Communication First

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Communication First Disability-led nonprofit advancing the civil rights of people who need and use AAC. Access. Opportunity. Justice.

Proposed changes to the National Health Interview Survey would make it harder for AAC users & other disabled people to t...
10/12/2026

Proposed changes to the National Health Interview Survey would make it harder for AAC users & other disabled people to take this key survey & be counted: https://lnk.to/nhis. The NHIS can’t serve its purpose if it doesn't accurately count us! Comments due to the CDC 10/19.

📸 Photo by Jordan Nicholson for Disability:IN

[Image: Two disabled people converse and sit across from each other at a table with pens and notebooks on top of it. One uses a power wheelchair; a tablet is on the table in front of them.]

Our movement is 7 years strong! Let’s all keep fighting for everyone with communication access needs due to aphasia, ALS...
10/08/2026

Our movement is 7 years strong! Let’s all keep fighting for everyone with communication access needs due to aphasia, ALS, autism, TBI, Parkinson’s, Cerebral Palsy, & other causes. Please help us meet our birthday goal before the end of the day on 10/9! http://lnk.to/C1hbd7

[Image: A 7-shaped balloon & the words “We’re SEVEN” within a circle. Set against CommunicationFIRST blue, confetti floats in the background.]

AAC users and other disabled people could face serious consequences as the FCC rethinks funding for schools' and librari...
10/04/2026

AAC users and other disabled people could face serious consequences as the FCC rethinks funding for schools' and libraries' telecommunications and information services. Comment on screen time limits, restrictions on devices, and more by Tuesday, 10/13: https://lnk.to/e-rate.

[Image: A disabled girl types on her tablet while sitting on a couch with her mother who happily looks at the screen.]

10/04/2026

📣Register for the latest edition of the Disability Power Series!

Join us for a Disability Power Series conversation featuring Jordyn Zimmerman, who will share about her journey as a non-speaking autistic self-advocate., Jordyn will take part in an engaging conversation that touches on her experience being segregated and denied access to effective augmentative communication until the age of 18. From advocating across the government, to acting as the chair of a non-profit, and working across the education and technology sectors, she’s now using her voice to make change. Lauren Schrero, a 2026 Fellow and former colleague of Zimmerman, will be moderating this powerful conversation.

Event Details
Date: Tuesday, October 20
Time: 4:00 – 5:00 p.m. CT/ 5:00 – 6:00 p.m. ET
Location: Virtual (Zoom)
Price: Free

ASL and CART will be provided during this virtual program.

👉Register here: https://www.disabilitylead.org/events/dps-jordyn-zimmerman

Strengthen the 1st national movement to protect and defend our rights as people with speech-related disabilities! Please...
09/30/2026

Strengthen the 1st national movement to protect and defend our rights as people with speech-related disabilities! Please share this and donate to our birthday fundraiser before 10/9: http://lnk.to/C1hbd7. Every way you support our community of AAC users is so appreciated.

[Image: A blue balloon, the words “Celebrating 7 Years!,” and the CommunicationFIRST logo and tagline: “Because communication is a human right.”]

09/29/2026

As a child, I was labeled “nonverbal” until I was eight years old. I also couldn’t read until I was nine. I couldn’t spell, read, or communicate what I needed in class. My apraxia affected my speech and movement throughout my body & not just my spoken speech. I didn’t yet have the words to explain why some things were so hard for me.

I still remember my second-grade teacher punching my desk.

I was trying to spell words on paper. I couldn’t make my body do what I wanted, and I didn’t understand how to spell the words. I couldn’t read yet, and I couldn’t explain what was happening or ask for help. I wanted help. I was trying to speak to him, but he became impatient. His eyes widened. Then he got angry and punched my desk.

I was a child, and I was scared. I ran.

I locked myself in the bathroom and cried for an hour. I was having an asthma attack. When my mom arrived, I wouldn’t answer the door at first. Then I heard her say, “Jordan, it’s Mom,” a few times. I ran out and hugged her leg.

My mom told my teacher she knew something had happened, even though she didn’t yet know what. He lied about it. My mom took me home, figured out what had happened, escalated the situation, filed a complaint, and contacted the state. She did what she could to make things right.

I didn’t write about this in The Boy Who Proved Them Wrong, my second children’s book about growing up nonspeaking. It was too painful to put on the page. Even in that book, there are things that happened behind the scenes. I also wrote an letter for the second book for my second-grade speech-language pathologist, who told my mom in front of me that I would never speak on my own. I never published it. It’s still in my drafts.

I look back on that day and think about how often my struggle to communicate was mistaken for defiance or noncompliance. I wasn’t choosing not to do the work. I was trying, but I didn’t yet know how to read, spell, or explain what I needed. Somehow, the lack of access was blamed on me instead of on an environment that didn’t understand or support me. People saw that I couldn’t speak and assumed I couldn’t understand or think. They were wrong.

This was never a choice. It isn’t a choice for people living with childhood apraxia of speech or apraxia that affects movement throughout the body.

I’m sharing this because children who are nonspeaking or have difficulty communicating may not be able to tell adults what happened in the way adults expect. Sometimes distress is the only way a child can show that something is wrong. Please don’t mistake silence for a lack of understanding, or difficulty communicating for defiance. Be patient. Find another way to listen.

I wish the adults around me had understood how hard I was trying. Every child deserves to feel safe, believed, and supported, even when they can’t explain what they’re going through with words.

Today, I’ve written five children’s books about my childhood growing up "nonverbal." When I was a child, I searched for myself in books. I wanted other kids to find that kind of representation, too. Now, children bring my books to the first day of class, carry them everywhere, sleep with them under their pillows, or tell me, “He’s just like me.”

That’s why I keep telling my story.

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Support AAPD’s efforts to improve services for people with health conditions, changing bodies, or changing minds. Take a...
09/27/2026

Support AAPD’s efforts to improve services for people with health conditions, changing bodies, or changing minds. Take a 10-minute survey by Oct. 9: lnk.to/AAPDCI. It's available in English, Spanish, Easy-Read, & ASL/Audio-Described. AAC users’ perspectives are needed!

[Image: Two photos of disabled people gathered together in groups, engaging with each other. A third photo features a disabled person looking to the side while resting their hands on a cane. Below the photos are large words that say “Share your voice! Community Input Survey.” Blue, purple, and green decorative elements make up the background.]

American Association of People with Disabilities

09/24/2026
09/23/2026

Community drives every movement and every moment. We share information, resources, and our experiences. In the spirit of sharing, we’re raising $20k to celebrate our 7th birthday and keep fighting together for communication rights. Please donate by 10/9! https://lnk.to/C1hbd7

[Video: Late CommunicationFIRST Advisory Council Member Alice Wong, wearing bright red lipstick, with abstract art behind her. She says, “Communication access was one of my earliest priorities, and I texted friends for recommendations from the hospital before I was discharged. A friend connected me to CommunicationFIRST, and one person from the organization suggested a text to speech app that I am currently using.”]

Address

1629 K Street, NW, Suite 300
Washington D.C., DC
20006

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