Cure HHT

Cure HHT The official page for Cure HHT, the world's leading organization working to raise awareness

Hereditary Hemorrhagic Telangiectasia (HHT) is an inherited disease that affects over 1 million people worldwide. It is caused by defective blood vessels in the brain, lungs, liver, nose, skin, and intestines, and typically begins with nosebleeds during childhood. HHT is highly treatable but can result in serious health problems if not promptly diagnosed and treated.

06/03/2026

A common question we hear is, "What causes nosebleeds in HHT?"

This insightful video with expert Dr. Hanny Al-Samkari, MD, from Massachusetts General Hospital answers this question for our community. Watch to learn more!

Join Cure HHT’s CEO on Day, June 23rd, for a comprehensive update on the state of the organization upon its 35th anniv...
06/03/2026

Join Cure HHT’s CEO on Day, June 23rd, for a comprehensive update on the state of the organization upon its 35th anniversary and the organization’s work on behalf of the community. This webinar will highlight key milestones from the past year, including progress in research, awareness, advocacy, and patient support initiatives.

Register to attend: https://loom.ly/nQrCHTA

06/02/2026

This is your opportunity to ask questions about HHT symptoms, diagnosis, treatment options, and managing life with this condition.

Whether you're a patient, family member, or caregiver, this interactive session will offer a supportive space to get the information you need.

Reminder for our new (and longtime) followers: if you want to stay up to date on HHT-related events, resources, webinars...
06/02/2026

Reminder for our new (and longtime) followers: if you want to stay up to date on HHT-related events, resources, webinars, research updates, and advocacy opportunities, the best way is to sign up for Cure HHT email and text updates!

Sign up here: https://loom.ly/Mc7Gzgk
Or resubscribe here: http://eepurl.com/c7qGuf

06/01/2026

June has arrived—which means it’s finally HHT Awareness Month! Today begins a month-long community celebration that raises awareness for hereditary hemorrhagic telangiectasia (HHT). This June, Cure HHT is proud to launch a campaign centered on one powerful idea: If we stand together, HHT’s visibility cannot be ignored.​

Visible Together is a call for collective visibility. It is a reminder that progress happens when the entire community – patients, caregivers, clinicians, researchers, donors, and advocates – work together to make HHT harder to miss and impossible to ignore.​

Make a contribution today to be a part of our progress: curehht.org/give

Cure HHT released a new response to a research paper on brain MRI screening in HHT and highlighted an important truth fo...
05/28/2026

Cure HHT released a new response to a research paper on brain MRI screening in HHT and highlighted an important truth for our community: screening remains clinically important, but patients need clearer communication and better emotional support throughout the process.

See how this research affects patients and caregivers: https://loom.ly/pOkWhlY

Join us this evening at 6:30 pm ET for Women’s Health & HHT, a conversation on the unique ways HHT affects women across ...
05/28/2026

Join us this evening at 6:30 pm ET for Women’s Health & HHT, a conversation on the unique ways HHT affects women across every stage of life.

Whether you are newly diagnosed, supporting a loved one, or seeking to advocate more confidently with your care team, this webinar will offer practical insights and resources tailored to women in the HHT community. Bring your questions for the live Q&A!

Register to attend: https://loom.ly/BtuXr0g

Cure HHT is committed to improving care, supporting providers, and helping ensure that more patients can access the spec...
05/27/2026

Cure HHT is committed to improving care, supporting providers, and helping ensure that more patients can access the specialized expertise they need.

Join an upcoming town hall for updates about our Centers of Excellence: https://loom.ly/hrTQAZk

May is Women’s Health Month! Join us this Thursday for a webinar where we will explore the compounding impact of menstru...
05/26/2026

May is Women’s Health Month! Join us this Thursday for a webinar where we will explore the compounding impact of menstruation on iron deficiency and anemia, what women with HHT need to know about pregnancy planning and management, and the role of hormones through perimenopause and HRT.

Register to attend: https://loom.ly/BtuXr0g

HHT Awareness Month is almost here! Are you ready to help raise awareness? We have free resources available for you to s...
05/25/2026

HHT Awareness Month is almost here! Are you ready to help raise awareness? We have free resources available for you to share on social media, tips for setting up your own fundraiser, and printable posters. Get involved: https://loom.ly/kXJOHPs

Address

P. O. Box 329
Monkton, MD
21111

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+14103579932

Website

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