My Mito Mission - Powering Awareness for Mitochondrial Disease

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My Mito Mission - Powering Awareness for Mitochondrial Disease A UK-based charity powering awareness, support and research for mitochondrial disease, and inspiring mitochondrial research for everyone.

Remembering Jim on the anniversary of his passing, 11 years ago today 💚Jim's daughter Amber set up The Sanders' Mito Mis...
31/10/2026

Remembering Jim on the anniversary of his passing, 11 years ago today 💚

Jim's daughter Amber set up The Sanders' Mito Mission, telling Jim and his siblings' story with mitochondrial disease and raising awareness in his and his brother Kevin's memories.

You can read their story on our website, and support their mission: https://www.mymitomission.uk/the-sanders-mito-mission-dagenham/

We're looking for volunteers in the Elland area! 🫶Do you have any spare time to help out with our online retail operatio...
30/10/2026

We're looking for volunteers in the Elland area! 🫶

Do you have any spare time to help out with our online retail operations? Come and join our friendly, supportive team of volunteers and contribute to a great cause.

We're a small charity based in West Yorkshire powering awareness, research and support for those impacted by mitochondrial disease - you can find out more about us on our website: mymitomission.uk

Volunteering can be a great boost for your CV, a fab way to make friends or even just to keep busy during the week. We can take on anybody over the age of 16, and we're flexible on days and times - it's up to you.

Get in touch with us via email ([email protected]) or phone us on 0300 102 1112! ☎️

Did you know that we offer FREE medical alert wristbands for those with mitochondrial disease in the UK? ⚡The lovely Cal...
29/10/2026

Did you know that we offer FREE medical alert wristbands for those with mitochondrial disease in the UK? ⚡

The lovely Callie, 4, is pictured here wearing one of them! 💚

Available to adults and kids across the UK with a mito diagnosis, free of charge, our wristbands can be personalised with your medical information and In Case of Emergency numbers, as well as featuring a QR code to mitochondrial disease clinical guidelines.

Find out more & order yours on our website today: mymitomission.uk/medical-alert-wristbands

Katie’s story is a reminder of just how much life can change for a family living with mitochondrial disease. We’re proud...
28/10/2026

Katie’s story is a reminder of just how much life can change for a family living with mitochondrial disease.

We’re proud to share Katie’s story and raise awareness of mito through her mission, and so many others. Head to our website to read Katie’s full story and find out more about life with mitochondrial disease...

https://www.mymitomission.uk/katies-mito-mission-nottingham/

WIRED Greece has published a brilliant feature on Professor Kostas Tokatlidis, his work in mitochondrial research, and t...
27/10/2026

WIRED Greece has published a brilliant feature on Professor Kostas Tokatlidis, his work in mitochondrial research, and the connection between science and the people living with mitochondrial disease.

The article also explores the story behind our charity, its founding in memory of Emma, and how a personal mission has grown into a nationwide community working to raise awareness, support families and fund research.

We're so lucky to be able to work closely with Kostas and so grateful for his support over the years - he recently took part in the Great Scottish Run with his family to raise awareness and funds for our charity, and will soon be attending our annual support event, My Mito Meet Up, with his research team to meet and talk to those impacted by mito.

There’s still so much to understand about mitochondrial disease. That’s why awareness, collaboration and research matter.

Thank you to WIRED Greece and to Dr Vasiliki Michopoulou for shining a light on mitochondrial disease and the people working to make a difference. 💚

🔗 Read the full article: https://wired.com.gr/article/o-ellinas-epistimonas-piso-apo-tin-erevna-ton-mitochondrion/

The magic of the My Mito Meet Up is nearly upon us, and over at HQ we've all been working extra hard to make it the most...
26/10/2026

The magic of the My Mito Meet Up is nearly upon us, and over at HQ we've all been working extra hard to make it the most special ever! ⚡

The Meet Up is a chance for those impacted by mitochondrial disease to connect, relax and enjoy themselves. In the words of one of the attendees in 2025, "It means the world to be able to make memories."

We couldn't do events like this without you. Our supporters have made it possible for us to provide these incredible experiences to those impacted by mitochondrial disease.

Find out more on our website: https://www.mymitomission.uk/support-us/

Our Trustee Amanda attended an event in September reporting the results of the EMERALD study funded by My Mito Mission a...
23/10/2026

Our Trustee Amanda attended an event in September reporting the results of the EMERALD study funded by My Mito Mission and The Lily Foundation.

Newcastle University brought together participants, families, researchers, patient organisations and hearing technology colleagues to share findings from the pilot study of the Phonak Roger On remote microphone in adults with mitochondrial disease and hearing impairment, hear people’s experiences and feedback, and explore priorities for future research.

Amanda said, "Studies like these are important for our families we support - practical studies with tangible immediate benefits can offer more hope than a hypothetical future research outcome that feels far more remote."

The live illustration of the day which captures it beautifully is attached! Thank you Illustrated Live for this, and credit to Photography By FlyFilms UK for the photo.

Know somebody with motor neurone disease?❓Mitochondrial research could help so many people - not just those with mitocho...
22/10/2026

Know somebody with motor neurone disease?❓

Mitochondrial research could help so many people - not just those with mitochondrial disease.

Find out more on our website: mymitomission.uk

Welcoming Arthur's Mito Mission based in Northampton! ⚡Arthur was diagnosed recently after experiencing swallowing probl...
20/10/2026

Welcoming Arthur's Mito Mission based in Northampton! ⚡

Arthur was diagnosed recently after experiencing swallowing problems, delayed development and balance issues.

"I hope that by sharing his story, we can help others understand more about mitochondrial disease and hopefully, connect with other families who are facing something similar."

You can find out more about Arthur's mission and support him on our website:

https://www.mymitomission.uk/arthurs-mito-mission-northampton/

A big thank you to the lovely lot at Bobtown B**r Bash for their kind donation and hospitality at their presentation eve...
19/10/2026

A big thank you to the lovely lot at Bobtown B**r Bash for their kind donation and hospitality at their presentation evening on Saturday 💚

Our chair and co-founder Christine attended to receive the cheque and speak to their audience about mitochondrial disease, why awareness matters and why donations like this mean so much to us, and to the mito community 👏

Address

C/o Project C**t, Bridgefield Mills
Elland
HX50SQ

Opening Hours

Monday 8:30am - 4:30pm
Tuesday 8:30am - 4:30pm
Wednesday 8:30am - 4:30pm
Thursday 8:30am - 4:30pm
Friday 8:30am - 4:30pm

Telephone

+443001021112

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