Undiagnosed Diseases Network Foundation

Undiagnosed Diseases Network Foundation Improving access to diagnosis, research, and care for all with undiagnosed and ultra-rare conditions.

You have the chance to change the future for the 25 million Americans living with rare, undiagnosed diseases. We are loo...
06/03/2026

You have the chance to change the future for the 25 million Americans living with rare, undiagnosed diseases. We are looking for 50 champions to lead fundraising efforts as part of our "Undiagnosed. United. Unstoppable." campaign.

Join the 14 people who already jumped in and are off and fundraising or make a donation. https://givebutter.com/UDNF2026

When you are living undiagnosed it can be hard to find community. However, while the symptoms vary widely, the journeys overlap. Through the UDNF, patients and their families are able to connect with others who not only see but understand their experiences. This validation has dramatically changed lives. The UDNF made that happen.

Get ready for hot, sunny days ahead with a UDNF hat! 🛍 All proceeds support the Undiagnosed Diseases Network Foundation ...
06/02/2026

Get ready for hot, sunny days ahead with a UDNF hat!

🛍 All proceeds support the Undiagnosed Diseases Network Foundation to realize a world where no family with an undiagnosed or ultra-rare condition has to fight alone for a diagnosis, research, treatment or support.

https://www.bonfire.com/store/udnf/

🎓 Graduation season is here — a time when families celebrate their kids taking their next big step.But for millions of f...
06/01/2026

🎓 Graduation season is here — a time when families celebrate their kids taking their next big step.

But for millions of families, there's a different kind of milestone they're desperately waiting for: a diagnosis.

Without answers, life's next steps are put on hold. Dreams get deferred. Futures feel uncertain.

This season, help us make sure every family gets their moment. Because a diagnosis isn't just a medical term. It's a door opening. It's a future returning.

Donate today and help more families move forward. 💛 https://givebutter.com/UDNF2026/

05/29/2026

Today is a great day to change the future for the 25 million Americans living with rare, undiagnosed diseases. We are looking for 50 champions to lead fundraising efforts as part of our "Undiagnosed. United. Unstoppable." campaign.

Join the 14 people who already jumped in and are off and fundraising or give a one-time donation. https://givebutter.com/UDNF2026

Validation and Awareness were the first step - one we accomplished last month on Capitol Hill. Funding is the second. Future federal funding for the Undiagnosed Diseases Network (UDN) will be decided within the next six months, giving us only a few months to secure the UDN’s position in future budgets.

We proved we could impact federal policy, now help us ensure that the UDN and the UDNF’s programming and research remains a priority until the diagnostic odyssey is ended for all.

Hear here from our amazing community and the impact your support can provide.

05/28/2026

You have the chance to change the future for the 25 million Americans living with rare, undiagnosed diseases. We are looking for 50 champions to lead fundraising efforts as part of our "Undiagnosed. United. Unstoppable." campaign.

Join the 13 people who already jumped in and are off and fundraising. https://givebutter.com/UDNF2026

When you are living undiagnosed it can be hard to find community. However, while the symptoms vary widely, the journeys overlap. Through the UDNF, patients and their families are able to connect with others who not only see but understand their experiences. This validation has dramatically changed lives. The UDNF made that happen.

Hear here from our amazing community and the impact your support can provide.

04/30/2026

As Undiagnosed Month comes to a close, we look back with appreciation, excitement (and exhaustion) on what this community accomplished together!

➡️30 advocates took 28 meetings on Capitol Hill for the first-ever Action for the Undiagnosed
➡️Community-driven panel brought the "why" and solutions to UDN Undiagnosed Diseases Symposium
➡️UDNF celebrated Undiagnosed Day with a virtual event sharing knowledge and ideas for impact
➡️Our champions in Congress introduced a resolution to recognize Undiagnosed Month

We are just getting started! Join in!

Support this work to keep the momentum: https://givebutter.com/UDNFUndiagnosed2026

Today is Undiagnosed Day and we have big news to share!Our champions in Congress introduced a resolution to recognize Un...
04/29/2026

Today is Undiagnosed Day and we have big news to share!

Our champions in Congress introduced a resolution to recognize Undiagnosed Month - which will not only bring awareness but will drive progress, ensuring that the research, diagnostic, and care needs for this community are understood and addressed.

Ask your Member of Congress to sign on!

https://pocan.house.gov/media-center/press-releases/pocan-cline-introduce-resolution-recognizing-april-undiagnosed

""Every patient and family deserves the dignity of feeling heard, respected and cared for, including those living with an undiagnosed condition." - Danielle Carnival, Ph.D., CEO, UDNF

Undiagnosed Day is tomorrow - REGISTER NOW!Join us for Undiagnosed Day 2026 - a virtual community event on Wednesday, Ap...
04/28/2026

Undiagnosed Day is tomorrow - REGISTER NOW!

Join us for Undiagnosed Day 2026 - a virtual community event on Wednesday, April 29.

www.udnf.org/udnfundiagnosedday2026 (link in comments)

Come for the community, stay for the knowledge sharing and generation of ideas for action.

Address

1012 14th Street NW Ste 500
Washington D.C., DC
20005

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+12025994465

Website

Alerts

Be the first to know and let us send you an email when Undiagnosed Diseases Network Foundation posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Organization

Send a message to Undiagnosed Diseases Network Foundation:

Shortcuts

Featured

Share

Category