Hemophilia Federation of America

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Hemophilia Federation of America Hemophilia Federation of America is a national nonprofit organization that assists and advocates for the bleeding disorders community.

Continuamos celebrando el Mes de la Herencia Hispana con una oportunidad para aprender juntos. ❤️Acompáñanos el 21 de oc...
10/15/2026

Continuamos celebrando el Mes de la Herencia Hispana con una oportunidad para aprender juntos. ❤️

Acompáñanos el 21 de octubre a las 8:00 p.m. ET para:
Desórdenes de Sangrado y sus Cuidados en las Diferentes Etapas de la Vida
Transición, necesidades y desafíos en las diferentes etapas de la vida cuando existe una condición de sangrado.

Con la Dra. Leslie A. Soto Vélez, Directora del Centro de Hemofilia de Puerto Rico y del Programa de Enfermedades Hereditarias y Cernimiento Neonatal.

📅 21 de octubre
⏰ 8:00 p.m. ET
🔗 Más información y registro:
https://buff.ly/dFFvknU

🩸 Missed Part 1? Watch the recording!Your voice matters, and advocacy starts with you!If you missed our Your Voice Matte...
10/15/2026

🩸 Missed Part 1? Watch the recording!

Your voice matters, and advocacy starts with you!

If you missed our Your Voice Matters: Advocacy Basics for the Bleeding Disorders Community webinar, the recording is now available. Learn how your experiences and stories can help make a difference for the bleeding disorders community.

🎥 Watch Part 1: https://buff.ly/bh54QRX

📅 Ready for the next step? Join us on October 27 for Part 2: From Story to Action! Build on what you've learned and explore how to turn your lived experiences into meaningful advocacy.

🔗 Register for Part 2: https://buff.ly/y4twT6k

You don't have to be an expert to be an advocate. Your voice matters!

🎓 Scholar Spotlight: Ivan Rivera Diaz!Congratulations to Ivan, one of six recipients of the 2026 CVS Eric Delson Scholar...
10/15/2026

🎓 Scholar Spotlight: Ivan Rivera Diaz!

Congratulations to Ivan, one of six recipients of the 2026 CVS Eric Delson Scholarship!

A student at Cupeyville School in San Juan, Puerto Rico, Ivan plans to pursue engineering after high school.

Driven by curiosity about how things work and a passion for solving problems, Ivan continues working toward his goals while living with hemophilia.

We're excited to celebrate his achievements and look forward to seeing where his journey takes him!

Congratulations, Ivan!

Meet all six scholarship recipients: https://buff.ly/DJvDbZ6

🎓 Scholar Spotlight: Emily Alvarez Huerta!Congratulations to Emily, a 2026 CVS Eric Delson Scholarship recipient!A kines...
10/14/2026

🎓 Scholar Spotlight: Emily Alvarez Huerta!

Congratulations to Emily, a 2026 CVS Eric Delson Scholarship recipient!

A kinesiology major and former collegiate soccer player at Fresno Pacific University, Emily hopes to become the first person in her family to earn a doctorate and pursue a career as a physical therapist.

After being diagnosed with von Willebrand disease in high school, Emily found additional motivation to help others overcome physical and mobility challenges.

We're excited to celebrate her accomplishments and the determination behind her goals.

Congratulations, Emily! ❤️

Meet all six scholarship recipients: https://buff.ly/DJvDbZ6

🗳️ MEMBER ORGANIZATION SPOTLIGHT: Michigan Voter Resources!Michigan community members, have you made your voting plan fo...
10/13/2026

🗳️ MEMBER ORGANIZATION SPOTLIGHT: Michigan Voter Resources!

Michigan community members, have you made your voting plan for the November election?

Our friends at the Hemophilia Foundation of Michigan (HFM) have shared helpful resources to make voting information easier to access, including voter registration, early and absentee voting, and accessible voting options.

📅 Important Michigan election dates:
🔹 Oct. 19 – Deadline to register online or by mail
🔹 Oct. 24–Nov. 1 – Statewide early voting period (some communities offer additional days)
🔹 Nov. 3 – Election Day! Eligible voters can register in person at their local clerk's office through Election Day with proof of residency.

