LGMD Awareness Day - a project of LGMD Awareness Foundation

LGMD Awareness Day - a project of LGMD Awareness Foundation The LGMD Awareness Foundation, Inc. LGMD Awareness Day is celebrated on Sept 30th The first annual LGMD Awareness Day was celebrated in 2015.

is 501(c)(3) non-profit advocacy organization dedicated to globally raising awareness of the rare neuromuscular diseases known as Limb Girdle Muscular Dystrophy (LGMD). In collaboration with other LGMD foundations, our focus is to provide curated educational information and resources for the LGMD community and public. By increasing awareness of and advocating for individuals living with Limb Girdl

e Muscular Dystrophy, we hope individuals living with this progressive debilitating disease will have an easier time accessing diagnosis, care and treatment around the world. Limb Girdle Muscular Dystrophy Awareness Day, which is celebrated annually worldwide on September 30th, is a project of the LGMD Awareness Foundation, Inc.

05/27/2026

- Accepted for Priority Review with PDUFA target action date of November 27, 2026, and poised to launch upon approval; being granted Priority Review by the FDA reiterates the serious unmet need for treatment options for the LGMD2I/R9 community - If approved, BBP-418 would be the first and only thera...

For more information, visit: lgmd-info.org
05/26/2026

For more information, visit: lgmd-info.org

05/25/2026
Get your official LGMD Awareness Foundation merch at lgmd-info.org/shopEvery purchase helps us fulfill our mission!
05/22/2026

Get your official LGMD Awareness Foundation merch at lgmd-info.org/shop

Every purchase helps us fulfill our mission!

Happy St. Patrick's Day! 🍀 Wishing you a pot o' gold, and all the joy your heart can hold.💚 From Girdie and your friends...
03/17/2026

Happy St. Patrick's Day! 🍀 Wishing you a pot o' gold, and all the joy your heart can hold.

💚 From Girdie and your friends at LGMD Awareness Foundation!



Tomorrow is St. Patrick's Day! 💚 As you make your plans to celebrate ... Girdie wants to remind you to wear   awareness....
03/16/2026

Tomorrow is St. Patrick's Day! 💚 As you make your plans to celebrate ... Girdie wants to remind you to wear awareness.


Today is "International Lime Day". Of course, Girdie, our LGMD Ambassador, is very excited!This is a perfect opportunity...
03/10/2026

Today is "International Lime Day". Of course, Girdie, our LGMD Ambassador, is very excited!

This is a perfect opportunity to have some fun and shine a light on limb-girdle muscular dystrophy (LGMD)!

LGMD-Info.org



Tomorrow is "International Lime Day" of course, Girdie, our LGMD Ambassador, is excited.This is a perfect opportunity to...
03/10/2026

Tomorrow is "International Lime Day" of course, Girdie, our LGMD Ambassador, is excited.
This is a perfect opportunity to share your favorite lime recipe and shine a light on LGMD Awareness!


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Twin Lakes, WI

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