Ava's Voice

Ava's Voice Connecting USHearts Around the 🌎
Home of USHthis Summer Youth Camp
dream it. believe it. crUSH it.

Connecting USHearts Around the World 🌎

Ava's Voice is the home of three direct programs for children with Usher syndrome:
1. discUSH: supports families of children birth to 10 years, this includes but not limited to, in person retreats and virtual calls to connect families within the Usher syndrome community.
2. USHangouts: provides an opportunity for youth with Usher syndrome (birth-17 years)

to make connections with their peers at the USH Connections Conference hosted by the Usher Syndrome Coalition. Programs are designed specifically for two age groups, USHlittles (birth-7) and USHyouth (8-17). Mentor and role model opportunities are available for adults with Usher syndrome (ages 18+)
3. USHthis Summer Youth Camp: is a week long experience for youth with Usher syndrome (ages 11-17) to have a traditional camp experience with their peers. Mentors are individual with Usher syndrome (ages 18-26) and we also have role models and staff with Usher syndrome (26+)

Founded in the United States of America, Ava’s Voice, collaborates with international organizations to implement the USHthis Summer Camp model to meet the needs of their local USH community.

Local VA USH families ⬇️
05/13/2026

Local VA USH families ⬇️

📣Calling all Young Adults with both vision and hearing loss ages 14-22!

🌟 The Virginia DeafBlind Young Adults Retreat is happening July 10th-12th in Charlottesville, VA.

🎓 Join us as we plan for life after high school through fun and engaging activities!

Register: https://tinyurl.com/2026VADeafblindRetreat

Have questions or looking for more information? Send us an email at [email protected].

04/17/2026

💜So incredibly proud of you Mia! You found your beautiful voice and it’s a blessing to witness the impact you are making in your local community.

➡️Follow Mia's USH Mission

Love seeing our Louisiana USH families together!
04/12/2026

Love seeing our Louisiana USH families together!

⚾️USHearts at the Ballpark♥️Ava’s Voice is welcoming children with Usher syndrome (birth-17 years old) and their familie...
04/02/2026

⚾️USHearts at the Ballpark

♥️Ava’s Voice is welcoming children with Usher syndrome (birth-17 years old) and their families to the ballpark at the Jersey Shore. It’s more than a game, it’s where USHearts connect, at the ballpark and beyond!

🔗 https://avasvoice.org/tickets/

🎟️Ticket includes game admission to private covered seating, access to our USH deck, buffet and refreshments.

📆RSVP by April 17th
Ticket sales will reopen and be available to individuals 18+ if space allows once deadline closes.

ID: Buster, Jersey Shore Blue Claws Mascot, is pitching the Ava’s Voice logo like a baseball. Text reads, “USHearts at the Ballpark Sunday, May 17th Families birth-17”

So grateful for the opportunity to serve our Louisiana USHfamily. Stay tuned to learn more about the incredible program ...
03/29/2026

So grateful for the opportunity to serve our Louisiana USHfamily. Stay tuned to learn more about the incredible program that took place this winter 💜💛🐯

03/17/2026

USHthisCA Announcement Mashup! Who’s next?

📣Important Announcement 🪑Please stand up! 🏕️Due to an overwhelming response, our current camper quota has been met, all ...
03/12/2026

📣Important Announcement

🪑Please stand up!

🏕️Due to an overwhelming response, our current camper quota has been met, all inquiries moving forward will be placed on our waiting list.

✅As we continue through our eligibility and registration process, families on the waiting list will be notified if space becomes available and their camper is invited to move forward with the application.

🏡All interested families, including those on the waiting list, will be invited to attend our Open House, which is one of the steps in our eligibility process. We look forward to the opportunity to meet you and share more about the camp experience.

💫Thank you again for your interest and for being part of our community.

ID: picture of Camp Director Brett, text bubble reads “important announcement” with stand up graphic


📣After a memorable winter on the East Coast that claimed our usual camp dates and months of research, a little camp magi...
03/09/2026

📣After a memorable winter on the East Coast that claimed our usual camp dates and months of research, a little camp magic stepped in. That spark has ignited a special collaboration with Enchanted Hills Camp in Napa Valley, California!

