Parent Project Muscular Dystrophy

08/27/2026

👕 ❤️ Bad Shirt Friday and World Duchenne Awareness Day are right around the corner!

On September 4, we’re wearing our favorite ugly shirts as we kick off the countdown to World Duchenne Awareness Day on September 7.

This year’s theme is “Access Changes Lives,” and we’ll be celebrating throughout September by highlighting the many ways access can make a difference for individuals and families living with and .

⭐ Ready to get in the spirit?! Check out our website for everything you need—including shareable social media graphics, a Family Activation Guide, and tips and tools for making the most of Bad Shirt Friday and World Duchenne Awareness Day! parentprojectmd.org/wdad

08/27/2026

This is all about swapping real-life tips and learning from people who’ve been there. Come hang out, ask questions, and pick up a few things you definitely won’t find on Google: LIVESTREAM WITH THE PAAC!

*The livestream will appear directly on PPMD's page when we go live at 4:00 PM ET on August 27, 2026.*

08/24/2026

Today, Capricor Therapeutics, Inc. formally announced that the FDA has accepted the company’s amendment to the BLA for Deramiocel, and the FDA will be extending the current PDUFA action date of August 22, 2026.

📌 The FDA has classified the amendment as a major amendment, extending the current action date 90 days to November 22, 2026.

Learn more and catch up on recent Deramiocel updates:

Today, Capricor Therapeutics formally announced that the U.S. Food and Drug Administration (FDA) has accepted the company’s amendment to the Biologics License Application (BLA) for Deramiocel, and the FDA will be extending the current Prescription...

08/24/2026

Precision BioSciences, Inc. today announced the dosing of the first patient in the Phase 1/2 FUNCTION-DMD clinical trial, evaluating the safety, tolerability, and efficacy of PBGENE-DMD for the treatment of .

Learn more:

Precision BioSciences, Inc. today announced the dosing of the first patient in the Phase 1/2 FUNCTION-DMD clinical trial, evaluating the safety, tolerability, and efficacy of PBGENE-DMD for the treatment of Duchenne. PBGENE-DMD is Precision’s investigational...

08/21/2026

👕 Bad Shirt Friday is back! 👕

We’re bringing back one of our loudest—and most fun—ways to raise awareness for and . On Friday, September 4, wear your loudest, wildest, most outrageous shirt and help us make some noise for the Duchenne and Becker community!

is a global awareness campaign leading up to World Duchenne Awareness Day on September 7. Every bad shirt is a chance to spark a conversation about Duchenne and Becker, raise awareness, and show support for the individuals and families living with it.

Here’s how to join the fun:
👕 Wear your worst shirt on September 4
📸 Snap a photo and share it on social media
📢 Use and tag PPMD
❤️ Challenge three friends to join you
💰 Consider making a donation to support PPMD’s mission

Learn more: https://www.parentprojectmd.org/get-involved/wdad/bad-shirt-friday/

08/21/2026

📚 Back-to-school season is here! 💙

A new school year can bring plenty of questions for families living with or —from navigating IEPs and 504 plans to helping teachers understand your child’s needs and making sure school staff are prepared.

PPMD’s School Resources are here to help families and educators start the year with the tools and information they need, including our Education Matters guides, Duchenne and Me letters, educator resources, school action plans, and more.

🎒 Explore PPMD’s School Resources: https://www.parentprojectmd.org/care/for-families/school-resources/

08/20/2026

❤️ Learn, connect, and find support.

PPMD's Lighthouse workshops bring members of the and community together for meaningful conversations, practical information, and opportunities to connect with others who understand the Duchenne and Becker journey.

If you’ve been thinking about joining us for our Fall 2026 workshop series, there’s still time to register! Sign up by August 26: https://donate.parentprojectmd.org/event/ppmd-lighthouse-workshop-series-2026-fall/e828068

Looking for connection, support, and meaningful conversation this fall? Join PPMD’s Fall 2026 Lighthouse Workshop Series, a virtual program designed to support individuals and families living with and .

Through guided discussions and shared experiences, Lighthouse Workshops offer a welcoming space to reflect, learn, and connect with others who truly understand this journey.

🗓️ Registration is now open through August 24—learn more about this season's groups and save your spot today: https://donate.parentprojectmd.org/event/ppmd-lighthouse-workshop-series-2026-fall/e828068

08/18/2026

PPMD Together brings families, care providers, industry partners, advocates, and community members together to share experiences, explore important topics, and build connections that last beyond the meeting.

Join the and community on September 18–19 in San Francisco, CA for two days of connection, conversation, learning, and support.

Register today and book your stay by September 3: https://donate.parentprojectmd.org/event/ppmd-together-san-francisco/e825782