SJS Awareness UK

03/09/2026

🩸 Blood cancer affects thousands of people across the UK every year. Behind every diagnosis is a person, a family, and a story of courage. By raising awareness, supporting those affected, and investing in research, we can help improve lives and bring hope for a brighter future.


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27/08/2026

The My SJS Passport App is almost here!

Designed for the SJS/TEN community, this exciting new digital tool will help users securely store and share vital health information, including diagnosis details, medications, allergies, treatment plans, documents, and images, all in one place.

With accessibility features such as customizable colour backgrounds, including yellow backgrounds with black text, the app aims to support individual needs, improve communication with healthcare professionals, and help deliver more coordinated care.

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21/08/2026

A Tribute to the Heroes Behind Every SJS/TEN Recovery

To the families who sit by the bedside with endless patience, unwavering hope, and unconditional love, you are the true definition of strength. Your presence provides comfort when words fall short, and your advocacy gives patients the courage to keep fighting.

To the friends and well-wishers who send meals, messages, prayers, and encouragement, thank you. Your kindness becomes a lifeline during the hardest days, reminding patients and families that they are never alone.

To the nurses who offer comfort through a gentle touch, a reassuring smile, and compassionate care, thank you for making hospital rooms feel a little more like home. Your presence brings calm to moments of fear and uncertainty.

To the doctors who navigate the complexities of care with expertise, compassion, and the courage to make difficult decisions, thank you for your unwavering commitment to healing. Your skill and dedication give hope when it is needed most.

To all healthcare professionals who work tirelessly through long days and sleepless nights, offering not only medical care but humanity, dignity, and kindness, you are the heart of every recovery story.

It takes a special kind of person to work in healthcare. It is more than a profession; it is a calling. You carry the weight of difficult decisions, celebrate hard-earned victories, and stand beside patients and families through some of life’s most challenging moments.

From the medical expertise of healthcare teams to the quiet strength of families and the steadfast support of friends, this is what community looks like. This is what healing together looks like.

Thank you for the miracles, both big and small. Thank you for fighting for us when we cannot fight for ourselves. We see you, we appreciate you, and we are forever grateful.



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19/08/2026

Did you know you can report an adverse Drug Reaction by accessing the YellowCard Scheme? Visit https://share.google/TwJfsnDTmcSUWKMnM



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MHRA Homepage for reporting of suspected side effects or adverse drug reactions to any medicines or vaccines, as well as medical device incidents

18/08/2026

Awareness Day ❤️

Today, on SJS Awareness Day, we’re raising awareness of Stevens-Johnson Syndrome (SJS) and the devastating impact it can have on individuals and their families.

Sometimes, the most powerful way to understand SJS is to hear directly from someone who has lived through it.

🎥 Watch Nadier Lawson share her journey with Stevens-Johnson Syndrome (SJS):

[Watch the video on YouTube](https://youtu.be/PSLfeI5rTPI?si=pMMit0Nv-esri4iu)

Let’s keep talking about SJS, sharing experiences, and helping others recognise the signs.



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In this video, Nadier Lawson, the founder of SJS Awareness UK, shar...

13/08/2026

SJS may be rare, but knowing the facts matters.

Stevens-Johnson Syndrome (SJS) is a serious medical emergency that can affect the skin, mucous membranes and other organs. Understanding the triggers, symptoms and possible long-term effects can help raise awareness.

Swipe through for 5 facts about SJS.

Learn more: https://www.sjsawareness.org.uk/



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12/08/2026

Stevens-Johnson syndrome (SJS) and toxic epidermal necrolysis (TEN) are rare but serious conditions, with an estimated annual incidence of around 1–5 cases per million people. SJS affects less than 10% of the body surface area, SJS/TEN overlap affects 10–30%, and TEN affects more than 30%. Mortality increases with severity, with SJS commonly reported at around 1–5% and TEN at approximately 25–40%, although rates vary between studies and patient populations.



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11/08/2026

Stevens-Johnson Syndrome (SJS) is a rare but serious condition that affects the skin and mucous membranes.

It affects around 1–5 people per million each year.

SJS is often triggered by a reaction to certain medications, although infections can also be a cause.

Even though SJS is rare, awareness matters. Knowing about the condition and recognising the signs early can help people seek medical attention sooner.

Learn more: https://www.sjsawareness.org.uk/



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SJS Awareness UK is a charitable company committed to raising awareness of SJS in the United Kingdom. The organisation provides support for survivors and their families to overcome the physical, emotional and psychological challenges they may experience following an episode of SJS/TEN. Our aim is to...

02/08/2026

Stevens-Johnson Syndrome (SJS) might be rare, but being informed can save lives. This SJS Awareness Month, we’re sharing the facts you need to know. 💙
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