The International Alliance of ALS / MND Associations

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The International Alliance of ALS / MND Associations

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The Alliance is a global network of ALS/MND Associations informed by people living with ALS/MND.

29/10/2026

🌍 MEET US IN AMSTERDAM! 💙

Registration is OPEN for the 2026 Alliance Meeting and Allied Professionals Forum, December 5–8!

Join our global ALS/MND community to connect, share knowledge, and help advance care and support for people living with ALS/MND.

📍 Postillion Hotel & Convention Centre, Amsterdam
💻 Can't attend in person? Full online access is available!

✨ Be part of the conversation. Together, we can make a difference!

🔗 Register now: https://site.pheedloop.com/event/EVEJQSGMMHRVT/home

28/10/2026

Now available: The Use of AI in ALS/MND 🎥

This webinar provides an overview of the rapidly evolving landscape of artificial intelligence. We look at responsible and trustworthy AI, and the importance of governance as it relates to the ALS/MND community.

https://www.youtube.com/watch?v=g7M4owJOOT8

28/10/2026

Melissa Van Tuyl (Canada) - POSTING DATE: October 28
Melissa Van Tuyl from Canada summed up the value of stepping away from your daily work and into a space filled with people who understand exactly what you're trying to accomplish: “I'm fortunate enough to work with the ALS community every day, and I'm honoured to be in a room with other people wanting to make effective change." https://www.youtube.com/shorts/HdSlUyT8IqU

Experience that energy from December 7-8 at the 2026 Allied Professionals Forum — join us virtually or in Amsterdam. ⚡
https://www.als-mnd.org/events-programs/allied-professionals-forum/

Live at the Alliance 2025, featuring Melissa Van Tuyl from Canada

28/10/2026

PEG Tube: Care Beyond Words | Submitted by MND Malaysia | Photo: Alex Ooi

This picture was taken during our Family Gathering in 2025 at Taiping. En. Ayob, aged 47, and his whole family joined us in that trip despite being fully bedridden, and unable to speak or eat. Two months later, he passed away.

His wife, Pn. Linda, was feeding him via the PEG tube. Pn. Linda was the only breadwinner for the family with five young children to take care of. Her children, including the youngest at just 5 years old, helped care for En. Ayob while Pn. Linda worked. 💙

To be featured in the month of November!

🔗 Pre-order your calendar here: https://www.als-mnd.org/events-programs/global-day/

24/10/2026

Always by Your Side (Siempre a tu lado) | Submitted by FYADENMAC | Jaime García Hernández 💙

To be featured in the month of November!

🔗 Pre-order your calendar here: https://www.als-mnd.org/events-programs/global-day/

23/10/2026

🗣️ Your voice is uniquely yours. Technology can help preserve it.

For people living with ALS/MND, changes in speech can have a significant impact on communication and connection.

Through a new partnership between the International Alliance of ALS/MND Associations and ElevenLabs, people living with ALS/MND anywhere in the world can access a free Pro voice cloning license through the ElevenLabs Impact Program.

Voice cloning uses AI to create a digital version of your own voice that can be used with a communication device, helping you continue to communicate in a voice that sounds like you.

💙 To make the process easier, the Alliance has developed a step-by-step video tutorial and downloadable guide.

Explore the resources and learn how to get started:
https://www.als-mnd.org/support-for-pals-cals/clinical-care/speech-therapy-and-communication/

📣 Help spread the word. Share this post so more people living with ALS/MND and their families can learn about this resource.

22/10/2026

🌍 AMSTERDAM, HERE WE COME!

Registration is OPEN for the 2026 Alliance Meeting and Allied Professionals Forum, taking place December 5–8 in Amsterdam!

Join a global community united by a shared commitment to improving the lives of people living with ALS/MND. 💙

🤝 The Alliance Meeting brings together Alliance members from around the world to connect, collaborate, and strengthen our global community.

🩺 The Allied Professionals Forum welcomes healthcare professionals, researchers, advocates, and others dedicated to advancing care and support for people living with ALS/MND.

📍 Where: Postillion Hotel & Convention Centre, Amsterdam
💻 Can't travel? Full online access is available, so you can take part from wherever you are!

✨ Be part of the conversations, connections, and collaborations helping shape the future of ALS/MND care and support.

🔗 Register today!
https://site.pheedloop.com/event/EVEJQSGMMHRVT/home

We look forward to bringing our global community together in Amsterdam! 💙🌍

21/10/2026

🧬 Annual Clinical Trials Update
📅 November 4, 2026

This webinar will provide an update on ALS/MND treatments currently in Phase 3 clinical trials. Participants will learn about trial timelines, study locations, available programs, and key contacts for further information. The session will offer an overview of the current Phase 3 clinical trial landscape and the latest developments in treatment research.

Register: https://www.als-mnd.org/events-programs/webinars/

20/10/2026

Feeling Safe and Supported | Submitted by MND Association

Debbie Whitehouse, who has MND, and her daughter. 💙

To be featured in the month of November!

🔗 Pre-order your calendar here: https://www.als-mnd.org/events-programs/global-day/

18/10/2026

Lion Strength | Submitted by ALS Liga België 💙

To be featured in the month of October!

🔗 Pre-order your calendar here: https://www.als-mnd.org/events-programs/global-day/

Address

Francis Crick House
Northampton
NN36BJ

Website

https://www.als-mnd.org/

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