Lupus Foundation of New England

06/19/2026

At EULAR last week, Europe's largest Rheumatology conference, exciting and positive data was released regarding twopotential future lupus medications:

For one of the two, the benefits continue long after treatment stops

06/17/2026

One of the cruelest things lupus can steal isn't just our energy, it's the enormous guilt it can make us feel when we can't do some of the things we used to. If you've ever felt guilty for resting, canceling plans, saying no, or just needing help, this Lupus Lowdown is for you.

06/16/2026

We live in a world that often judges people by what it can see. But some of life's heaviest burdens are completely invisible. The person smiling beside you, showing up to work, caring for their family, or posting happy photos online may also be managing pain, fatigue, fear, medical appointments, medication side effects, or a disease you can't see. Before judging someone's limitations, appearance, or choices, remember: you rarely know the full story. Today, let's choose curiosity over assumptions, compassion over judgment, and understanding over skepticism.

06/15/2026

The sun hits everyone...it just doesn't affect them in the same way. For someone with lupus, UV exposure can do far more than cause skin redness. It may trigger immune activation, inflammation, fatigue, headaches, rashes, joint pain, and disease flares. That's why sun protection isn't about vanity, avoiding the outdoors, or being overly cautious; it's about understanding what the UV light is actually doing and helping your immune system.
☀️ Swipe through to learn what UV light actually does inside the body and how to better protect yourself.

06/12/2026

How sexism in medicine continues to endanger women’s health: "Women were viewed as emotional to the extent that female 'hysteria' was in the Diagnostic and Statistical Manual of Mental Disorders until 1980," says Elizabeth Comen.

Radcliffe symposium explores persistent bias in care today, from marginalizing heart disease symptoms to over-diagnosing anxiety.

06/11/2026

Skin symptoms are among the most common manifestations of lupus, affecting an estimated two-thirds of patients at some point during their disease journey. ✋Because UV exposure can trigger both skin symptoms and systemic flares, protecting your skin is an important part of managing lupus. Awareness of changes in your skin can also help you recognize when disease activity may be increasing. 👉 Have you noticed certain triggers that make your skin symptoms worse?

06/11/2026

Let's be honest: lupus can be hard on more than just the body. It can chip away at your confidence, make you question yourself, and leave you feeling like you're fighting battles no one else can see. If you're having one of those days, these are the reminders we hope you'll hold onto tightly. 💜

06/09/2026

"Nationwide, more than 80% of patients living with autoimmune disorders are women, yet doctors and scientists don’t fully understand why. This gap leads to challenges in prevention, timely diagnosis, and effective treatment."

Nationwide, more than 80% of patients living with autoimmune disorders are women, yet doctors and scientists don’t fully understand why. This gap leads to

06/08/2026

Sleep isn't a luxury when you have lupus; it's one of the body's most important repair systems. 👉Unfortunately, lupus can make quality sleep harder to achieve through pain, inflammation, anxiety, hormonal changes, medication side effects, and fatigue itself. While sleep may not solve everything, protecting your rest can play an important role in supporting your immune system, energy levels, cognition, and overall well-being.
💜 What have you found that helps you get better sleep when lupus is making it difficult?

06/05/2026

Let's normalize talking about the fact that lupus doesn't just affect joints, kidneys, skin, or bloodwork...it can also affect your peace of mind. Living in a body that changes without warning can be exhausting. If you've ever felt anxious, emotionally drained, frustrated, or like you're grieving the life you thought you'd have, you are not alone.
👉 What's one thing you wish more people understood about the mental health side of chronic illness?