The Lilabean Foundation for Pediatric Brain Cancer Research

The Lilabean Foundation for Pediatric Brain Cancer Research Our mission is to research and support projects at the Brain Tumor Institute at Children's National Hospital and at the Children's Brain Tumor Network.

The Lilabean Foundation- Pursuing a Cure for Childhood Brain Cancer (LBF)- is a non-profit (501c3) organization committed to supporting the funding of pediatric brain cancer research. The Lilabean Foundation- Pursuing a Cure for Childhood Brain Cancer (LBF)- is a non-profit (501c3) organization committed to supporting the funding of pediatric brain tumor research. We also seek to bring public awar

eness to the severity of pediatric brain tumors and the funds so desperately needed to sponsor this critical research. Our hope is that the LBF will have an extraordinary impact on the lives of the many beautiful children affected by this terrible disease.

One year ago today, we said goodbye to Cameron C***o. But Cameron's story didn't end on June 6, 2025. 🐞It started with a...
06/06/2026

One year ago today, we said goodbye to Cameron C***o. But Cameron's story didn't end on June 6, 2025. 🐞

It started with a relay. In March 2020, during Cameron's brain surgeries, her people created a virtual relay around the world — running through the night, across time zones — just to hold her family up while they waited. That's how Cam's Crew was born.

Over five years, Cam's Crew raised more than $250,000 for pediatric brain cancer research through Cameron's Hero Fund, community fundraisers, races, and events. Through LBF's partnership with the Children's Brain Tumor Network (CBTN) at CHOP, Cameron's story has helped accelerate research infrastructure, tumor modeling, molecular profiling, and work focused on creating better options for children fighting ependymoma.

And even now — one year later — the tissue Cameron donated after she passed continues to help move this research forward. She is still helping children she never met.

Today, on Cameron's one-year angelversary, we're asking Cam's Crew to move again.

1 Mile for Cam.
Walk it. Run it. Stroll it. Scooter it. Wherever you are in the world,

Wear your shirt. Grab your people. Bring your kids. Play her favorite songs. Wear pink and purple. Dance if you want to.

Then post about it and tag — so we can see Cam's Crew moving all over the world once again. 💗

We're also inviting Cam's Crew to help us reach a meaningful milestone: $100,000 for Cameron's Ependymoma Research Fund, with a goal of raising $6,600 today — in honor of June 6th.

Because grief is every day. Cancer is every day. And research should be too.

If you'd like to donate to Cameron's Fund through LBF: https://secure.qgiv.com/for/cameronheroform

Last month, LBF Founder & President Nicole Giroux had the honor of attending an intimate evening hosted by the PNOC Foun...
06/04/2026

Last month, LBF Founder & President Nicole Giroux had the honor of attending an intimate evening hosted by the PNOC Foundation in New York City, bringing together families, advocates, researchers, and some of the world's leading experts in pediatric brain tumors.

The evening was a powerful reminder of what is possible when a community unites around a shared mission: ending childhood brain cancer. Nicole had the opportunity to hear firsthand about groundbreaking clinical trials, some of which LBF is supporting, and the rapid advancement of precision medicine that is creating new hope for children and families facing these devastating diagnoses.

One of the most meaningful moments of the night was meeting PNOC Foundation founders Bruce and Allyn Campbell. After their son was diagnosed with ependymoma, they transformed their family's journey into a force for progress, collaboration, and hope for families around the world.

Thank you to the PNOC Foundation for bringing together such an incredible community of changemakers. Together, we are moving closer to a future where no child loses their life to brain cancer. 💙

Go gray in May with us TOMORROW 🩶
05/20/2026

Go gray in May with us TOMORROW 🩶

05/17/2026

🎧 Your Sunday Listen 🎧

Don’t miss our special Brain Cancer Awareness Month episode, featuring a conversation with LBF’s new Executive Director, Kelly Barch! Host Derek Danek chats with Kelly about her path to the foundation, the urgency of pediatric brain cancer research, and all the exciting things happening at LBF this May. It’s a great listen whether you’re a longtime supporter or just discovering our mission for the first time. Listen today https://creators.spotify.com/pod/profile/lilabeanfoundation

05/17/2026

Don’t miss our special Brain Cancer Awareness Month episode, featuring a conversation with LBF’s new Executive Director, Kelly Barch! Host Derek Danek chats with Kelly about her path to the foundation, the urgency of pediatric brain cancer research, and all the exciting things happening at LBF this May. It’s a great listen whether you’re a longtime supporter or just discovering our mission for the first time.

https://creators.spotify.com/pod/profile/lilabeanfoundation

“Knowing part of Cameron still physically lives here.”Those words — spoken by a researcher at Children’s Hospital of Phi...
05/16/2026

“Knowing part of Cameron still physically lives here.”

