Spondylitis Association of America

Spondylitis Association of America Welcome! SAA is the leading NON-PROFIT in the U.S. Dedicated to Ankylosing Spondylitis and Related Visit us at www.spondylitis.org to learn more!

SAA is the leading NON-PROFIT in the US for ankylosing spondylitis and related diseases. We are dedicated to finding the cure, raising awareness, and supporting our spondylitis community.

Living with spondylitis means enduring constant, invisible chronic pain—even when your lab results appear "normal." It i...
08/21/2026

Living with spondylitis means enduring constant, invisible chronic pain—even when your lab results appear "normal." It is time for Congress to SEE you! Because federal health agencies do not prioritize collecting chronic pain data, your treatment options remain limited.

YOU can change the system! Lawmakers introduced the "Advancing Research for Chronic Pain Act" (ARCPA) to compel federal research to focus on YOUR needs. * We've launched a quick-action advocacy campaign that takes less than two minutes.

Join us today — don't let your chronic pain stay invisible! https://bit.ly/AdvanceResearch4ChronicPain

August is National Make-A-Will Month, a perfect opportunity to prioritize your loved ones and future planning. Drafting ...
08/20/2026

August is National Make-A-Will Month, a perfect opportunity to prioritize your loved ones and future planning. Drafting a will provides peace of mind, ensures your wishes are followed, and safeguards the people and communities you care most about.

When you make a planned gift, you join the Quest Legacy Society, a community of dedicated supporters committed to shaping the future of spondylitis care and support. Your legacy can ensure that no one faces this disease alone.

To keep things simple and free, we recommend using Free Will, an online tool you can trust. It lets you create your will and include charitable gifts in just a few minutes.

Designating a charity as a beneficiary doesn’t have to be all-or-nothing; you can specify any percentage, such as to SAA.
Learn more here: https://spondylitis.org/get-involved/planned-giving/

08/17/2026

Life doesn't end with a Psortiatic Arthritis (PsA) diagnosis.

In this episode of Spondycast's Psoriatic Arthritis Explained series, Sarah Gustwiller shares her personal experience living with PsA while navigating symptoms, treatment, work, family life, fatigue, and the emotional realities of living with a chronic condition.

Tune in: https://spondylitis.org/spondycast-presents-psoriatic-arthritis-explained/

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SURVEY - Dear Friends and Family: What I Wish You Knew About Spondylitis. Living with spondylitis means navigating invis...
08/14/2026

SURVEY - Dear Friends and Family: What I Wish You Knew About Spondylitis. Living with spondylitis means navigating invisible symptoms and daily realities that loved ones often struggle to understand, which can lead to feelings of isolation.

We’re launching this community-led survey to help bridge that gap and promote self-advocacy. If you’ve ever been told, “But you don’t look sick…,” we invite you to share your experience, give our community a voice, and support one another.

We’d LOVE to hear from YOU! Take the SURVEY here: https://bit.ly/Spondylitis-WishYouKnew

Did you know that 5.9 million Americans have made a commitment to support charities through their wills? August is Natio...
08/13/2026

Did you know that 5.9 million Americans have made a commitment to support charities through their wills? August is National Make-A-Will Month, and this is a friendly reminder to consider making a will today.

A clear estate plan can provide peace of mind and ensure that your final wishes, including your search for a cure, are honored.

Click the link to join SAA's Quest Legacy Society today: https://spondylitis.org/get-involved/planned-giving/

08/10/2026

What are the latest advances in Psoriatic Arthritis treatment: What's available, and what's next?

In this episode of Spondycast's Psoriatic Arthritis Explained series, Dr. Philip Mease returns to discuss how treatment for PsA has evolved, the major treatment options available today, how providers and patients make treatment decisions, what to consider when switching therapies, and what emerging advances may shape the future of PsA care.

https://spondylitis.org/spondycast-presents-psoriatic-arthritis-explained/

Stop Healthcare Delays for Seniors with Spondylitis!Got 40 seconds? That’s all it takes to prevent healthcare delays for...
08/07/2026

Stop Healthcare Delays for Seniors with Spondylitis!
Got 40 seconds? That’s all it takes to prevent healthcare delays for seniors with spondylitis and other chronic illnesses.

Prior authorization delays can cause permanent joint damage in patients with spondylitis. The bipartisan Improving Seniors’ Timely Access to Care Act will help eliminate insurance-related delays for critical treatments, including MRI scans, biologic medications, and physical therapy, for Medicare Advantage patients.

Managing spondylitis requires consistent, uninterrupted care.
Please join SAA and act today: https://bit.ly/ImprovingSeniorsTimelyCare

Why is Spondyloarthritis still missed?In this episode of Spondycast, retired rheumatologist Dr. W. Patrick Knibbe shares...
08/05/2026

Why is Spondyloarthritis still missed?

In this episode of Spondycast, retired rheumatologist Dr. W. Patrick Knibbe shares his unique perspective as both a physician and a patient living with spondyloarthritis. Using his own diagnostic journey, he explains why spondyloarthritis is often difficult to recognize, how diagnosis has changed over the past several decades, and what patients can do to help their healthcare providers identify the disease earlier.

Tune in: https://spondylitis.org/podcasts

08/03/2026

What is Psoriatic Arthritis (PsA)? Who gets PsA, and how is it diagnosed?

In this episode of our special Spondycast Psoriatic Arthritis Explained series, Dr. Philip Mease provides a foundational overview of psoriatic arthritis, including its relationship to psoriasis, common symptoms, risk factors, diagnostic challenges, treatment goals, and where it fits within the broader family of spondyloarthritis conditions.

Tune in to learn more: https://spondylitis.org/spondycast-presents-psoriatic-arthritis-explained/

Have you created your will? August is National Make-A-Will Month, and this is a friendly reminder to create your will to...
07/31/2026

Have you created your will? August is National Make-A-Will Month, and this is a friendly reminder to create your will today.

A will is a legal document that lets you distribute your property and protect your loved ones. It also prevents confusion and ensures your assets go where you want.

Click the link to join SAA's Quest Legacy Society today. To learn more, please visit https://spondylitis.org/get-involved/planned-giving/

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16430 Ventura Boulevard
Los Angeles, CA
91436

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Tuesday 8am - 5pm
Wednesday 8am - 5pm
Thursday 8am - 5pm
Friday 8am - 4pm

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