Hemophilia Federation of America

Hemophilia Federation of America Hemophilia Federation of America is a national nonprofit organization that assists and advocates for the bleeding disorders community.

People with hemophilia say they're satisfied with treatment, but they also want more.A recent global survey from Pfizer ...
08/28/2026

People with hemophilia say they're satisfied with treatment, but they also want more.

A recent global survey from Pfizer and The Harris Poll explored what matters most to people living with hemophilia. While many participants reported satisfaction with their current treatment, they also highlighted opportunities for improvement, including:
🕒 More spontaneity
❤️ Better quality of life
🩸 Better vein access

Read our summary of the survey findings and what they could mean for the future of hemophilia care.

🔗 https://buff.ly/pfX4D2i

08/26/2026

Every woman deserves to be heard.

On Women's Equality Day, we're proud to share Gabrielle Flores' story. Living with an ultra-rare platelet disorder, Gabrielle understands the challenges women can face when they aren't part of the conversation.

Today, she uses her voice to advocate for greater awareness, better representation, and a stronger future for women with bleeding disorders.

Thank you, Gabrielle, for sharing your story and reminding us why every voice matters.

🎥 Watch her Community Spotlight below.

Medicare can be complicated, but understanding your coverage doesn't have to be.Join us on September 15 at 7:00 p.m. ET ...
08/26/2026

Medicare can be complicated, but understanding your coverage doesn't have to be.

Join us on September 15 at 7:00 p.m. ET for a free webinar with Rachel Madley, PhD, Executive Director of the Center for Health and Democracy and former health policy advisor to Congress and the FDA.

Together, we'll explore:
✔️ How Medicare is structured
✔️ Traditional Medicare vs. Medicare Advantage
✔️ How coverage choices can affect access to specialty care, prescription drugs, and out-of-network providers
✔️ Policy changes that could improve affordability, access, and continuity of care for people with bleeding disorders

Whether you're enrolled in Medicare, approaching eligibility, or helping a loved one navigate coverage, this webinar will provide practical, patient-centered information.

📅 September 15
🕖 7:00 p.m. ET

Register today:
🔗 https://buff.ly/gI71QbU

🍎📚 ¡Mañana! Hablando Contigo del Mes de AgostoEn el mes de Agosto termina el verano y comienza la preparación para el in...
08/25/2026

🍎📚 ¡Mañana! Hablando Contigo del Mes de Agosto

En el mes de Agosto termina el verano y comienza la preparación para el inicio de la escuela, la universidad o el regreso a nuestros trabajos después de unas merecidas vacaciones. Además, comenzamos a organizarnos para adaptarnos nuevamente a la rutina diaria. A su vez, nos preparamos para comenzar a trabajar en las metas que tenemos de lograr una buena alimentación y rutina de ejercicios.

Únete a nuestro encuentro mañana y hablemos de cómo nos preparamos para comenzar a establecer rutinas diarias, metas de alimentación y ejercicios para lograr una vida sana cuando tenemos una condición de sangrado.

🗓 Miércoles, 26 de agosto
🕗 8:00 p.m. ET

¡Te esperamos!

🔗 https://buff.ly/VbZK0nF

🧬 Medical NewsGene therapy continues to be an important topic in hemophilia care. While the gene therapy market has chan...
08/25/2026

🧬 Medical News

Gene therapy continues to be an important topic in hemophilia care. While the gene therapy market has changed in 2026, hematologists continue to view it as an important treatment option.

Read our latest Industry & Medical News update to learn more.

🔗 https://buff.ly/o4rCHIN

📚 Back-to-school season comes with plenty of questions, and we're here to help.Whether you're preparing an Individualize...
08/21/2026

📚 Back-to-school season comes with plenty of questions, and we're here to help.

Whether you're preparing an Individualized Healthcare Plan (IHP), learning about 504 Plans and IEPs, or talking with teachers and school staff, our Back-to-School resources can help you feel more prepared for the school year ahead.

Find answers to common questions and explore helpful tools, articles, videos, and templates.

🔗 https://buff.ly/7NM38ct

Today, we celebrate the older adults in the bleeding disorders community.Thank you for your wisdom, resilience, advocacy...
08/21/2026

Today, we celebrate the older adults in the bleeding disorders community.

Thank you for your wisdom, resilience, advocacy, and the stories you've shared with generations of families. Your experiences continue to strengthen our community and inspire future generations.

Happy National Senior Citizens Day! ❤️

💡 Did you know?An Individualized Healthcare Plan (IHP), 504 Plan, and Individualized Education Program (IEP) each serve ...
08/19/2026

💡 Did you know?

An Individualized Healthcare Plan (IHP), 504 Plan, and Individualized Education Program (IEP) each serve a different purpose in helping students with bleeding disorders succeed at school.

Understanding the differences can help you advocate for the support your child needs throughout the school year.

📺 Watch the full recording of our Back-to-School Success webinar on YouTube to learn about school plans, accommodations, communicating with school staff, and more.

▶️ Watch now: https://buff.ly/rnhLZYN

🍎📚 Hablando Contigo: Conversación de AgostoEl verano está llegando a su fin y comenzamos una nueva etapa llena de oportu...
08/19/2026

🍎📚 Hablando Contigo: Conversación de Agosto

El verano está llegando a su fin y comenzamos una nueva etapa llena de oportunidades. Ya sea el regreso a la escuela, la universidad o al trabajo después de unas merecidas vacaciones, este es el momento perfecto para retomar nuestras rutinas y cuidar de nuestra salud.

Acompáñanos en nuestro encuentro mensual de Hablando Contigo mientras conversamos sobre cómo establecer hábitos saludables de alimentación, incorporar el ejercicio a nuestra vida diaria y crear rutinas que nos ayuden a vivir mejor cuando tenemos una condición de sangrado.

💬 Compartiremos ideas, experiencias y consejos prácticos para comenzar esta nueva temporada con confianza.

🗓 Miércoles, 26 de agosto
🕗 8:00 p.m. ET

¡Te esperamos!

🔗 Regístrate aquí: https://buff.ly/OIIiAFB

📚 There's still time to join us!A new school year brings new opportunities—and new questions for families of children wi...
08/18/2026

📚 There's still time to join us!

A new school year brings new opportunities—and new questions for families of children with bleeding disorders.

Join us tonight for Back-to-School Success: Tips for Parents of Children with Bleeding Disorders, where we'll share practical guidance on communicating with school staff, understanding school accommodations, emergency planning, and helping your child start the school year with confidence.

🗓️ Tonight
⏰ 7:00–8:00 p.m. ET

Register here:
🔗 https://buff.ly/3ujOZOc

We hope to see you there!

Address

999 N. Capitol Street NE, Suite 301
Washington D.C., DC
20002

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+12026756984

Website

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