FND Action

11/06/2026

FND in the news..

Congratulations to Rebecca Stevens on winning the disabled driving championship at the Royal Windsor Horse Show. 🏆

Rebecca, who lives with Functional Neurological Disorder (FND), hopes her story will show others that disabilities do not stop people from achieving their dreams.

FND can present many challenges, but it does not define a person’s ambitions, talents, or potential. We are delighted to see Rebecca’s achievement recognised and wish her every success for the future.

Well done Rebecca, and thank you for helping raise awareness of FND. 💜

https://www.bbc.co.uk/news/articles/c5y7118dp1no

Rebecca Stevens, 28, lives with functional neurological disorder after suffering a mini-stroke.

11/06/2026

📢 Participants Needed: Young People Aged 12–17 with FND and Autism

Researchers at King’s College London are looking for young people aged 12–17 who have both Functional Neurological Disorder (FND) and autism, along with a parent or caregiver, to take part in a research study exploring their experiences.

The study aims to better understand how FND and autism interact and how they impact the lives of young people and their families.

Participants will receive vouchers in recognition of their time.

For more information see: https://www.fndaction.org.uk/participants-needed-young-people-with-fnd-and-autism/
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Young people aged 12–17 with both FND and autism, and one parent/carer, are invited to take part in a King’s College London research study exploring their experiences.

10/06/2026

💜 Carers Week 2026 💜

Behind every person living with Functional Neurological Disorder is someone who cares.

This week we recognise and thank the carers, family members, friends and loved ones who provide support, understanding and encouragement every day.

Whether your role is visible or happens quietly behind the scenes, your contribution matters.

Thank you for all that you do.

💜 Is there a carer, family member, friend or loved one who has supported you through FND?

Tag them below or take a moment to tell them how much their support means to you.

07/06/2026

A huge thank you to Sadie, her family and everyone who supported this fantastic charity night and raffle in aid of FND Action. 💜

Inspired by her mum’s journey to an FND diagnosis, Sadie organised an incredible evening of fundraising and community spirit, raising an amazing £1,010 for the charity, which far exceed her original £300 target. ✨

Thank you to everybody who donated, attended and helped make the event such a success. Your support helps us continue raising awareness and supporting people living with Functional Neurological Disorder.

https://www.fndaction.org.uk/sadies-fundraiser-supporting-fnd-action/

Sadie organised a charity night and raffle in support of her mum and FND Action, raising an incredible £1,010 to help raise awareness and support the FND community.

02/06/2026

Heather shared her story for FND Awareness Day UK 💜

"My normal is not most people’s normal but I still feel extremely blessed."

https://www.fndaction.org.uk/heathers-story-fnd-awareness-day-uk-2026/
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Heather shares her experience of their partner living with Functional Neurological Disorder (FND) as part of FND Awareness Day UK 2026.

02/06/2026

“If I could stop my symptoms, I would.”

Many people living with Functional Neurological Disorder spend a great deal of time trying to manage, reduce, adapt to, and cope with their symptoms.

Sometimes the simplest statements say the most. 💜

01/06/2026

This Volunteers’ Week, we would like to say a huge thank you to all of the volunteers who have supported FND Action over the years. 💜

From moderating support groups and helping behind the scenes, to sharing lived experiences, supporting awareness campaigns and fundraising activities, volunteers have played a vital role in helping us support the FND community.

Thank you for being part of our journey. ✨

If you’re interested in volunteering with FND Action, we would love to hear from you.

Find out more here: https://www.fndaction.org.uk/join-us/
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30/05/2026

This video from on TikTok really resonated with us today. 💜

Functional Neurological Disorder can be exhausting, unpredictable, frustrating, and at times overwhelming. Some days simply getting through the day takes more strength than most people will ever see.

But despite the challenges, there can still be moments of gratitude, hope, laughter, and achievement.

Whatever today looked like for you, be proud of what you achieved.

Every step forward counts. 💜

28/05/2026

A fantastic community fundraiser taking place in support of FND Action and FND awareness. 💜⚽

If you’re in the Milton Keynes area, you may want to consider going along to support this great event and check out the amazing raffle prizes kindly donated by local businesses and supporters. ✨

Thank you so much to everybody involved for supporting the FND community. 💜

26/05/2026

Back in March for FND Awareness Day UK, we invited people to share their experiences and messages with others living with Functional Neurological Disorder.

This beautiful submission came from Sofia, aged 15.

We know many young people with FND can feel isolated, misunderstood, or alone whilst trying to navigate school, friendships, symptoms, and everyday life alongside their condition. That’s why messages like this matter so much.

Thank you Sofia for allowing us to share your words. 💜