Action for A-T

10/06/2026

Another fantastic event at Hollinwell Golf Club yesterday. Huge thanks to our patron Leon Haslam for hosting the event and to Tenpin for their generous sponsorship, We are also incredibly grateful to Chris Herring for organising & everyone who took part helping to raise a further £20k for more A-T research.

08/06/2026

We’re proud to be one of 89 charities awarded a share of 's £37m investment, supporting 800+ early-career researchers.

This funding will help our researchers at a crucial stage of their careers, empowering them to drive future breakthroughs that save and improve the lives of those living with A-T.

Find out more:

Published: 8 June 2026

03/06/2026

What a night.... Huge congratulations to the Quest Professional students for delivering a fantastic event at the Pitcher & Piano, Cornhill last night. Thanks to their efforts and the generosity of the guests, £30,000 was raised for more research into A-T. They say it takes teamwork to make the dreamwork, these guys were incredible and totally smashed it...

31/05/2026

🌏✨ Run Tokyo. Change Lives. Join Team Action for A‑T in 2027

Ready for the marathon experience of a lifetime?
Action for A‑T is proud to be an official international charity partner of the 2027 Tokyo Marathon — part of the legendary Abbott World Marathon Majors.

On Sunday 7 March 2027, you could be on the start line at the Tokyo Metropolitan Government Building, racing through iconic districts, historic shrines, and one of the most electric marathon atmospheres in the world.

We have a limited number of guaranteed places, and they will go fast.
Secure your spot today and make your miles matter.

👉 Visit: https://actionforat.org/2027-03-07-tokyo-marathon/ for more details or to register

28/05/2026

From the glaciers of Gran Paradiso to the summit of Mont Blanc — Kim Pinnington is taking on some of Europe’s most iconic peaks to support children with A‑T.

His latest ascent in Italy was a huge success and a perfect warm‑up for this weekend’s Mont Blanc challenge. Kim has already raised £9,200 including Gift Aid, and with Mont Blanc ahead, the £10k milestone is well within reach.

Please join us in thanking Kim for a phenomenal effort and wish him luck for this weekends epic climb.

Thank you, Kim — climb strong this weekend.

19/05/2026

Today we just want to say thank you.

Every donation, every challenge event, every share and every kind message fuels the research that gives A‑T families hope.

Your support genuinely moves science forward.

💛 We couldn’t do this without you.

12/05/2026

Join us on Tuesday 16th June 2026 for one of the most anticipated charity golf events of the year — the Action for A-T golf day at Moor Park Golf Club hosted by our patron Naga Munchetty.

Set on the stunning High Course at the prestigious Moor Park Golf Club, this is your chance to enjoy championship level golf while helping accelerate vital research for children and young people living with A T.

Why You’ll Love This Event
• Play on one of the UK’s most iconic and beautifully maintained courses
• Enjoy first class hospitality throughout the day
• Connect with fellow supporters, partners, and friends of Action for A T
• Make a meaningful impact through your participation and fundraising

What’s Included
• Breakfast on arrival
• 18 holes on the High Course
• On course competitions and prizes
• Post golf drinks reception
• Two course dinner with charity auction and fundraising activities

Your Support Matters
Every team, every swing, and every donation helps fund groundbreaking research into Ataxia Telangiectasia — a rare, complex, and devastating childhood condition. By joining us, you’re helping give families hope and driving progress toward better treatments and, one day, a cure.

Secure Your Team Today
Places fill quickly each year, and we’d love to welcome you back — or see you join us for the first time. Visit https://actionforat.org/2026-06-16-moor-park-golf-day/ for more details or to secure your team.

11/05/2026

Huge thanks to Simon Toon and everyone who played in this weekends Ryder Cup style golf match at the incredible Fota Island Resort in Cork. Team England lifted the winners trophy levelling the series at 6-6 and along with the Rest of the World team, an incredible £18,000 was raised for more A-T research. Great work guys, we are looking forward to the 2027 event already.

05/05/2026

Huge congratulations to Fleur Pinnington Jones, who smashed the Birmingham Half Marathon at the weekend in support of Action for A‑T!

Fleur raised an amazing £1,470 including Gift Aid, helping to fund vital research for children and families living with Ataxia‑Telangiectasia.

Thank you, Fleur — your effort, energy and heart make a real difference. 🧡

04/05/2026

May the 4th be with you!

In the Star Wars galaxy, hope is the spark that can light the way forward — and that same hope drives every breakthrough in the search for a cure for Ataxia‑Telangiectasia.

Today, we’re celebrating the heroes who stand with us: the families, fundraisers, researchers and supporters who help us push back against the dark side of rare disease.

Together, we can bring new hope to children living with A‑T.
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