Values
Inclusiveness - We operate transparently and maximize stakeholder participation. Trust - Individually and collectively, we are reliable partners in managing, conducting and sharing research. Impact - We focus on activities of greatest significance to our stakeholders. Innovation - We continuously look for ways to improve our research and operations. Guiding Principles
CARRA and its member
s will:
Support studies that can help build an evidence base for effective care for children with rheumatic disease
Give priority to investigator-initiated protocols
Assign priority for research development on the basis of scientific merit and impact
Commit to enrolling patients in research studies
Institute transparent and clearly articulated operating principles, including organizational structure, governance, protocol selection, protocol development, and publication mechanisms
Elect alliance leadership in a democratic fashion
Ensure high standards of performance, accountability, and ethics for members
Develop and provide resources to centers and investigators to maximize participation in research studies
Encourage and support inclusion of epidemiologic and translational research in association with clinical studies
Embrace data sharing and dissemination of results as a core principle
Commit to developing protocols for all rheumatic diseases of childhood
Respond rapidly to funding opportunities
Foster relationships with members of other organizations who support CARRA’s mission and vision
