Ava's Voice

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Connecting USHearts Around the 🌎
Home of USHthis Summer Youth Camp
dream it. believe it. crUSH it.

Connecting USHearts Around the World 🌎

Ava's Voice is the home of three direct programs for children with Usher syndrome:
1. discUSH: supports families of children birth to 10 years, this includes but not limited to, in person retreats and virtual calls to connect families within the Usher syndrome community.
2. USHangouts: provides an opportunity for youth with Usher syndrome (birth-17 years) to make connections with their peers at the USH Connections Conference hosted by the Usher Syndrome Coalition. Programs are designed specifically for two age groups, USHlittles (birth-7) and USHyouth (8-17). Mentor and role model opportunities are available for adults with Usher syndrome (ages 18+)
3. USHthis Summer Youth Camp: is a week long experience for youth with Usher syndrome (ages 11-17) to have a traditional camp experience with their peers. Mentors are individual with Usher syndrome (ages 18-26) and we also have role models and staff with Usher syndrome (26+)

Founded in the United States of America, Ava’s Voice, collaborates with international organizations to implement the USHthis Summer Camp model to meet the needs of their local USH community.

10/31/2026

👻Happy Halloween

📖Night blindness is not always a symptom of retinitis pigmentosa
(RP), though it is the most common early sign in typical forms of the disease.

💡Tips: those with USH get familiar with the route you may be traveling at night. Friends, offer an arm and alert us of any obstacles.

Disclaimer: Read with an open heart! This content is created by teens sharing their real-life experiences at different stages of their Usher syndrome journey. Every experience is unique. Additional factual context will be included in captions when needed.

10/21/2026

🤍➕🦐❌💵=🏕️😁🔋

Show your support for our very own USH Community! Your generosity helps ensure a camp location for Ava's Voice USHthis Summer Camp 2027.

10/21/2026

📣Bailey’s on the move!

It was a fun day at the Deaf Awareness Fall Carnival! Jessica, Bailey, and Lance enjoyed working at our booth and connecting with the community. Thank you to everyone who stopped by! 👻🎃

A huge thank you to Bailey for helping at our booth and sharing her experiences at our HS summer camp! We loved having you there with us!

📸: Augustana Deaf Awareness

10/17/2026

🌎Wherever you are in the world, we are always with you

💭dream it.
🏊‍♀️believe it.
💪🏼crUSH it.

10/13/2026

🦐so grateful for our Louisiana family, sending our love to all the wonderful people we met in line last spring and this amazing crew!

💜 HELP US KEEP USHthis SUMMER CAMP FREE FOR KIDS WITH USHER SYNDROME! 💜

What if your child could spend a week surrounded by friends who truly understand them? Friends who understand the challenges of living with Usher syndrome without having to explain a thing?

That’s what USHthis Summer Camp is all about! 💜

USHthis is a special overnight summer camp for kids ages 12–17 living with Usher syndrome, a genetic condition that affects hearing, vision, and sometimes balance. Through Ava’s Voice, this program gives these kids the opportunity to experience traditional summer camp fun while building friendships, confidence, independence, and connections with others who share their journey.

🏹 Archery
🛶 Outdoor adventures
🎨 Arts and crafts
🔥 Campfires and unforgettable memories
💜 Friendships with kids who just get it

But USHthis is about so much more than camp activities. It’s about belonging. It’s about helping kids realize they are not alone. It’s about giving them a community that understands their challenges while encouraging them to dream big and embrace everything life has to offer.

For families navigating Usher syndrome, opportunities like this are priceless. But the cost of camp and travel can create financial barriers that prevent some kids from attending.

That’s where Mia’s USH Mission wants to make a difference!

Our mission is to help ensure that financial limitations don’t keep individuals with Usher syndrome from experiencing life, building connections, and making memories with their USH family.

💜 Will you help us support these amazing kids and keep camp accessible to every family?

Every donation, big or small, helps us work toward a future where finances aren’t the reason a child misses out on an experience that could change their life.

Because every child deserves the chance to belong, connect, explore, and make memories.

Mia’s USH Mission
Connecting Beyond Sight & Sound

💜 Donate, share this post, and help us spread awareness!

04/17/2026

💜So incredibly proud of you Mia! You found your beautiful voice and it’s a blessing to witness the impact you are making in your local community.

➡️Follow Mia's USH Mission

04/12/2026

Love seeing our Louisiana USH families together!

Address

Manahawkin, NJ
08050

Website

http://www.avasvoice.org/

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