Spondylitis Association of America

Spondylitis Association of America Welcome! SAA is the leading NON-PROFIT in the U.S. Dedicated to Ankylosing Spondylitis and Related Visit us at www.spondylitis.org to learn more!

SAA is the leading NON-PROFIT in the US for ankylosing spondylitis and related diseases. We are dedicated to finding the cure, raising awareness, and supporting our spondylitis community.

Look what we did together in CA! 🚨Governor Newsom just signed the Safeguarding Genetic Information Act (AB 1798) into la...
10/09/2026

Look what we did together in CA! 🚨
Governor Newsom just signed the Safeguarding Genetic Information Act (AB 1798) into law! Here is why this is a major win for our spondylitis community:
• 🔒 Closes the Loophole: Bans life, disability, and long-term care insurers in CA from using genetic data to discriminate against you.
• 💪 Fearless Testing: Get the early genetic and biomarker testing you need without worrying about future insurance penalties.
• 📅 Effective Jan 1, 2027: Insurers cannot force you to take genetic tests, demand your results, or deny you coverage based on your DNA.
Your DNA belongs to you—not to insurance underwriters. Thank you to every advocate in our SAA community who raised their voice alongside SAA! 💙
Learn more here: https://bit.ly/WIN-SafeguardGeneticInfo

10/08/2026

Your first rheumatology appointment is coming up. Are you prepared?

A little preparation can help you make the most of your visit. Before your appointment, try to:

- Write down your symptoms and when they started.
- Note what makes your pain better or worse.
- List medications and supplements you're taking.
- Gather relevant medical and family history.
- Write down questions you want answered.

You don't need to have all the answers. Your observations are a great place to start.

October is Health Literacy Month. Tips like these can help bridge communication gaps between patients and healthcare providers. Video clip from Spondycast episode 142.

https://spondylitis.org/october-health-observances/

10/05/2026

Are you comfortable and able to honestly discuss the challenges of relationships and sexual health while navigating chronic pain and a chronic illness? Here are some insights you need to hear.

Rheumatology Nurse Practitioner Iris Zink, MSN, ANP, RN-BC joins us for an important conversation about how pain, fatigue, and body image concerns can affect intimacy and sexual well-being, along with practical communication strategies and treatment considerations that can help individuals and couples stay connected.

Tune in: https://spondylitis.org/spondycast-presents-psoriatic-arthritis-explained/

FREE online workshop: Join Helen Jones and Jamie Boder, who both live with AS, for Finding Your Way Forward with AS, a f...
10/03/2026

FREE online workshop: Join Helen Jones and Jamie Boder, who both live with AS, for Finding Your Way Forward with AS, a free online workshop exploring the emotional and physical changes that can accompany ankylosing spondylitis (AS) and axial spondyloarthritis (axial SpA).

Together, we’ll explore grief around changes to your body, identity and life; working with difficult emotions; rebuilding your sense of self; and finding ways to return to movement and activities you love.

đź“… Saturday 3 October 2026
⏰ 3:00–5:00 pm UK time / 10:00 am–12:00 pm Eastern US time
💻 Online via Zoom. Workshop from 3:00–4:30 pm UK time, followed by a live Q&A until 5:00 pm.
Free and open to the AS/axial SpA community.
Register here: https://goteamup.com/p/4547197-yoga-for-as/e/108935045-finding-your-way-forward-with-as-free-wo/

Shoutout to SAA’s own Richard Howard, who was on Capitol Hill today representing both SAA and the spondylitis community ...
10/02/2026

Shoutout to SAA’s own Richard Howard, who was on Capitol Hill today representing both SAA and the spondylitis community as an advocate and a person living with spondylitis! 🙌
Rich joined the Coalition of State Rheumatology Organizations (CSRO) Hill Day to urge federal lawmakers to take urgent action on critical healthcare reforms:
• 💊 PBM & Co-pay Reform
• 🩺 Insurance Overhauls
• 💰 Medicare Payment Stability
• 🧬 Biosimilar Access
Thank you, Richard, for bringing the powerful voice of the spondylitis community straight to Washington! 🏛️💙

Spondyloarthritis can show up in many ways and affect many aspects of life. This October, we're connecting the dots—from...
10/02/2026

Spondyloarthritis can show up in many ways and affect many aspects of life. This October, we're connecting the dots—from spine health and movement to psoriasis, pediatric disease, mental health and health literacy—to help more people recognize SpA, understand their health and find the support they need.

https://spondylitis.org/october-health-observances/

10/01/2026

Do you need to be an expert to advocate for the spondyloarthritis community? You're already an expert in your own condition. So, how can you use your voice?

Heidi Waltz, SAA support group leader and patient advocate, shares her firsthand experience attending the American College of Rheumatology's Rheum Advocacy Conference, offering practical insights and inspiration for anyone interested in using their voice to advance policies that improve the lives of people living with spondyloarthritis.

https://spondylitis.org/podcasts/episode-146-advocacy-in-action-one-patients-experience-advocating-on-capitol-hill/

Address

16430 Ventura Boulevard
Los Angeles, CA
91436

Opening Hours

Monday 8am - 5pm
Tuesday 8am - 5pm
Wednesday 8am - 5pm
Thursday 8am - 5pm
Friday 8am - 4pm

Website

Alerts

Be the first to know and let us send you an email when Spondylitis Association of America posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Shortcuts

Featured

Share

Category