FND Action

29/10/2026

Living with Functional Neurological Disorder (FND) can be a very different experience for everyone, but there are often things we wish others understood better.

Whether it's about symptoms, the impact on everyday life, accessing healthcare, or the challenges people don't always see, we would love to hear your thoughts.

💜 Share your answer in the comments below. Your experiences may help others better understand what it's really like to live with FND.

Your responses may also help shape our future awareness and advocacy work, so thank you for sharing! 💜 If we use anything you've shared, we'll make sure no names or personal details are included.

27/10/2026

🏴󠁧󠁢󠁳󠁣󠁴󠁿 NHS Scotland's National Pathway for Functional Neurological Disorder (FND) has been reviewed this month.

The pathway provides publicly accessible information and clinical guidance on FND diagnosis, management and appropriate care.

It's encouraging to see national resources like this available to patients and healthcare professionals.

Wales also introduced its National Optimal Pathway for FND earlier this year, whilst England has taken a significant step forward by formally recognising FND as one of the seven core neurology subspecialties within NHS England's updated service specification.

However, there remains a need for clear, consistent and accessible national FND information across all NHS websites.

National guidance matters. So does making it accessible and ensuring it translates into appropriate healthcare. 💜

https://www.rightdecisions.scot.nhs.uk/neurology-pathways/functional-neurological-disorder-fnd/
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FND (Functional Neurological Disorder) is one of the most common conditions seen in neurological practice, affecting approximately 10,000 people in Scotland. It can manifest as a range of symptoms including functional seizures, impaired mobility/weakness, speech, and movement disorders.

20/10/2026

Functional Neurological Disorder (FND) can affect walking in some extraordinary ways, with unusual gait patterns, twisting, posturing and involuntary movements.

When the brain isn’t sending and coordinating movement signals as it should, it can have a significant impact on someone’s ability to walk.

The encouraging thing is that varying levels of recovery are possible, particularly with access to appropriate specialist care and rehabilitation.

Follow on TikTok as she shares her journey towards walking again. We’re rooting for her and hope she continues to make progress! 💜

19/10/2026

💜 10 years of bringing people together!

Over the past decade, bringing people affected by Functional Neurological Disorder (FND) together has been an important part of FND Action's work.

From developing our online support communities to establishing regional community groups, we've helped create private spaces where people can share experiences, access information and connect with others who understand what living with FND can be like.

None of this would have been possible without the dedication of our volunteers and the thousands of people who have contributed to our communities over the years. Thank you for being part of our journey. 💜

Find out more about our community groups, including how to get involved: https://www.fndaction.org.uk/community-groups/

Looking ahead, our aim is for our community groups to grow into regional branches of FND Action, strengthening our local presence and creating more opportunities for people affected by FND across the UK.

19/10/2026

📌 An important reminder for healthcare professionals and people living with Functional Neurological Disorder (FND).

Having an established FND diagnosis does not mean that every new symptom is necessarily caused by FND.

People living with FND can develop other neurological conditions, illnesses and unrelated health problems, just like anyone else.

For healthcare professionals, it is important to consider new or concerning symptoms on their own clinical merits, rather than automatically attributing them to an existing diagnosis.

For patients, don't feel that you cannot raise new symptoms or seek medical advice simply because you already have an FND diagnosis. You deserve to have your concerns heard and appropriately assessed.

This doesn't mean every symptom requires extensive testing. It means applying the same clinical judgement and standards of care that would be expected for any other patient.

An existing diagnosis should never become a barrier to recognising another condition.

18/10/2026

💜 Invisible Disabilities Week | 18–24 October 2026

Not every disability can be seen, and appearances don't always reflect the difficulties someone may be experiencing.

Functional Neurological Disorder (FND) can cause a wide range of neurological symptoms. Some are clearly visible, whilst others may go unnoticed. These can include fatigue, pain, cognitive difficulties and sensory disturbances.

For some people, their disability may be apparent. For others, it may not be. And for many, this can change from one day to the next.

Invisible Disabilities Week is an opportunity to challenge assumptions about what disability looks like and encourage greater understanding of the experiences of people living with conditions such as FND.

You don't need to see someone's difficulties to recognise and respect them. 💜

17/10/2026

💜 Help us continue making a difference!

For 10 years, FND Action has been supporting people living with Functional Neurological Disorder (FND), raising awareness, sharing trusted information and advocating for better recognition and healthcare.

As a registered charity, we rely on donations and fundraising to keep this work going.

From providing one-to-one support and developing free information resources to supporting community groups, raising awareness and ensuring patient voices are heard through advocacy. Your donations help make our work possible.

Without your generosity, we simply couldn't do what we do.

To mark our 10th anniversary, we're inviting those who can to donate £10 towards our continued work.

📱 Text 10FNDA to 70085 to donate £10.

(Texts cost the donation amount plus one standard network rate message.)

Prefer to give a different amount? You can donate from as little as £1, or find other ways to support us here: https://www.fndaction.org.uk/donate/

Every donation, however small, makes a difference. And if you're unable to donate, sharing our posts is another lovely way to support us.

Thank you for helping us continue to be there for the FND community. 💜

17/10/2026

💜 10 Years of Working Together.

Working together has always been an important part of FND Action's journey. Over the past decade, we've built valuable relationships with specialists, healthcare professionals and organisations who share our commitment to improving understanding and care for Functional Neurological Disorder (FND).

As we mark our 10th anniversary, we would particularly like to recognise three organisations we're proud to be members of:

Functional Neurological Disorder Society - An international organisation advancing FND research, education and clinical care.
https://www.fndsociety.org/

UK FND Network - Bringing together FND charities and healthcare professionals across the UK.
https://ukfndnetwork.org/

The Neurological Alliance - Advocating for better neurological services and care across England.
https://www.neural.org.uk/

A huge thank you to everyone who has worked alongside us over the years and ensured the patient voice has been heard and valued.

We look forward to continuing these collaborations and building new relationships in the years ahead. 💜

16/10/2026

🚨 What should good neurological care look like for people living with FND?

Receiving a diagnosis of Functional Neurological Disorder (FND) should be the beginning of appropriate care and support, not the end of someone's journey through neurology services.

Yet too many people continue to experience gaps in care, limited access to specialist services and uncertainty about where to turn after diagnosis.

Improving FND care isn't just about increasing awareness. It's about ensuring that understanding translates into clinical practice, with clear responsibilities, joined-up services and ongoing access to appropriate healthcare.

People living with FND deserve more than a diagnosis. They deserve a healthcare system that responds to their neurological needs. 💜

16/10/2026

A huge THANK YOU to everyone who has supported FND Action over the past 10 years! 💜

As we mark our 10th anniversary, we want to recognise the incredible generosity of everyone who has helped make our work possible.

Every contribution, large or small, has helped sustain our charity and the work we do for people affected by Functional Neurological Disorder (FND).

As we look towards our next decade, your continued support will help us build on what we've achieved and work towards reaching even more people across the UK.

If you would like to support FND Action, you can donate here: https://www.fndaction.org.uk/donate/

> Or donate £10 by text! <

Text 10FNDA to 70085 to donate £10.

(Texts cost the donation amount plus one standard network rate message)

Thank you for being part of our journey. Here's to the next decade! 💜