Those words — spoken by a researcher at Children’s Hospital of Philadelphia — stopped Cameron’s mom and our board member, Stewi C***o, in her tracks.

Cameron fought ependymoma for five years. She passed away on June 6, 2025. But her tumor, donated to the Children’s Brain Tumor Network, is still teaching. Still contributing. Still helping researchers find answers that may save the next child.

In a powerful new piece for the Lilabean Foundation, Stewi shares what it felt like to walk the halls of CHOP and witness research happening at a speed that simply didn’t exist a few years ago — tumors analyzed during surgery, living tumor models tested against therapies within weeks, and a network now connecting 35+ institutions and nearly 89,000 samples.

As Cameron’s neurosurgeon and CBTN Scientific Director Dr. Jay Storm put it: “We can classify tumors far better than we can act on them.”

The progress is real. So is the urgency.

Read Stewi’s full story at the link in bio. And if you feel moved to act, LBF365 monthly giving helps keep research moving every single day — because kids fighting brain cancer don’t get to pause.

CamStrong. Forever. 💛

🔗 lilabeanfoundation.com/a-field-trip-to-see-a-piece-of-my-daughter

15 Years of Hope. 365 Days a Year. Thanks to YOU 💛Today — May 15th, during Brain Cancer Awareness Month — is a powerful ...
05/15/2026

15 Years of Hope. 365 Days a Year. Thanks to YOU 💛

Today — May 15th, during Brain Cancer Awareness Month — is a powerful reminder that kids battling brain cancer can’t wait.

For 15 years, the Lilabean Foundation community has come together to fund life-changing pediatric brain cancer research, raising more than $8 million to give children a fighting chance.

But every single day, 13 children in the U.S. are diagnosed with a brain tumor. That’s why today matters.

In honor of 15 years of impact, we are asking this community to join our recurring giving program, LBF365, to support research every day of the year.

A monthly gift of just $13 stands with each child and family facing this disease, not just today, but all 365 days.

Join LBF365 in May and receive a limited edition LBF t-shirt as a thank you for being part of this mission.

https://giving.gofundme.com/campaign/671188/donate

This May, during Brain Cancer Awareness Month, we're proud to share more about the two clinical trial grants LBF is help...
05/14/2026

This May, during Brain Cancer Awareness Month, we're proud to share more about the two clinical trial grants LBF is helping to fund at the Pediatric Neuro-Oncology Consortium (PNOC) — bringing innovative therapies closer to children who need them most.

Together, these grants represent investment in bold science moving from the lab into clinical trials that treat children today. This is what your support makes possible.

Last week, Executive Director Kelly Barch joined 26 advocates from Maryland; including Lilabean hero family Alyssa and J...
05/12/2026

Last week, Executive Director Kelly Barch joined 26 advocates from Maryland; including Lilabean hero family Alyssa and Joe Zachmann, and more than 350 people from across the country on Capitol Hill for the National Brain Tumor Society’s Head to the Hill Day of Action.

Together, survivors, families, advocates, and organizations met with lawmakers to share personal stories and push for meaningful action for the brain tumor community.

We proudly stood alongside advocates calling on Congress to:

🧠Advance the BRAIN (Bolstering Research And Innovation Now) Act
💵Increase funding for the NIH, NCI, and Department of Defense medical research programs
📢Recognize May as Brain Tumor Awareness Month and July 15, 2026 as Glioblastoma Awareness Day

Every conversation matters. Every story matters. And every step forward brings us closer to better treatments and ultimately, a cure for children and families facing pediatric brain cancer.

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105 Rockdale Drive
Silver Spring, MD
20901

Telephone

+13014043356

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