Dysautonomia Louisiana

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Ponchatoula, LA
Dysautonomia Louisiana

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Awareness Group This medical disclaimer warns users that reliance on or use of the information on the website is at their own risk.

The content on this site/document is for informational/educational purposes only, and does not substitute professional medical advice or consultations with healthcare professionals. Please consult with your medical professional prior to making any alterations on your personal health care.

10/29/2026

Fabulous explanation of what we call coat hanger pain.....

Coat hanger pain is a distinctive pattern of aching, stiffness, tension, cramping, or dull pain across the back of the neck, the base of the skull (suboccipital area), and the tops of both shoulders/upper trapezius region. The distribution resembles the shape of a wire coat hanger draped over the upper back and shoulders.
Health

https://www.facebook.com/share/v/19kj4FRNmW/

10/28/2026

Self-care isn’t optional with Dysautonomia — it’s essential.
In our opinion doctors should write a prescription for it....

When your autonomic nervous system is dysregulated, the “basics” (hydration, salt, rest, pacing, sleep, gentle movement, and listening to your body) become the foundation that keeps symptoms from spiraling.

Skipping them doesn’t just leave you tired — it can trigger flares, crashes, and setbacks that take days or weeks to recover from.
Going back to the basics isn’t about being soft. It’s about giving your body the steady support it needs to function when the automatic systems can’t. Protect the foundation, and you protect your capacity.

10/26/2026

Hey Dysautonomia Louisiana crew! 👋

Finding local doctors who truly understand autonomic dysfunction can be a massive challenge. We want to build a better resource for our community, and we need your help!

Who is on your medical team? 🩺👇

Whether you see a neurologist, cardiologist, primary care doctor, or another specialist right here in Louisiana—please share their names and locations below! Let us know:
• Who diagnosed you? 🔍
• Who manages your ongoing treatment? ❤️
• Are they virtual or in-person? 💻

Finding the right care shouldn't feel like a guessing game. Drop your recommendations in the comments to help someone else on their journey!

10/26/2026

WHAT IS POTS?
Postural Orthostatic Tachycardia Syndrome (POTS) is a form of dysautonomia—a problem with the autonomic nervous system’s regulation of circulation.
Symptoms often worsen upright or with prolonged standing.
Common symptoms include rapid heart rate, dizziness/lightheadedness, fainting or near-fainting, fatigue, headache, nausea, palpitations and “brain fog.”

10/24/2026

“Expectations after a Dysautonomia diagnosis: answers.

Reality: a salt shaker and a lifelong membership to the ‘I need to sit down’ club.”

10/24/2026

Dysautonomia Louisiana crew —
We’re trying to figure out what info y’all actually want more of… and right now our guesses are about as reliable as a tilt-table test on a windy day.

So drop it below:
What’s the good stuff you need more of?
What’s the bad (missing) info?
What’s the straight-up ugly gap we need to fill?
Your feedback = our survival guide.
Don’t leave us hanging… or spinning.

10/23/2026

"Four seats. One mission. Dysautonomia Louisiana needs YOU at our St. Tammany Medical Professionals Lunch & Learn on November 3rd, 11am to 2pm. Come share your story, connect with local providers, and help us bring awareness about POTS in St. Tammany. DM me to claim your spot — first four to respond get in!"

10/21/2026

From Dizzy to Empowered — Understanding Dysautonomia

Raising Awareness about POTS in schools across Louisiana

If you want to see us in your school comment below!

10/20/2026

Dysautonomia Dragon takes 2ND PLACE!!!
The Boys on the Bayou built that beast, paraded it through the streets like champions, then RACED it down the river — all to raise hell (and awareness) for Dysautonomia!

10/20/2026

look at this Race, so close..... so very proud of how hard these guys paddled for our Dysautonomia team!

Next year we will bring it on Bigger and Better !

Mark your calendars dysautonomia members our awareness tent will need your help and our paddlers need a cheer squad!

Address

Ponchatoula, LA

Telephone

+19856027446

Website

http://DysLou.org/, https://www.zeffy.com/en-US/ticketing/dysautonomia-louisianas-shop

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