🔗 Michigan voter registration, polling locations, and ballot information:
https://buff.ly/40XImZx

🔗 Accessible voting information:
https://buff.ly/q4cAFQE

Thank you to the Hemophilia Foundation of Michigan for sharing these valuable resources and helping our community stay informed!

📍 Not in Michigan? Find voter registration information for your state at:
https://vote.gov/

🎓 Scholar Spotlight: Luke Luckey!Congratulations to Luke, a 2026 CVS Eric Delson Scholarship recipient!A second-year med...
10/13/2026

🎓 Scholar Spotlight: Luke Luckey!

Congratulations to Luke, a 2026 CVS Eric Delson Scholarship recipient!

A second-year medical student at Central Michigan University, Luke hopes to become an adult hematologist and eventually practice at the same Hemophilia Treatment Center that cared for him as a child.

His journey is a reminder of the lasting impact compassionate care can have and how personal experiences can inspire the next generation of healthcare professionals.

Congratulations, Luke! ❤️

Meet all six scholarship recipients: https://buff.ly/DJvDbZ6

🩸 TOMORROW NIGHT! Your voice matters!Have you ever wanted to get involved in advocacy but weren't sure where to start?Jo...
10/12/2026

🩸 TOMORROW NIGHT! Your voice matters!

Have you ever wanted to get involved in advocacy but weren't sure where to start?

Join HFA tomorrow at 7 p.m. ET for Your Voice Matters: Advocacy Basics for the Bleeding Disorders Community!

This webinar is the first in a two-part series designed to help you understand the power of your voice and lived experience, build confidence in sharing your story, and discover practical ways to get involved.

Together, we'll explore:
📣 What it means to be an advocate
💬 The difference between advocacy and lobbying
🩸 HFA's Five Pillars and how they connect lived experiences to public policy
🤝 Ways to get involved through HFA's Bleeding Disorders Advocacy Network

You don't have to be an expert to be an advocate. Your experiences matter, and HFA is here to help you take that first step!

📅 Tomorrow, Oct. 13
⏰ 7 p.m. ET

🔗 Register: https://buff.ly/MZPY4pQ

Thank you to our sponsor, Sanofi.

HFA's Advocacy Director, Ray Riordan, spent the weekend in Myrtle Beach at the Bleeding Disorders Association of South C...
10/12/2026

HFA's Advocacy Director, Ray Riordan, spent the weekend in Myrtle Beach at the Bleeding Disorders Association of South Carolina annual FAMS Conference!

Ray presented on both Saturday and Sunday, connecting with community members and sharing information to help strengthen advocacy efforts in the bleeding disorders community.

Thank you to the Bleeding Disorders Association of South Carolina for bringing the community together for a weekend of learning, connection, and advocacy!

🎓 Scholar Spotlight: Christopher Ambrosio!Congratulations to Christopher, a 2026 CVS Eric Delson Scholarship recipient!C...
10/12/2026

🎓 Scholar Spotlight: Christopher Ambrosio!

Congratulations to Christopher, a 2026 CVS Eric Delson Scholarship recipient!

Christopher is studying at King's College with the goal of becoming a physician assistant.

Motivated by his experiences with bleeding disorders, he hopes to help close gaps in hemophilia care and improve access to support for families affected by bleeding disorders.

We're proud to celebrate students like Christopher who are pursuing careers that can make a meaningful difference in our community.

Congratulations, Christopher!

Meet all six scholarship recipients: https://buff.ly/DJvDbZ6

10/10/2026

🩸 Understanding your bleeding disorder is an important part of advocating for your health.

Living with a bleeding disorder often means navigating complex information, from understanding your diagnosis and treatment options to recognizing a bleed and knowing how to communicate your needs in an emergency.

This Health Literacy Month, we're sharing an important reminder through Beyond the Bleed: You deserve health information that makes sense to you.

💬 Ask questions.
💬 Seek clarification.
💬 Speak up when something isn't clear.

You don't have to understand everything the first time it's explained. Having the information and confidence to participate in your care matters.

🎥 Watch our Beyond the Bleed reel and help us spread the word about the importance of health literacy in the bleeding disorders community!

Address

999 N. Capitol Street NE, Suite 301
Washington D.C., DC
20002

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+12026756984

Website

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