅 Deadline to apply: Friday, July 3, 2026

Learn more and submit your application: https://www.als-mnd.org/events-programs/patient-fellows-program/

Eligible applicants include:
🔹 People living with ALS/MND
🔹 Family caregivers and care partners
🔹 ALS/MND gene carriers

Together, we can help shape the future of ALS/MND research, care, and advocacy.

08/06/2026

This week is an important one in the ALS MND Community globally but especially in Australia. The Big Freeze is happening for Fight MND and the funeral of Neale Daniher. Shared below is a presentation Bec Daniher made in Montreal in 2024 that talks about the roots of Fight MND and her father. https://www.youtube.com/watch?v=nIwwHJqMjLQ

Bec ends with the profound quote "A society grows great when old men plant trees in whose shade they know they shall never sit"

Our sincerest condolences to Neale's family and the FightMND family!

The ALS/MND community owes a huge debt of gratitude to Neale Daniher for taking on the Beast and we will Play On in his honour towards a World free of ALS/MND!

Presented by Rebecca Daniher2024 Alliance MeetingMontreal, Canada.

07/06/2026

VOTE BY JUNE 8TH | Who I Am Is More Important Than What I Do | Submitted by ALS ONE | Artist: Lyn Kirkland | Encaustic wax & mixed media on wood panel

A UK encaustic wax artist, Lyn responded to a callout from the International Encaustic Artists (IEA) organisation to take part in their “Hope Lives: Art for ALS” annual exhibition in 2025. Her artwork was inspired by the journey of the sister of one of the IEA Directors. As the eldest of three sisters herself, she was deeply affected by the story of Lynn Giovannelli and the continuing fight of her family to support research into this dreadful disease.

Her painting was selected to receive the “To Life” Award given for artwork that reflects life’s preciousness and how we can make a difference in the lives of others. 💙

Submit your vote here: https://www.als-mnd.org/events-programs/global-day