Lebers Hereditary Optic Neuropathy PLUS - LHON PLUS

10/03/2018

This is a good read, describing what depression can look and feel like and how it can be overlooked at times. It's worth a read and also well worth talking to your doctor/ nurse if you think you or a close family member are experiencing some of these symptoms. It is common with LHON to experience depression or anxiety.

"I get overlooked."

02/07/2014

This just posted on the ABC 20/20 page!

After losing his vision to a rare disease called LHON, Jeremy Poincenot tried to regain a normal life – through golfing. Eventually, he wound up competing in England at the World Blind Golf Championship.

Catch more of Jeremy’s inspiring story on ABC 20/20 tomorrow – 10/9c.

(Photo Credit: Producer, Sean Dooley / ABC News)

11/11/2013

We are trying to gather together as a group to start to get to know each other and find the commonalities within LHON Plus so that we can have a greater impact to the mitochondrial community at large.

In time we hope to privately do a database of what the symptoms of this disease are and bring about interest from the research community and develop more interest.

It is our understanding that a Lhon Plus Group has never been formed to date and we feel we can help each other. We are also planning to schedule monthly phone/Skype calls where we can get to know each other better.

If you know anyone with Lhon Plus please invite them to join this group.

Lisa Mito
Shelly Maki Mercer