Cure HHT

Cure HHT The official page for Cure HHT, the world's leading organization working to raise awareness

Hereditary Hemorrhagic Telangiectasia (HHT) is an inherited disease that affects over 1 million people worldwide. It is caused by defective blood vessels in the brain, lungs, liver, nose, skin, and intestines, and typically begins with nosebleeds during childhood. HHT is highly treatable but can result in serious health problems if not promptly diagnosed and treated.

Cure HHT is proud to announce the launch of Cure HHT Canada, a dedicated organization serving individuals and families a...
06/17/2026

Cure HHT is proud to announce the launch of Cure HHT Canada, a dedicated organization serving individuals and families affected by HHT by expanding awareness, strengthening community education, and supporting efforts to improve access to knowledgeable HHT care across Canada.

Read the new announcement: curehht.org/cure-hht-canada-launches-as-part-of-a-growing-international-commitment-to-hht-care-research-and-advocacy/

Celebrate this news by donating to our HHT Awareness Month campaign before our match expires on June 30! curehht.org/give

Join Cure HHT on Day for a look ahead at strategic priorities and upcoming opportunities to get involved with the orga...
06/17/2026

Join Cure HHT on Day for a look ahead at strategic priorities and upcoming opportunities to get involved with the organization. Bring your questions for a live Q&A at the end of the session!

Register to attend on 6/23: https://loom.ly/nQrCHTA

Ready for Global HHT Awareness Day? Participating in our "Visible Together" campaign just got easier! Download your FREE...
06/16/2026

Ready for Global HHT Awareness Day? Participating in our "Visible Together" campaign just got easier! Download your FREE awareness calendar with daily ideas for support or HHT coloring pages!

Grab them (and more!) here: https://loom.ly/mN0gU5Y

We appreciate your support--donations are doubled this month: curehht.org/give

This June, Cure HHT is proud to recognize HHT Awareness Month with a campaign centered on one powerful idea: If we stand...
06/15/2026

This June, Cure HHT is proud to recognize HHT Awareness Month with a campaign centered on one powerful idea: If we stand together, HHT’s visibility cannot be ignored. Progress happens when the entire community – patients, caregivers, clinicians, researchers, donors, and advocates – work together to make HHT harder to miss and impossible to ignore. We've made it simple to participate with our Awareness Month resources.

Download sample social media posts, create your own graphics, and help us spread the word: https://loom.ly/mN0gU5Y

Donations made in the month of June will be matched thanks to a generous group of donors! Make a contribution today to be a part of our progress: curehht.org/give

Happening tomorrow! Cure HHT’s Senior Director for National Healthcare Programs will be hosting a town hall to share rec...
06/15/2026

Happening tomorrow! Cure HHT’s Senior Director for National Healthcare Programs will be hosting a town hall to share recent updates on Centers of Excellence.

There’s still time to register to attend and ask your questions: https://loom.ly/hrTQAZk

For people with HHT, blood donation is an important part of both life-saving care and groundbreaking research. Because H...
06/14/2026

For people with HHT, blood donation is an important part of both life-saving care and groundbreaking research. Because HHT is often characterized by bleeding, blood transfusions can be an essential part of treatment. Blood donations are also critical to projects like the Cure HHT Biobank, which collects blood and tissue samples to drive the development of new therapies and methods of care.

Learn more about how to get involved on World Blood Donor Day: https://loom.ly/R92rgJQ

To all our HHT caregivers, family members, and loved ones: you deserve visibility too.Did you know that approximately 1 ...
06/14/2026

To all our HHT caregivers, family members, and loved ones: you deserve visibility too.

Did you know that approximately 1 in 5 adults provide care to a loved one, and over 60% of these caregivers report symptoms of burnout? We created a new resource to help you remember to R.E.S.T.

Share this infographic to spread the word about these available resources. https://loom.ly/-aK3NJ4

Join Cure HHT and Diagonal Therapeutics on Friday, June 26 for an in-person open house and patient forum! If you’re loca...
06/13/2026

Join Cure HHT and Diagonal Therapeutics on Friday, June 26 for an in-person open house and patient forum! If you’re located in the Boston area and want to participate in a free, family-friendly day of connection, learning, and community, let us know by registering to attend: https://loom.ly/csTB53o

Dr. Conrad cares for patients who often arrive with complicated histories, unanswered questions, and years of experience...
06/12/2026

Dr. Conrad cares for patients who often arrive with complicated histories, unanswered questions, and years of experience navigating a healthcare system that was not built for rare diseases.

“The antidote to being alone and alienated in a healthcare system,” Dr. Conrad said, "is to be recognized as part of a group."

That recognition is central to Cure HHT’s work. It brings patients together, but it also brings providers, researchers, and advocates together. It creates a shared language. It improves education. It helps move HHT from something hidden and misunderstood into something visible, studied, and treated with the seriousness it deserves.

Read Dr. Conrad's full story and support our Visible Together campaign today-your impact is doubled this month! https://loom.ly/g-TNF-I

Join Cure HHT’s National Healthcare Programs Team for an upcoming Town Hall about US and Canadian HHT Centers of Excelle...
06/12/2026

Join Cure HHT’s National Healthcare Programs Team for an upcoming Town Hall about US and Canadian HHT Centers of Excellence. Patients, families, and community members will have a chance to ask questions in real time!

Register to attend on 6/16: https://loom.ly/hrTQAZk

Address

P. O. Box 329
Monkton, MD
21111

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+14103579932

Website

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