Scleroderma Assoc of QLD

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Sunshine Coast, QLD
Scleroderma Assoc of QLD

We are a community of like-minded people supporting each other through our journey with Scleroderma.

We are individuals, partners, parents, children, carers and warriors who share experiences, stories and words of wisdom to support each other.

01/09/2026

SUNSHINE COAST SUPPORT GROUP MEETING

Date & Time: 11 am Thursday 3rd September, 2026
Location: Cafe 63, Shop G03, 53-91 Dalton Drive, Maroochydore, (near Spotlight/Bunnings area)
Contact: Kate on 0407 295 233

Social Support Groups are relaxed, informal gatherings where people living with Scleroderma can connect, share experiences, and build friendships. These meet-ups focus on casual conversation and emotional support in a friendly environment, without structured activities or formal facilitation. New financial members and non-financial members are always welcome, and this is a safe space to bring family and friends who support you.

For more information or to RSVP, call Kate on 0407 295 233

https://scleroderma.org.au/group-meetings/

30/08/2026

Are you an Aboriginal and/or Torres Strait Islander person living with scleroderma?

University of Sydney researchers are studying access to care for people living in regional and remote areas, and whether Aboriginal and Torres Strait Islander people experience different complications or health outcomes.

We hope to speak with Aboriginal and Torres Strait Islander people living with scleroderma and potentially form a reference group. This group would help ensure our research is appropriate, respectful and relevant to First Nations communities.

At this stage, we are seeking expressions of interest only. There is no commitment to participate in research or join a reference group.

If you are interested in hearing more, or would like to have a chat about this, please contact:
Dr Lucinda Roper
PhD student and rheumatology trainee
University of Sydney
[email protected]

28/08/2026

TOOWOOMBA SUPPORT GROUP MEETING

Date & Time: 10 am Saturday 5th September
Location: Burke And Wills Hotel, 554 Ruthven St, Toowoomba
Contact: Claire – 0414 563 979

Social Support Groups are relaxed, informal gatherings where people living with Scleroderma can connect, share experiences, and build friendships. These meet-ups focus on casual conversation and emotional support in a friendly environment, without structured activities or formal facilitation. New financial members and non-financial members are always welcome, and this is a safe space to bring family and friends who support you.

For more information or to RSVP, call Claire on 0414 563 979

https://scleroderma.org.au/group-meetings/

25/08/2026

SAVE THE DATE - ANNUAL AGM & SEMINAR - FRIDAY 27th NOVEMBER

We warmly invite you to join us for an informative and educational session featuring presentations from leading scleroderma medical experts. We look forward to sharing more speaker details later in the year, so stay tuned.

LOCATION
Queensland University of Technology
Kelvin Grove Campus - Brisbane

24/08/2026

Your voice can help shape future access to treatment!

If you or someone you care for is living with pulmonary fibrosis or scleroderma-associated interstitial lung disease (SSc-ILD), now is the time to share your experience!

The Australian Government is seeking patient and carer feedback as part of a consultation on a potential new treatment option. Your lived experience can help decision-makers better understand the challenges of living with these conditions and why timely access to treatment matters.

There are three ways to have your say:
- Share your story through Patient Input Buddy
- Submit your feedback directly to the Pharmaceutical Benefits Advisory Committee (PBAC)
- Contribute to Scleroderma Australia's submission

Every story helps ensure the experiences of people living with pulmonary fibrosis, their families and carers are represented alongside the clinical evidence that informs important healthcare decisions.

📅 Submissions close 16 September 2026.

Learn more about the PBAC consultation:
https://www.sclerodermaaustralia.org.au/pbac.../

20/08/2026

Join our local Mackay group for a friendly get-together TOMORROW at:-

11.30 am Friday 21st August
Location: Shamrock Hotel, Nebo Road
Contact: Kathy - 0412 664 161

https://scleroderma.org.au/group-meetings/

19/08/2026

NORTH BRISBANE SUPPORT GROUP MEETING

Date & Time: 10 am Saturday 22nd August, 2026
Location: Bravo Room, Kedron Wavell Services Club, Kittyhawk Dr, Chermside
Contact: Helen on 0417 072 984

Social Support Groups are relaxed, informal gatherings where people living with Scleroderma can connect, share experiences, and build friendships. These meet-ups focus on casual conversation and emotional support in a friendly environment, without structured activities or formal facilitation. New financial members and non-financial members are always welcome, and this is a safe space to bring family and friends who support you.

For more information or to RSVP, call Helen on 0417 072 984

Address

Sunshine Coast, QLD

Telephone

+61468801021

Website

https://www.scleroderma.org.au/

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