Maryland Stroll for IRSF

10/01/2026

💜 **OCTOBER IS RETT SYNDROME AWARENESS MONTH!** 💜

What better way to recognize Rett Syndrome Awareness Month than by coming together for our **5th Annual Maryland Strollathon for Rett Syndrome!**

📅 **Saturday, October 10, 2026**
📍 **Martin Luther King Jr. Recreation Park – Silver Spring, MD**
🕛 **Registration begins at 12 PM**
🚶🏾‍♀️♿ **Walk/Stroll begins at 1:15 PM**

The Maryland Strollathon is about more than fundraising. It’s about bringing our **DMV Rett families together**, making connections, sharing resources, having FUN and, most importantly, celebrating our incredible **Rett Champions!** 💜

Our stroll is **less than one mile** and designed with our wheelchair users and families in mind. After the stroll, stay and enjoy **adaptive line dancing, therapy animals, Montgomery County Fire & Rescue, games, special guests, community resources, raffles, music and more!** 🎉

💜 **Come walk. Come roll. Come connect. Come celebrate.**

And if you would like to support our mission, **every donation—large or small—makes a difference.** All Strollathon proceeds benefit the **International Rett Syndrome Foundation (IRSF)** and its mission to accelerate research and support families affected by Rett Syndrome.

Help us spread the word by **SHARING this post and inviting another family to join us!**

We can't wait to see our Rett families, friends and supporters on **October 10th!** 💜

**Every Step. Every Roll. Every Smile. Every Rett Champion.**

09/14/2026

💜 This past Saturday, September 12th, 2026, my aunt and I took a little road trip to support **Amberlee and Leslie at their very first Chesapeake Strollathon for Rett Syndrome!**

Their family has supported our Maryland Strollathon in the past, so it meant a lot to me to be there and return that same love and support. 💜

I also had the chance to meet some new Rett families and their beautiful Rett loved ones. I always enjoy connecting with families who truly understand this journey.

Congratulations on your first Strollathon, Amberlee and Leslie! 💜🦋 **Rett families supporting Rett families — that’s what it’s all about!**

And now I’m personally inviting **YOU** to come support **my sister Teresa and all of our amazing Rett individuals and families** at the **Maryland Strollathon on October 10th!** 💜

Teresa is the reason this cause is so close to my heart. When you come out and walk with us, you’re not just attending an event — **you’re showing Teresa and every person living with Rett syndrome that they are seen, loved, celebrated, and supported.**

You don’t have to know someone with Rett syndrome to make a difference. **Your presence matters.** So please mark your calendar, bring your family and friends, and come STROLL with Teresa and me! 💜🦋

**It would mean more to me and my family than you know to see you there. October 10th — come walk with us!** 💜

08/26/2026

💜 **We’re Getting Excited — and We Hope You’ll Join Us!** 💜

The **5th Annual Maryland Strollathon for Rett Syndrome** is happening **Saturday, October 10, 2026**, at our beautiful new location in Silver Spring!

📍 **Martin Luther King Jr. Recreation Park**
🕛 **Registration begins at 12 PM**
🚶🏾‍♀️ **Walk/Stroll begins by 1:15 PM**

This year we're planning a fun and welcoming day for our Rett families, friends, and supporters with:

🐶 Pet Partners therapy animal visit
🚒 Montgomery County Fire & Rescue
💃🏾 Adaptive line dancing for ALL abilities
🎯 Games & family activities
🎟️ Raffles, prizes & giveaways
🤝 Community resources & special guests
💜 And, of course, a beautiful stroll celebrating our **Rett Champions!**

Whether you've joined us every year or this will be your first Strollathon, **we would LOVE to see you there!** Bring your family and friends and come spend the day with our amazing DMV Rett community.

💜 **Every Step. Every Roll. Every Smile. Every Rett Champion.**

Please **SHARE** and help us spread the word! 💜

08/10/2026

08/10/2026

💜 **IT'S OFFICIAL...THE 2026 MARYLAND STROLLATHON IS HERE!** 💜

Get ready for our **5th Annual Maryland Strollathon for Rett Syndrome**—and this year is going to be our **BIGGEST and MOST EXCITING yet!** 🎉

📅 **Saturday, October 10, 2026**
🕛 **12:00 PM** Registration Begins
📍 **Martin Luther King Jr. Recreational Park**
1120 Jackson Road, Silver Spring, MD

We've moved to a **beautiful new park** with a scenic Heart Smart Trail, more space for families to gather, and plenty of room for exciting new activities!

💜 Every individual with Rett Syndrome is our **Rett Champion**, and this day is dedicated to celebrating them. We want every family to feel honored, supported, and surrounded by a community that understands and cares.

✨ This year's event will feature:
🐶 Therapy animal visits
🚒 New community partners and special visitors
🎯 Family-friendly games and activities
📸 Rett Champion Photo Booth
🎁 Raffles, giveaways, and community resource tables
💜 And so much more!

Whether this is your first Strollathon or you've been with us from the beginning, we can't wait to welcome you. Invite your family, friends, neighbors, and coworkers to join us as we raise awareness, celebrate our Rett Champions, and support the International Rett Syndrome Foundation.

👉 **Register or donate today:** ** https://give.rettsyndrome.org/strollathon-maryland

Let's make our **5th Annual Maryland Strollathon** the best one yet! We can't wait to celebrate with all of our incredible Rett families.

💜 **Every Champion. Every Family. Every Step Makes a Difference.**

💜

07/04/2026

Happy 4th of July to all the Rett Syndrome families out there from my sister Teresa who is "56" years old. She is our miracle and blessing...🙏🏾😍

12/20/2025

👏🏿👏🏿

For Americans living with rare diseases, the Rare Pediatric Disease Priority Review Voucher Program is a vital tool. Yet its reauthorization is at risk.

11/17/2025

Please join us in welcoming Dr. Bhala Rao, our new Director of Translational Research at the International Rett Syndrome Foundation!

With more than 15 years of experience in molecular biology and biochemistry—and deep expertise in RNA biology, RNA-targeting therapeutics, and pre-clinical science—Bhala will help guide IRSF’s scientific investment strategy and oversee our translational research portfolio. His leadership will play a key role in advancing promising discoveries toward meaningful treatments for individuals living with Rett syndrome.

Originally from near Mumbai, India, Bhala now lives in the Boston area with his wife, a cancer biologist, and their two children. We’re thrilled to have him join our team, driving hope through progress. 💜

11/12/2025

🙏🏾

Caregiving for a child with Rett syndrome is an act of endless love — and when that child is gone, the silence can feel unbearable. For three mothers — Elaine, Jenny, and Suma — that silence became a shared strength. Together, they are leading Life After Rett, a Facebook community where parents can grieve, heal, and remember their children with others who understand.

Read their story of courage, compassion, and connection💜: https://www.rettsyndrome.org/life-after-rett