📆July 22nd-27th (staff arrives 7/20)

🔗Links below, space is limited.
Camper Interest Form:
https://forms.gle/v5MEuCpBCXUCfbXx6
Admin, Mentor, or Volunteer:
https://forms.gle/Jyc9sDTF8ZAzFuzP9

✨Owned and operated by the Light House for the Blind and Visually Impaired SF, EHC retains its historic Napa Valley charm in the golden state of California focusing on enhanced accessibility, facilities, and innovative programming!

🏕️Camp has always been about belonging and in 2026, our perfect circle grows even wider.

ID: a picture of a vineyard text reads 2026 Enchanted Hills Camp Napa Valley California Every Path Leads to Possibility


01/01/2026

✨There’s no better way to ring in the New Year than by sharing this incredible news!

📣This fall, our campers and mentors launched a campaign with a bold goal: raise $50,000 for USHthis 2026 and WOW did this community show up!

🌡️You raised funds through awareness activities, challenged yourselves in races, and even joined in seasonal fun like Whamageddon with Camp Director Brett

In less than 30 days, together we raised:
🏃 $25K Run Sign-Up Campaign
🏡 $10K USHthis family sponsors, thank you Schueller and Stidd Families
🦐 $10k from our Ush One See family
🍦$5K The Late Show with Stephen Colbert Ben & Jerry's

THIS is the power of community. THIS is the heart and soul of our camp family!

Biggest of BIG 🖐🏻 to Lilly our highest fundraiser and to Silas for completing his first 5k! Shout out to Galen and Mia hosting local community events and our USH moms that took the lead on this effort! So proud of all of our amazing mentors and campers: Olivia, Awais, Americo, Harper, Allison, JJ, Jordyn, Miley, and everyone that took a chance to make it happen.

Video Description: Ava is sitting in front of a Christmas tree wearing a striped sweater. She is a white female with brunette hair.

💫Collectively we raised $23,461 towards our goal for our 2026 USHthis Summer Camp program. Biggest of BIG 🖐to all of our...
11/16/2025

💫Collectively we raised $23,461 towards our goal for our 2026 USHthis Summer Camp program. Biggest of BIG 🖐to all of our USHfamilies raising awareness and funds.

🎉Today marks our 10 year anniversary, camp t-shirt day, and Ava’s 20th birthday. This movement may have started with her 13th birthday wish, but it continues with the love and heart of all our campers, mentors, and believers!

🎂Ava’s wish this year is that you read their stories and support their efforts to keep our camp program thriving: https://runsignup.com/Race/Donate/NJ/Manahawkin/AvasVoiceInc

🗣️ Shout out to our USHmoms that led the way and our partner organizations like Ush One See, Inc.

Allison
https://runsignup.com/allisonlockwood

Americo
https://runsignup.com/americo

Awais
https://runsignup.com/ushthisawais

Camp Director Brett
https://runsignup.com/honbadger

Carolyn
https://runsignup.com/cookiesforacause

Ethan & Gavin
https://runsignup.com/ushbrothers

Galen’s Voice
https://runsignup.com/galens_voice

Harper
https://runsignup.com/my_birthday_wish

JJ
https://runsignup.com/jjhills

Jordyn
https://runsignup.com/Race/193279/Donate/SJ0qWWyWrgp93Yrw

Kristina
https://runsignup.com/believeit

Lilly
https://runsignup.com/lillysvisionforush

Mia
https://runsignup.com/miasmission

Miley
https://runsignup.com/ushsibcompetition

Olivia
https://runsignup.com/Race/193279/Donate/ocqum7AF5688y7mv

Silas
https://runsignup.com/silas_voice

This is "USHthis Summer Youth Camp" by Summit Studios on Vimeo, the home for high quality videos and the people who love them.

Address

Manahawkin, NJ
08050

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