Spina Bifida Families of Canada

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Spina Bifida Families of Canada SBCAN is a grassroots organization dedicated to supporting people with spina bifida and their families across Canada.

We wish we could have had everyone with us at the International Federation of Spina Bifida & Hydrocephalus' Internationa...
10/26/2026

We wish we could have had everyone with us at the International Federation of Spina Bifida & Hydrocephalus' International Conference in Montreal. We will be sharing our key learnings and information from all of our sessions with our SBCAN Family.

INCORPORATING PROFESSIONALS WITH SPINA BIFIDA IN SPINA BIFIDA CLINICS
Healthcare professionals who live with spina bifida bring both clinical knowledge and personal experience to patient care. This poster explores how their perspectives could strengthen trust, communication and understanding in spina bifida clinics.

BY: MONICA ALBERT STILL, RN BSN
UNIVERSITY OF PITTSBURG

10/25/2026

It’s World Spina Bifida Day!! 🌎💛🩵💛🌎

A spina bifida diagnosis doesn’t come with a manual it comes with a community! Thank you for being part of our community 🩵💛🩵

DAY 2: International Spina Bifida Conference🩵💛🩵💛🩵💛Got to test out some cool gear at TrackZ 🤩This was bbbbbbad to the bon...
10/17/2026

DAY 2: International Spina Bifida Conference
🩵💛🩵💛🩵💛

Got to test out some cool gear at TrackZ 🤩
This was bbbbbbad to the bone 😎
Love that they have the e-wheelchair too 😍

Check out their Instagram TrackZ for more information

Congratulations are in order for our Bursary Winner Hailey ! Wishing Hailey all the best as she tackles her academic goa...
08/18/2026

Congratulations are in order for our Bursary Winner Hailey !

Wishing Hailey all the best as she tackles her academic goals in college this September !

100 KM FOR A PURPOSE 🚴‍♂️💛Pedal 4 Purpose has officially wrapped up, and this year’s ride was one we will never forget.O...
08/03/2026

100 KM FOR A PURPOSE 🚴‍♂️💛

Pedal 4 Purpose has officially wrapped up, and this year’s ride was one we will never forget.

Our riders completed 100 kilometres from Burlington to Niagara. It was challenging, tiring, and a lot of fun. Seeing everyone reach the finish line safely made every kilometre worth it.

Before the ride, the weather forecast was not looking good, and we were honestly worried about everyone’s safety. But God provided us with good weather and safe riding conditions throughout the day. We are truly grateful.

Thank you to PPP, Pinoy Pedal Pushers, for always gearing up with us for this charity ride. Your support and commitment to raising awareness for spina bifida is unmatched.

Thank you to INTEGRATED FILIPINO CANADIAN NURSES ASSOCIATION (IFCNA) for sending volunteers. It was a privilege working alongside these amazing nurses as we made sure our riders were safe and supported throughout the entire ride.

A special thank you to our sponsors, Claudio Rupa of Mortgage Outlet Inc and Catherine Iturralde of Thomas, Efraim LLP, for believing in this cause and helping make this event possible.

We also want to thank our ride marshals, Papi Chef, Papi Jhun Tolentino, Carl Smith and Tia Mazon for guiding the riders and helping keep everyone safe on the road.
To all our sponsors, donors, volunteers, and everyone who shared our posts, thank you. Every donation, every share, and every bit of support helped us bring this ride to life.

Most of all, this ride was for Spina Bifida Families of Canada and all the individuals and families living with spina bifida. We hope this event helped raise more awareness, start more conversations, and remind these families that they are not alone.

The ride may be finished, but the purpose continues.

Every mile matters. Every person makes a difference. 💛

HUGE THANK YOU to our friends at Pinoy Pedal Pushers and RCC -Romeo Chadley Crisostomo Real Estate Group for hosting the...
08/03/2026

HUGE THANK YOU to our friends at Pinoy Pedal Pushers and RCC -Romeo Chadley Crisostomo Real Estate Group for hosting the Annual Pedal 4 Purpose ride for SBCAN. Special thank you to the leaders who organized the event and devoted your time, energy and resources to making the event a success.

We had 32 brave cyclists ride and raise money to support the Canadian Spina Bifida community. They rode over 100 kms from Burlington GO Station to Niagara Falls.

Special THANK YOU to our volunteers who marshalled, volunteered as a medic, and setting up and taking down tents and tables.

THANK YOU to our generous donors and sponsors for supporting the cyclists and the cause.

If you would like to donate, please click on the link below:
https://www.canadahelps.org/en/charities/sbcan/p2p/Pedal4Purpose2026

The clock is ticking !! We can’t wait to cheer with you at the finish line     See SBCAN.ca to donate !!
07/31/2026

The clock is ticking !! We can’t wait to cheer with you at the finish line

See SBCAN.ca to donate !!

New Brunswick!!  We are so lucky to partner with Big D’s Poutine in Saint John NB for our SBCAN picnic . Grab your frien...
07/30/2026

New Brunswick!!

We are so lucky to partner with Big D’s Poutine in Saint John NB for our SBCAN picnic . Grab your friends and your family and come for a bite to eat ! Meet other East Coast families & connect with our Atlantic Canada family

Lunch will be served in a ticket system so meet our members Katrina & Alana to get yours !

Want to continue the fun ? Come join us at the Walk N Roll fundraiser at 11 am as we raise funds for medical travel & bursary’s on Saturday August 15 Big D’s Poutine

August is going to be a busy month ! Join us for an in person event, fundraise by registering for our walk n roll or com...
07/29/2026

August is going to be a busy month ! Join us for an in person event, fundraise by registering for our walk n roll or come dine with us at our SBCAN family picnic

Want to register a team for our walk n roll ? You can join us even if you are not in St. John by following this link
https://www.canadahelps.org/en/charities/sbcan/p2p/WalkNRoll/

walknroll

We have an exciting announcement! Our East Coast picnic is going to have live entertainment!! Join us  and  Zack Ingles ...
07/27/2026

We have an exciting announcement! Our East Coast picnic is going to have live entertainment!!

Join us and Zack Ingles in Saint John New Brunswick Saturday August 15 for our community picnic , bringing Atlantic Canada’s SB families together !

Address

Saint John, NB

Website

https://sbcan.ca/SBCANAnnualReport2022.pdf,

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