Action for A-T

27/08/2026

Join our 2027 TCS London Marathon team to help us fund more A-T research. We still have a few spaces available on the Saturday and Sunday so visit https://actionforat.org/2027-04-25-tcs-london-marathon/ or share this post if you or a friend are interested.

25/08/2026

Not long now until the BGC Charity Day and everyone at Action for A-T is getting excited. Our lead patron Jonny Wilkinson will be representing Action for A-T and we will also be joined by two lovely A-T families. The day takes place on the 11th September at the BGC headquarters in Canary Wharf. Watch this space for more details.

Mollie's Miracle - Living with Ataxia Telangiectasia

18/08/2026

Collaboration is a key strategic goal for Action for A-T and we are so grateful to have worked with Action Medical Research to fund these 3 new UK based research studies. More details about each study will be released shortly.

27/07/2026

We’re proud to share the results of our latest joint grant round with Action Medical Research.

This year, 31 outline applications were received, 22 were invited to submit full proposals, and 7 projects have now been awarded funding — signifying a new record investment of £1.6 million in vital A‑T research.

These awards were only possible thanks to the generous support of our donors and partner charities. Your commitment continues to drive progress for children and families affected by A‑T.

We’ll be sharing more details about each funded project in the coming weeks.

aefat BrAshA-T Ataxia-Telangiectasia Ataxia-Telangiectasia A-T Children's Project Ataxia-Telangiectasia A-T Society

19/07/2026

Wishing Jon Baker and his fellow riders every success today as they cycle to the South coast and back covering 100 miles. Jon was all set to join our Alps ride last month but Heathrow closed due to stormy weather and he was unable to fly to Geneva. Having already raised £1900 for A-T research, today’s ride will be the equivalent of riding the Col De Le Madeleine. Please join us in thanking Jon and wishing him and his fellow riders a safe ride.

14/07/2026

Action for A‑T Celebrates Success in the 2025 AMRC Expert Review Audit

Action for A‑T is proud to announce that we have officially passed the 2025 AMRC Expert Review Audit, a recognition that confirms our commitment to funding high‑quality, transparent, and rigorously reviewed medical research.

This achievement reflects the strength of our research governance and our dedication to ensuring that every project we fund is assessed fairly, independently, and with the highest level of scrutiny. The AMRC audit evaluates charities across key principles including proportionality, independence, diversity, rotation, impartiality, and transparency—all of which are essential to responsible research investment.

10/07/2026

🎉 London Marathon Ballot Results Are Out! 🎉

Didn’t get the place you were hoping for? You can still be part of something extraordinary.

Action for A‑T has a limited number of charity places available for the 2027 London Marathon — and we’re looking for runners who want to make every mile matter for children and young people living with Ataxia‑Telangiectasia.

Our 2024 and 2025 teams broke fundraising records, and this year’s runners raised an incredible £112,000. Now it’s your turn to join the team, take on an iconic challenge, and help fund vital medical research.

Please share if you know someone who may be interested.

🏃‍♂️ Run London.
💙 Support A‑T families.
🔬 Drive research forward.

Secure your place today and be part of something powerful.

👉 Apply now: https://actionforat.org/2027-04-25-tcs-london-marathon/

07/07/2026

Check out our online auction. We have something for everyone including tickets to see Bruno Mars on the 22nd July. https://uk.givergy.com/Stewartgolfauction26/?controller=lots&action=showLot&id=24 Don't hang around though, the auction closes at 20:00 on Thursday 9th July.

**Highest sealed bid in excess of £400 will be accepted.** **Estimate £500+** Get ready for an unforgettable night of music with two tickets to see

03/07/2026

The Stewart Golf charity auction in partnership with Action for A-T is now live!

Check out the incredible prizes available here 👉 https://tinyurl.com/4zecb4pm

01/07/2026

🚨 New Research Update
We’ve just published details of our latest completed project and the findings are a major step forward.

Researchers at the University of Milan have uncovered a key reason why A‑T cells struggle to stay healthy: they can’t use glucose properly and build up excess glycogen, even in the brain and heart. The team also identified a specific protein, FNIP2, that acts as a brake on the cell’s energy production — and showed that reducing FNIP2 can restore healthier metabolism.

This discovery opens a promising new pathway toward future treatments.
🔬 Read the full summary on our website: https://actionforat.org/understanding-glucose-metabolism-defects/