FND Action

01/09/2026

Researchers at King's College London are now recruiting for a new study looking at the use of brain-computer interface neurofeedback rehabilitation and VR in people with FND. This will involve attending several face-to-face visits at Denmark Hill over a 2-3 week period. Reasonable travel expenses will be reimbursed.

BRaVE FND study website: https://www.bravefnd.co.uk/

Register your interest in taking part: https://kclbs.eu.qualtrics.com/jfe/form/SV_79TfUQaHjgJNljg

28/08/2026

Sorry sorry sorry to all our supporters who have been trying to donate to our work through Just Giving, the link on our website has been down for a few days........this is now sorted, if you want to help us to help people living with FND or start a fundraiser for our 10th anniversary in October (more details to follow) please follow this link - https://www.justgiving.com/charity/fnd-action every penny you give helps us to do more for the FND community and for people seeking to understand their symptoms - THANK YOU!!!!

11/08/2026

💜 Holly shares her story.

Having people around you who listen, understand and support you can make such a difference when living with FND.

Thank you Holly, for sharing your experience and helping to raise awareness. 💜

https://www.fndaction.org.uk/hollys-story-living-with-fnd/
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Holly shares her experience of living with Functional Neurological Disorder (FND).

04/08/2026

🌟 A little reminder that we have two of our regional community meet-ups this week!

☕️ Hampshire - Tomorrow
☕️ Kent - Friday

Whether you're living with FND, supporting a loved one, or simply looking to connect with others who understand, we would love for you to join us.

If you're not in Hampshire or Kent, you can see all of our current regional community groups here: https://www.fndaction.org.uk/regional-community-groups/

And if there isn't a group near you but you would be interested in helping us start one, we would love to hear from you. Together we can continue building supportive local communities for people affected by FND. 💜

04/08/2026

📣 ** PLEASE NOTE, RECRUITMENT IS CURRENTLY ON HOLD DUE TO OVERWHELMING PARTICIPANT INTEREST **

RESEARCH PARTICIPANTS NEEDED

EngageFND: Enhancing Community OT and Self-Management for FND.

Researchers at University College London (UCL) are looking for adults with FND to take part in the EngageFND study, exploring people's experiences of community-based OT and self-management.

The researchers want to hear about what helped, what didn't, what made therapy easier or harder to engage with, and what support could improve community OT for people with FND in the future.

⬥ Aged 18+ with FND
⬥ Received community-based OT with a rehabilitation component for FND within the last 10 years
⬥ Around 60 minute interview, online or by telephone
⬥ £55 gift card for taking part

Your experiences could help inform how community-based occupational therapy and self-management support for FND are developed in the future.

👇 Full details below:

https://www.fndaction.org.uk/participants-needed-community-occupational-therapy-and-fnd/
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Take part in a UCL research study exploring experiences of community-based occupational therapy and self-management for Functional Neurological Disorder (FND).

23/06/2026

FND can affect anyone, including healthcare professionals. Alicia’s symptoms began suddenly whilst on holiday abroad and within days her life had changed completely.

Her story reflects the uncertainty many people face before receiving a diagnosis, as well as the profound impact FND can have on independence, work and daily life.

💜 Read Alicia’s story below, that she kindly shared for FND Awareness Day UK (25th March).

https://www.fndaction.org.uk/alicias-story-fnd-awareness-day-uk-2026/
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Alicia shares her experience of living with Functional Neurological Disorder (FND) as part of FND Awareness Day UK 2026.

17/06/2026

💜 NEW FREE RESOURCE 💜

Have you ever been asked, “What is FND?” and struggled to know what to say?

Our new What is FND? wallet-sized information cards are designed to help make those conversations a little easier.

These packs of 5 cards provide a simple explanation of FND that can be shared with family, friends, employers, healthcare professionals and others to help improve understanding of the condition.

Small enough to carry in a purse, wallet, phone case or bag, they’re ready to hand over whenever words are hard to find.

Available free of charge from our online shop (standard postage contribution applies).

🛒 https://www.fndaction.org.uk/shop/
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13/06/2026

📢 Contact Your MP About FND

We were pleased to see Functional Neurological Disorder (FND) recently raised in Parliament. Awareness matters, but real change also happens when MPs hear directly from the people they represent.

If you live with FND, care for someone with FND, or have experienced challenges relating to diagnosis, treatment, education, benefits or support, consider writing to your MP and sharing your experiences.

To help you get started, we’ve created a new resource which includes information on how to contact your MP, and guidance on what to include in your letter or email.

Read more here: https://www.fndaction.org.uk/contact-your-mp-about-fnd/

Every conversation helps raise awareness of FND and the impact it has on individuals and families across the UK.

11/06/2026

FND in the news..

Congratulations to Rebecca Stevens on winning the disabled driving championship at the Royal Windsor Horse Show. 🏆

Rebecca, who lives with Functional Neurological Disorder (FND), hopes her story will show others that disabilities do not stop people from achieving their dreams.

FND can present many challenges, but it does not define a person’s ambitions, talents, or potential. We are delighted to see Rebecca’s achievement recognised and wish her every success for the future.

Well done Rebecca, and thank you for helping raise awareness of FND. 💜

https://www.bbc.co.uk/news/articles/c5y7118dp1no

Rebecca Stevens, 28, lives with functional neurological disorder after suffering a mini-stroke.

11/06/2026

📢 Participants Needed: Young People Aged 12–17 with FND and Autism

Researchers at King’s College London are looking for young people aged 12–17 who have both Functional Neurological Disorder (FND) and autism, along with a parent or caregiver, to take part in a research study exploring their experiences.

The study aims to better understand how FND and autism interact and how they impact the lives of young people and their families.

Participants will receive vouchers in recognition of their time.

For more information see: https://www.fndaction.org.uk/participants-needed-young-people-with-fnd-and-autism/
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Young people aged 12–17 with both FND and autism, and one parent/carer, are invited to take part in a King’s College London research study exploring their experiences.