The National TBI Registry Coalition

04/02/2024

NTRC was represented last month at the MTEC State of the Technology Meeting: Neurotrauma Diagnosis, Monitoring, and Assessment.

It was great to catch up with Kevin Pearce, co-founder of NTRC member LoveYourBrain. The organization is doing outstanding things to achieve its mission to improve the quality of life of people affected by traumatic brain injury and raise awareness about the importance of brain health.

04/01/2024

Thanks to North American Brain Injury Society for an outstanding Conference on Brain Injury last week in Las Vegas. Events like these are so important to bring together medical professionals and others with an interest in TBI to share information, network and lead the way forward.

Many Thanks to all the Supporters and Exhibitors of . See you all in Montreal next year!

03/26/2024

We’re excited for the ACRM - American Congress of Rehabilitation Medicine Spring Meeting next month in Dallas.

If you’re attending, you can look forward to the ACRM Training Institute, providing rehabilitation researchers and clinicians seeking CME/CEUs with exciting opportunities for in-depth training and the translation of evidence-based knowledge into clinical practice.

It’s also a venue for networking and collaborating within the ACRM interdisciplinary community groups and committees.

If you haven’t registered yet, now is the time …
https://springmeeting.acrm.org/

03/20/2024

Isolation. Frustration. The emotional rollercoaster that follows the physical trauma of a brain injury. This side of the story is often overlooked, so we’re excited to share the latest ASHA Voices podcast from the American Speech-Language-Hearing Association.

Jerry Hoepner, a professor in the Department of Communication Sciences and Disorders at the University of Wisconsin–Eau Claire, joins the podcast to discuss his insights into the array of social and emotional experiences that often accompany TBI.

https://leader.pubs.asha.org/do/10.1044/2024-0314-podcast-brain-injury-hoepner/full/

03/18/2024

Rep. Morgan Luttrell (R-TX-8), a first-term congressman and former Navy SEAL, is the only known member of Congress living with a traumatic brain injury. He sustained a TBI, among other severe injuries, in a harrowing helicopter crash during training in 2009.

Now, Rep. Luttrell is an outspoken advocate for TBI and the co-chair of the House Neuroscience Caucus. We are grateful for his leadership of the caucus and for his willingness to lend his powerful voice to such an important cause.

03/15/2024

We know that, due to the nature of their work, our military members are at a higher risk for traumatic brain injury.

So it’s encouraging to see the Military Health System and the Defense Health Agency promoting the “Be a Brain Warrior” campaign throughout Brain Injury Awareness Month.

The campaign encourages service members to understand the risks, signs, and impacts of TBI, throughout their military careers.

https://www.health.mil/Military-Health-Topics/MHS-Toolkits/Toolkits/Brain-Injury-Awareness-Month

03/13/2024

We’re often asked how those living with traumatic brain injury can get involved in clinical trials.

The Brain Injury Association of America has compiled this helpful guide full of information, insights and relevant links.

Looking for information on clinical trials? Learn more about what they are and how you can get started.

03/08/2024

NTRC was happy to join the Brain Injury Association of America, National Association of State Head Injury Administrators - Nashia, and the United States Brain Injury Alliance for Brain Injury Awareness Day on Capitol Hill.

We thank Congressman Bill Pascrell, Jr. and Congressman Don Bacon for their leadership as co-chairs of the Congressional Brain Injury Task Force.

03/06/2024

It’s Brain Injury Awareness Day on Capitol Hill.

Leaders from the TBI community are here urging lawmakers to reauthorize and fully fund the TBI Act. They’re also urging legislators to make a series of improvements to the TBI Act, including:

• Expand the program definition and eligibility criteria to include hypoxic and other acquired brain injuries
• Ease the state match requirement from 50% to 25%
• Allow Protection and Advocacy (P&A) agencies access into VA facilities and federal prisons
• Require the Health and Human Services Secretary to examine the evidence base of brain injury as a chronic condition
• Increase funding for the TBI Act to $25 million — $19 million to the states and $6 million to the P&A's
• Reauthorize $6.72 million for the TBI program within the CDC's National Center for Injury Prevention and Control (NCIPC)
• Appropriate $5 million for the National Concussion Surveillance System

We applaud the Brain Injury Association of America, National Association of State Head Injury Administrators - Nashia , and the United States Brain Injury Alliance for leading the way.

02/29/2024

We’re less than a month away from the North American Brain Injury Society’s 17th Annual Conference on Brain Injury — also known as — in Las Vegas.

The theme: "Evidence Informed Best Practices & Guidelines in Brain Injury Medicine and Neurorehabilitation: Achieving Optimal Outcomes Through Interdisciplinary Collaboration."

This is a premier educational event for multidisciplinary medical professionals involved in brain injury care and rehabilitation in North America in 2024.

Learn more and register now:

https://abi2024.org/

02/22/2024

Tinnitus can be as cognitive struggle. The same is true for traumatic brain injury.

What happens when a patient has both tinnitus and TBI?

That’s the subject of a recent podcast from NTRC member the American Speech-Language-Hearing Association. Listen as audiologist Suzanne Kimball and SLP Jennifer Tetnowski discuss collaborative care strategies to address cognitive challenges and improve patient outcomes.

Hear a discussion on tinnitus, brain injury, and cognitive load, and why an audiologist and SLP are working together to address patients’ needs.

02/21/2024

Reps. Bill Pascrell (D-NJ-9) and Don Bacon (R-NE-2), co-chairs of the Congressional Brain Injury Task Force, last week introduced the Traumatic Brain Injury Act Reauthorization (HR 7208).

This legislation plays a crucial role in supporting the estimated 5.3 million Americans living with traumatic brain injury. By ensuring the continuation of vital programs, the TBI Act will:

• Increase funding for state-level grants, improving access to essential rehabilitation and support services.
• Provide resources for public education and prevention activities, empowering individuals and communities to safeguard against TBI
• Continue to support the a CDC’s National Concussion Surveillance System
• Recognize TBI as a chronic condition at the federal level.

NTRC is proud to support this important legislation. More details in the press release below …

https://pascrell.house.gov/news/documentsingle.aspx?DocumentID=5493