Lupus Foundation of New England

10/12/2026

It can be painful to remember what you once could do and compare it with what lupus allows today. Adjusting your work, your plans, or your expectations can carry a grief that others don’t always see.
You’re allowed to miss that part of your life while finding meaning in the life you’re living now. Your worth has never depended on how much you accomplish. 💜
What helps you feel connected to who you are when lupus changes your pace?

10/10/2026

On World Mental Health Day, we recognize how much living with lupus can ask of you, both physically and emotionally. The uncertainty, changed plans, and pressure to keep going can be exhausting. 💜 Sometimes, caring for your mental health means pausing, listening to your body, and allowing yourself to rest without guilt. You don’t have to reach your breaking point to deserve a break—or support.
What helps you recognize when it’s time to pause?

10/10/2026

Telling family members and friends about lupus isn’t always easy. Some may immediately offer support, while others may struggle to understand an illness they can’t see. Preparing for these conversations can help create understanding while protecting your emotional well-being. Here are more tips and insights:

Explaining a diagnosis to your family may feel overwhelming but with preparation, it can be clear and educational.

10/08/2026

Some days, the hardest part of motherhood with lupus is wanting to give your children more than your body will allow. Missing an outing or needing to rest can bring guilt, even when you know you’re doing your best.
You don’t have to be a perfect mother to be a loving, present one. On the easy days and the hard ones, listening to their stories, holding them close, and making sure they feel loved matters. 💜
What do you wish another mom living with lupus knew on the days she feels she isn’t doing enough?

10/08/2026

Come on out with your best purple outfit for the Boston Purple Pumpkin 5K & Walk. Register here"

The Boston Purple Pumpkin 5K and Walk is on Sunday October 25, 2026.

10/06/2026

If your lab results could hear you, what would you want them to know about your daily life with lupus? 💜 Tell us which symptom deserves more attention and what it makes harder for you.

10/05/2026

Lupus Science News: Every patient evaluated in a small early-stage lupus trial has stopped taking immunosuppressant drugs after a single infusion of an experimental donor-derived cell therapy, Adicet Bio reported on Sept. 28. More than half of the patients followed for a full year met a standard definition of remission. Read more here:

Lupus patients in a small CAR-T trial stopped immunosuppressants after one infusion. The therapy is experimental and not yet in a pivotal study.

10/03/2026

Don't miss the Spooktaculous Boston Purple Pumpkin 5k & Walk on Oct 25, 2026 at Artesani Park in Brighton. Sign up here: https://runsignup.com/Race/MA/Brighton/BostonPurplePumpkin5KAndWalk

10/03/2026

Fall is here 🍂 As the leaves change and routines shift, how are you feeling? Whether you’re welcoming cooler days or finding this transition tough, there’s no “right” way to feel. Give yourself room to adjust and let your care team know about new or worsening symptoms. 💜
What does the move into fall look like for you? Share below; we’d love to hear.

10/01/2026

Canceled plans. A day on the couch. Symptoms you hoped would stay quiet. Hard lupus days can feel discouraging but remember you haven’t failed, and your progress still counts. Today can be a rest day and that's okay💜